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clusterb

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clusterb last won the day on October 14 2017

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  1. Great info, thank you for the post.
  2. Mit, I have been doing alot of research due to my CHs returning and came across Horners Syndrome. It talks about droopy eye and has been associated with cluster head aches in other medical articles please see below. if this helps let me know and I will pass along more info, I have a knack at data mining. Hope this helps CB Horner syndrome Horner syndrome is a rare condition that affects the nerves to the eye and face. Causes Horner syndrome can be caused by any interruption in a set of nerve fibers that start in the part of the brain called the hypothalamus and travel
  3. Thanks for all the shares on this thread, I have definitely learned to find my own technique (it only took 19 years..lol). If I hyperventilate and hold the big O2 hit for as long as I can, I have had success in this cycle dropping my abort times down drastically. I am writing this now at a little over 84 hours of CH free time, moved into no shadow living for now. It has been really a hard cycle as I had a 6 year break from the beast. Kept a journal this time which really helped to see the amounts and times and severity. 39 attacks in 21 days and 65 in 54 day period. I am fingers crossed I will
  4. Just signed up last night, my wife and I are looking forward to this very much....Cluster heads Unite!!!
  5. UPDATE, That was PFM Pure fucking Magic.... to think I have been using O2 wrong for like 19 years. That was amazing just zapped a CH in under 5 min. I feel ashamed I didn't read on this site before. Thank you batch and thank all of you for this info Sorry for all these posts, hope I am not clogging up the board. Also tried the 5 hour energy and i guess that helped...thank you Jon and CHF
  6. Man, I have not ever tried this method. I must try it, it is just my luck if I have been doing it wrong for this long. Thank you
  7. Quick question: I have wondered this for awhile, and I am sure this has been covered before but at what point are you just wasting O2. I awoke this morning in a battle with a K8 and hit the O2 hard, took about 30-35 min for the pain to get manageable, then at 40 min it was down to nothing, but I didn't feel that magic moment that tells me it is completely over. I believe all the O2 users know what I mean, if not I feel this release that tells me the beast has slipped away, and then I continue for 5 minutes. Today it took like 20 min no feel of release but pain was not there so I stopped t
  8. Spiny, Thank you much for the info awoke this morning into a battle with a K8, have not tried the caffien yet, need to put some by the bed side. My doc is a gp and after all this knowledge that I have found here, I need to go back in to the doc and drop some knowledge to her, and figure out my verapamil and get some blood work done. Thanks for all the info CB
  9. Urs, Thank you for the input, that is good info. I am reading alot more than I ever have since my CHs have returned. How much CBD have you used when you tried it, and was it smoked or ingested? I have read about people using large amounts of CBD oil in pill form and having good results for seizures and other issues, and wondered if anyone had ever tried that for CHs. I am unable to try cannabis due to employment issues, but CBD does not hit on drug tests from what I have read. Very interesting about the pure THC comment, if others can use that for help with sleep without getting CHs tha
  10. I agree with lots of people posting that pain is relative to the person experiencing it. I have had several K10s in my 19 years of having these CHs. I have never had any pain in my life come close, even a pretty bad motor cycle accident. I have been given Morphine during a massive attack and still felt the CH. I would not pray this shit on anyone. When I first started getting mine I was in the Army and attempted to push through alot of them, that will work up to a K8, but after that I am a useless zombie spitting saliva yelling at people while I pace around like a mad man. Thank God O2 helps,
  11. thanks for the link! Found a doc close to me, hopefully can get in soon
  12. Gents, Thank you, I have tried 5 hour energy before (not for an attack), gave me an upset stomach, and I thought it was because of all the Vitamin B. I will try this with some water to water it down this time. Does the caffeine abort the CH? I work in a lab and have have full strength caffeine, wonder if that would work, like caffeine pills. I am building a shopping list to go grab, had three mild ones today mainly in the morning. I have these weird ones that happen if I snooze a bit, very strange I wake up feeling fine, then take that last little 10 min snooze and wam CH, ever had that h
  13. CHF, Thank you for your response, I have the high flow setup with the cluster mask, just got the mask last month and love it. I tried the energy drink thing years ago, I slammed 3 red bulls at first sign of CH, and did not get any relief, just alot of energy and bloated, was out of O2 at the time so it kind of gave me a bad memory of trying. I have been thinking of trying it again with O2. Do CHrs have issues with higher doses of verapamil? I have always worried about the side affects, but worth giving it a shot to up the dose. I have never tried melatonin at night in cycle, I did try it
  14. Hello all, First time posting, long time reader of posts. I recently just returned to the battle against the beast after a 6-year hiatus. It is a cruel trick the beast played on me, I actually thought I may have been cured, thought possibly I may never get a CH again ……long sigh, this is not how it works though apparently. Little bit of history on me, diagnosed in 98 (age 21) was episodic till 2003, went into chronic (felt chronic as I didn’t have any break for more than a month till about 06, then my episodes changed and did not follow their old pattern. (original time frame April/May-
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