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Jilly from Philly

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About Jilly from Philly

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  1. Hipshot...you live up to your name! I appreciate your uncensored rant and think from the sound of it it was a well-deserved verbal tsunami. (I also thought the newly edited version was pretty hilarious). Glad to hear the waters have receded and you are back to sunning yourself in your usual optimism and spirit. You're an inspiration...coming from someone with a similar inability to edit that she wouldn't trade for all the BOL in the world.
  2. Got the script! I actually had a great doc's appointment; he was genuinely concerned, which I appreciated. O2 hasn't gotten delivered because of the holidays and now we're getting dumped on with snow. Hopefully they'll make it tomorrow, if not then Tuesday. But it sure is peaceful and lovely outside. Managing in the meantime with the triptans...the doc hooked me up with some free samples and wrote a script for Sumavel needle-free injection. Thought my cluster was breaking for a couple days, but then they crashed the Christmas party. Dropped from 360 mg verap to 240, waiting for the O
  3. I'm with Veggie here. Wondering if anyone has had a chance to try this. I would guinea up on this pig if it wasn't for that last pesky dose of Paxil that I'm on...seems to interfere with everything. Apparently, serotonin receptors are like air traffic controllers in the brain.
  4. Burgers, beers, bourbon and butts (ciggies, that is...but depending on how the bourbon and beer go down, I could appreciate some other butts too). ;D Oh, what I would give...
  5. Pops, "Wish I knew more." Sounds like you know a lot. Great idea on calling Miller Med ahead of time, will do that tomorrow, appointment's on Thursday. Tired and hoping to get some sleep tonight. Fingers crossed. Made it to work today and found the kids to be surprisingly energizing. Maybe that's because I've given myself a free week before the break and we're just watching Nightmare Before Christmas. (I know, I know, bell-to-bell instruction, but I'm trying to cut myself a break). Great movie. Understanding is understanding, blood relative or not. In the spirit of the season,
  6. I'm in the Philadelphia region; perhaps I should go with them... Sound advice for sure, but here is what I see as a serious conundrum: psychiatric meds can decrease your chances of a successful bust, right? So I feel like I'm in Sophie's Choice. I could definitely benefit from a handful of SSRIs right now (in the short term) but because of my past experience with them and difficulty getting off, I am VERY wary of going back up (am on 10mg of Paxil now). So I push push push through, but over the past couple weeks I've been very close to starting again, just so I can continue to functi
  7. Jerry, I'm getting redundant but thanks for all that information...and that was the shorter version? I'm heading to the doc on Thursday, and I plan to go in armed to the teeth with information. I am also (as you suggested) bringing some one with me, actually my ex-boyfriend who more than anyone knows the stark reality of suffering through this disease. Which brings me to an important point: the commitment you've demonstrated to your daughter is beyond heroic. I have a stable loving and intact nuclear family, but they have been limited in their ability to offer me support (hence the slig
  8. That is one sexy oxygen tank! :-* I gotta tell mine to hit the gym or something...
  9. Really? Do you find that the oxygen helps alleviate depression? Thank you. Your daughter is a lucky lady.
  10. I am applying all the creative solutions I can to this problem: regular cardio, breathing techniques, yoga, and, most difficult of all, patience. My experience with antidepressants has been nasty, and from what I've read here they interfere with busting. I'm on 10 mg of Paxil, miniscule dose, but the last is the hardest to get off of. When I get off the verap, just going to try busting while on the 10mg because I don't want to send myself into the deep end. It's all I can do to stay sane on this dose, don't want to chance it. Hopefully it won't interfere. Feels like a catch-22, so that's
  11. 2nd time posting here, but have already gotten a lot of help, encouragement and tons of info...an oasis in the desert. With special thanks to Hipshot & Dallas Denny, I am in the process of getting my hands on some 02, and then I start weaning off the verap. In the meantime, went up from 240 mg to 360 a couple days ago (I know, pretty low dose) which nipped the slayers in the bud BUT woke up in the middle of the night feeling like my heart was pounding out of my chest and I wanted to crawl out of my skin...kind of like an anxiety attack but in the middle of the night? So I don't kn
  12. By the way, can you get emails when people respond to your posts or do you just come back and check the site? Thanks again...
  13. WOW! I can't believe how much information and support I got from one posting...truly amazing and inspiring (and now hip to the latest and coolest slang...WHAT WHAT! ) Stay tuned for more questions in response to all your postings. It's late and I'm backed up with work, but I'm looking forward to re-reading and responding to all the feedback, suggestions, explanations...Thanks! :-*
  14. I'm a first-timer here and would love any help I can get. I'm 30, had CHs for 12 years (every since I got hit in the head with a golf club, but you should see the other guy ) and they've been getting worse with time. After several rounds of prednizone and a thyroid condition to thank for it, I found a neuro who told me "cluster head patients are easy to treat" ( :-?) and prescribed verapamil as needed at 240 mg. It actually did the trick for the first year, and I was on and off of it as needed and thinking I'd found a miracle cure. I recently tried to get off the verap after my killi
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