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Fabalicious

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Everything posted by Fabalicious

  1. MG, I am SO glad you are still an earth resident! This would be a more dreary place without you in it. Hugs!
  2. Hey Formby, So sorry to hear of your situation, although the familiarity of it rings true with a lot of CHers from what I have read. I did not see Imitrex on the list of medication that your husband takes. Even though this is not a good long term med (in my own opinion) it works fast, and does give you a pretty nice stick with which to beat the beast down for a while so you can think clearly. After that the options are limitless as to treatments. I suggest reading reading reading. people here use so many different methods to treat, and since the beast is a little different with all of us, its really up to you and your husband which route you want to take. If you try something and it does not work, try something else. Just pick one that you think will work, lay out a game plan for implementation, and do it. The people on this site are wonderful. They are caring and helpful and will answer any questions you have about whatever line of treatment you choose. Just don't give up. There is a treatment out there that can help, its just up to you to find it. Wishing you and your hubby BIG hugs and pain free days!
  3. Hey y'all, I just wanted to take a minute to express my deep appreciation for every single one of you. I am still a Noob on this site but in the short time I have been reading and talking with all of you the change in my life, my outlook on my life, the life of my family has been nothing short of a miracle. Talking with y'all has made me so much more open about this condition, when before I would hide and suffer alone accepting help or support from no one. And I do not exaggerate when I say that this site saved my life. I actually look to the future now with hope instead of dread, even when I am in the throws of an attack. It is my hope that someday , somehow I can do something for another CHer that in some minuscule way repays a little of my karmic debt, but in the meantime, I hold each and every one of you dear to my heart, and send wishes of pain free days, weeks, and dare I say...years. CHFather, you are one of the most unselfish special people on this planet, I hope that you and your daughter both receive all the wonderful things in this life that you deserve. OK sorry for all the mush mush, I just wanted to make sure all of you know this. Thanks for giving me my life back. Love you guys!
  4. CHF I stand corrected...NCBI does state that "suicidal ideations are substantial, occuring in 55%. I was skimming the article when I told her that...but what the heck...she won't know the difference,, as long as WE do. and LOL Jeebs, my dogs are little yorkies...they aren't really good for much but company and love. And Update on the neighbor, she DID catch me walking the dogs, and bought me a plant with red flowers, and apologized saying that she had no idea. Score another point for CH education. Kinda wishing the plant had some RC seeds though.....
  5. Hey y'all! I actually got about 5 hours of good sleep last night!(woohoo!) and woke without a slammer (double woohoo!) so today I am feeling energized and full of piss and vinegar. First off, I must apologize for my unending repetitive postings. As I was reading this morning I saw that I had like 5 posts that say exactly the same thing. Sorry about that (my old self) I will try to do better in the future. Next thing, what do you do with one of "those" neighbors? you know the type ..." OH yes, I know exactly how you feel because I get migraines sometimes" (punch to the face) , This woman Has told everyone in the neighborhood that the reason I can't get rid of my pain is because I won't follow HER advice. Her advice is "when you get a headache just take 2 Bayer aspirin and drink a Coke, works every time" ( falcon kick to the face). She actually cornered my youngest daughter in the driveway yesterday evening and gave her some aspirin and 2 cans of Coke (give me ONE reason not to set this woman on fire) . So last night my daughter came in and copied several pages of CH general information (including the 55% suicide rate and the fact that this condition has no known cause or cure, and the duration of the episodes) and I took these pages and went next door and sat with her as she read them, and answered all of her questions, clarified some info, even pulled up the terrible you tube videos of cluster attacks and made her watch 3 of them. and I did all this without causing her bodily harm....it was a feat of unimaginable proportions! At the risk of repeating myself from another post, patience is a virtue..its just not one of MY virtues. Anyone else have to deal with people like this? I would appreciate any thoughts on how to deal (preferably non violently but I am always open to new ideas ) But now I gotta go, I have PFT and I dont know how long its gonna last, so I am going to go walk my dogs, and look at the sky, and smell some flowers, the possibilities are endless! HUGS and PFD!
  6. I Love your blog! So eloquent! Hugs and PFW to you, and my hubby and daughters send their love and support to your family. We often forget how hard this condition is on them. You said everything perfectly.
  7. Hey Luigi and welcome! First let me tell you that you are in the right place. I am a long time CHer but just recently found this group of fabulous wonderful caring people. There is so much information here, and so much support. These are things that most CHers are not used to having (self induced isolation is a side effect of the beast) When I found this group I actually cried tears of relief when reading the posts. Its hard to explain, but I had been fighting alone for so long..you know? The best advice I can give you about this website is read read read. There is SO much information, and if you have a question (ANY question) post it, we have the Jedi high council of knowledge in our members and, trust me, in a few weeks you are going to be much more knowledgeable about these things than your doctor and will be taking the reins of your own treatment and taking your life back. I have thanked God every single day for finding this website, and I know you will feel the same. HUGS and Pain free days to you!
  8. Hi Astro! My sister is a LMT, and she gives me the hook up quite frequently. Speaking for myself, you are correct in saying that the massage does not prevent or lessen the pain of the CH...BUT, it SURE does help ease the aches and pains in between the attacks. During the attacks, it seems like every single muscle in the upper body is contracted and tensed up. My sisters theory is that I am unconsciously bracing against the pain, even when I try to relax, during an attack theres really nothing you can do but get through it. But after the attack is over, especially after having 3-4 a day for months at a time, it sure does ease the tension. I have never noticed a difference in the intensity or frequency of the CH before and after. I just view it as a wonderful little gift for both the soul and for all the nerves and muscles that are NOT causing me a world of hurt.
  9. Hey Siouz! I am in the process of cleaning the trex out of my system as well. I have taken such high doses for such long periods of time that the side effects have kicked into high gear, chest pain, dizziness, shortness of breath. I agree with you about staying away from that stuff, and thanks to my brothers and sisters in arms for helping me to see the light before I had a heart attack. ;D
  10. I asked my mother this question and she said yes ..I was...but this was back in the day...so she just gave me those good ole baby knock out drops and I would sleep for a day..or so...lol..maybe i WAS having these &^$*##$ headaches back then too. The earliest one i remember was around age 4 though.
  11. Got my o2, took your advice and did the welding tank and ordered the demand valve from ebay...got some other delivery equipment "donated" by the ER doc at the hospital I am employed with. Appreciate the melatonin dosage advice. I started with the 9 mg..I will bump it up tonight. Wish this thing would leave for a bit so I can give the MM a try.
  12. Wifey, so so sorry for your loss, and for the affliction that plagued your husband for all those years. I can tell you that the support of family and friends is SO paramount with these things. Without that...well thats why they are nicknamed suicide headaches. Thank you so much for all you did for him, and for keeping the rest of us in your heart and prayers.
  13. I am trying melatonin as we speak. I read a study from JAMA that stated there was a link with unstable melatonin levels in CH patients in their study group. Speaking for myself, this makes sense, because my sleep cycle has always been erratic, even as a child. I just can not get to sleep unless i am totally exhausted ( after 2-3 days of sleeping in increments of 10-15 minutes). I only started taking it 2 days ago. The beast is still hanging on though, going on 3 weeks now. HUGS and pain free days to everyone! On a good note... my greedy pants insurance company FINALLY approved my triptiphan injections!! woohoo! on my way to pick them up now!
  14. I have these little stabbies as well. Sometimes mixed with the "normal" cluster pain but I have gotten them during my free time. They always give me a good scare because it makes me think I am sliding into another episode, but sometimes they arent a signal. Maybe Mr. Cluster is just giving us a reminder that he is still there...hiding and waiting to pounce at any moment.
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