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Jubal

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Everything posted by Jubal

  1. Thanks for posting this. Great read. I'd never heard that Verapamil can make your teeth fall out. Dammit.
  2. I haven't noticed any difference. I'm not sure how much I should be taking, though.
  3. Great link. I'll stop on the way home tonight and grab some. Shadows came on hard this afternoon - after about three weeks of clear time.
  4. I just read that the recipe often used changes the molecule. I don't have a link handy, but that could explain the 13-seeds explanation.
  5. Verapamil has helped me quite a bit. I haven't had any side effects. It took me from chronic hell to a much, much more manageable situation. It didn't work right away, though. Gradually the attacks became less frequent and I started having some 'clear' time when there was no pain at all.
  6. There's a good chance it could backfire. Intense introspection could be just what someone feeling down about themselves doesn't need. Also, if she's really sensitive to medication, she might have a freak out at the sensation. Then again, there's also a chance it could really help. I'd say walk her through everything beforehand, tell her what to expect, and if she wants to try it, stay with her through the whole thing in a safe place with no distractions.
  7. [quote author=6C4B444B4B4C4B5C2E0 Ooh I admire a lot more expensive guitars than I own, but if any of those you've acquired are "vintage" I bet you've actually made some really good inve$tments there. 8-) -Jeebs, member of the Fuster Cluckers, gigs pending at the Bomba Shack. ;D Nope, no vintage guitars. They're a bit beyond what a newspaperman can afford. I have a few really nice players, though, with my pride & joy being my Rickenbacker. Speaking of which, I suppose something good has come from the clusters. Being stuck inside, hiding from the heat and exertion, I took up building stompboxes. I didn't know what a resistor was and now I've been designing my own circuits and PCBs. In fact, I'm starting Calculus class tomorrow with an eye toward going back to school for electrical engineering. @Moxiegirl: I never even considered PTSD. I'm going to look into it. During the really intense moments of a cluster it's like I'm on fire and running around looking for hose that I know doesn't exist. It's funny, though, that the warmer weather this week has me spooked. I assumed it was just pavlovian.
  8. Another quick question. I see people talking about 'shadow.' I don't know what this means. Is it when the pain is more subdued and just always hanging around with the promise of terrible stabbity at any time?
  9. Thanks for the links. I'm going to a different doc than the neurologist who put me on all the different meds. This one is just a GP, but he was the first one to suggest Verapamil. The neurologist kept saying that I had migraine and that I had to keep trying different drugs. It was a long, dark time when nothing was really doing anything except zoning me out. Relpax works OK if I can take it as soon as I can feel it coming on. Problem with that is my insurance only lets me have 4 a month. I've fought and fought over that and they won't budge. I'm for sure going to do everything I can to get some oxygen. The weather started hitting 90 this week and it's really spooked me on a visceral level. I'm willing to try busting, but I'll have to start from zero because I've never cultivated anything - except for a taste in BBQ and expensive guitars ... I've spend the day reading up on the site here and trying to weigh what will be the most noob-friendly solution.
  10. There's something else I'm wondering if other people experience. When I get a serious flare-up, I know, intellectually, that it's a cluster and it will eventually pass, but there's this panic - like an instinct that my eye is about to literally pop or I don't know what, and the panic is as overwhelming as the pain.
  11. This board is the first I've heard of using oxygen - seriously. I'm going to ask my doctor about it the next time I go in. I'm hoping I can find something to help with deep summer around the corner. The heat is my biggest trigger.
  12. Hello all, I'm in my fourth year dealing with clusters. The first two were chronic and it seemed no one or nothing could help me. The neurologist loaded me up on everything from Neurontin to Cymbalta to pain meds. Prednisone was the only thing that really worked, and I begged to get as much as she'd give me. It was all I could do to make it to work, the worst day found me cowering under my desk vomiting in my trash. My boss found it dubious that a 'headache' could make me that sick. After a new doc got me on Verapamil things started to get better. Slowly I stated to have 'clear' periods when suddenly it was like a train got lifted out of my eye. I think quitting smoking helped a lot, too. That was hard, but I'd do ANYTHING to make it stop. I'm finally to the point where I only get attacks a few times a month - most of the year. It was over 100 degrees 60 days last year and it nearly killed me. Anyway, I just wanted to say what a relief it was when I found this site and finally read EXACTLY what I'd been going through.
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