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ClusterBusters

Jimmy Martinez

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Everything posted by Jimmy Martinez

  1. Hi everyone, I'm not to good with computers so maybe this already exists on the forum but are there people who have "beaten" Clusters for good? Meaning they have been CH free for X numbers of years and counting? Have these people posted why they think their headaches stopped for good? I feel like I just need some hope that there are other people out there in the world that have defeated this horrible condition once and for all. I'm 46 this month and I'm scared about the road ahead and how my life will be with these headaches. And I hate using Verapamil (makes me feel like it's stressful on my heart) but it seems to be the most effective I've tried. I haven't tried seeds or MM yet but I'm really close. I've also never naturally ridden out an attack. Meaning an attack never stopped on it's own. I've always had to use oxygen or Maxalt or Migraine strength migraine for relief. But I feel lucky because this all started when I was 37 and some people have been dealing with this much longer. Please share with me or point me toward true stories of people permanently defeating CH. Thank you! Jimmy-
  2. Jimmy Martinez

    any success stories of being CH free for good?

    Thank you both for your responses! I'll be sending prayers to you and all CH sufferers for the rest of my life. Hopefully there can be a cure one day soon.
  3. Jimmy Martinez

    Happy Holidays and thank you

    I've been able to get tremendous help and support from the people on this forum. Thank you. Please know that for the rest of my life, I'll be praying earnestly for everyone to be healthy and pain free. And for there to be a cure. Season's Greeting to all, Jimmy-
  4. Jimmy Martinez

    Open letter to major chemical companies (BOL-148)

    Thank you for spearheading this! what can we do to help you get this off the ground?
  5. Hi everyone, I'm almost 46 and I've had 3 cluster "cycles" in the last 7 or 8 years. Each cycle ran about 2-3 months and during the cycle I did everything except what people call "busting". The last cycle ended late July 2017 and I've been pain free since. Wow. That best 14 months of my life. In the last 3 days I've been awoken in the middle of the night with a very, very light, dull ache behind my left eye. The last few nights I just notice it and go back to bed. But last night it started to get a little uncomfortable so took an Advil and in 10 minutes I was asleep no problem. In LA where I am it's humid and warm and there is a rainstorm coming in the next day or so. I'm guessing the cycles I've had in the past were weather related (weather changing....usually rain or fall type weather). My question is, are there tiny little cluster headaches where there isn't really any pain but instead enough of a sensation where you are awakened and feel some very light pressure? What it feels like to me is the early onset sensation t of a full blown attack but the attack doesn't come. I take vitamin D and B religiously and I'm going to start to drink a glass of water every hour. Coincidentally, yesterday was the first time in a very long while I went to the gym. Then last night, I had just enough of a discomfort to take an Advil If anyone has any thoughts or recommendations I would be grateful. The last time I broke the cycle I prayed and prayed and chanted. I chant a Buddhist chant called "Nam Myoho Renge Kyo". I also took Verapamil. Thank you and I'm sending everyone lots of prayers for great health and no pain. Jimmy-
  6. Jimmy Martinez

    very very light cluster headaches? does anyone get these?

    Thank you Batch and spiny for your replies. You guys have been so strong and have endured so much pain. I'm guessing you guys don't "bust" at all. I promise every day for the rest of my life to chant and pray for you guys to be pain free and for there to be a cure. There has to be a rhyme or reason to this. There has to be a cause to this effect. I wonder what constitutes a barometric pressure drop? higher elevations, rain coming, windy weather.. Tonight I took so CBD oil (no THC) and I'm praying for a good night's sleep. Take good care and we will beat this together! Jimmy-
  7. HI Akiva, I hope you were able to get the verapamil and that it has worked perfectly for you and that you are not in any pain. you will beat this! Take good care, Jimmy-
  8. Jimmy Martinez

    Vitamins

    HI Batch, I hope you are 100% pain free and your family is very well. I am taking the calcium, boron, Zinc, Vitamin A, B, C, and D3 (6 pills at 10,000 IU each pill). I'm also taking fish oil, magnesium, and a multi-vitamin. I ran out of the Vitamin K2. I've asked my doctor about the serum levels but haven't heard back. Hopefully the regime I'm on now is the correct one. I'll try the Bio Tech stuff once me current VD3 supply runs out. Thanks for all you do sir, Jimmy-
  9. Hi friends, I bought a CBD oil called "Charlotte's web". I don't believe it has any THC and it does not have any psychoactive effects. Do you know if it's okay to take this and also take Verapamil? Thanks for your help! Jimmy
  10. Jimmy Martinez

    Okay to take Verapamil and Hemp Oil Extract?

    thank you Spiny! so take the CBD oil 2 hours apart from my Verapamil doses (which are every 3 hours). Hope to talk to you or meet you in person one day. Same with CH father and Batch. You guys are all great people who are so helpful.
  11. HI friend, I'm so so sorry that you are battling this right now. It sounds like you are a pro at battling it. Thanks for the reminder about driving tons of water. Also, for the vitamin D3 regimen, is it crucial to take the FULL regimen or is the vitamin D3 the most important part? I'm taking the calcium, boron, vitamin B, A, Omega 3 fish oil, and a multi vitamin as well as C and B12. I'm taking 7 Vitamin D3 tablets at day which I believe are 10,000 IU. I'm praying for you: nam myth range kyo is what i chant and I am chanting for you. If you can't give me your name, I will chant for CHsurvivor22. take care, jimmy
  12. Jimmy Martinez

    very very light cluster headaches? does anyone get these?

    Thank you Spiny! My attacks come 90% at the middle of the night so if I take a caffeine blast, I won't get any sleep at all but at least I can hopefully abort the attack which is more important. I'm taking Verapamil now and it's working beautifully. I'm not getting any attacks but I feel the Verapamil sort of tightens my chest and isn't helping my heart. I'm going to ask my doctor if I can stop taking it, but I don't want it to cause the attacks to come back. I'm taking the full D# regimen except the Vitamin K2 which I will get. I had shadows for about 2 weeks, nothing bad. The last week I have a full on banger where I needed a maxalt to knock it back into hell. Since then I've been taking varapmil about 5 or 6 days now and no headaches. But I don't know how long I should keep taking it. If I had to guess, I think the change in weather is what causing my attacks. Recently it rained here about 2 weeks ago followed by the windy santa anna winds that are dry and kick up a lot of stuff. If I saw a weather change coming, I could take some sort of allergy medication or preventative medication so a cycle doesn't start. I'm just grateful that Verapamil works but it feel like it's rough stuff on my body. I hope and pray that soon there can be a cure for this because it's such a bizarre condition and rare. Why me I ask myself! But I know I have it good compared to some people who experience more frequent attacks. I'd love to know if anyone out there has beaten this and have been CH FREE for beyond 5 years....and how they did it! When I'm in a cycle I fell like the world stops and every ounce of energy I have is 100% committed to beating it and finding some sort of magical pill or cure. I feel like a cure is coming! I really do. I read somewhere that sleep patterns and exposure to sunlight also could be a major trigger. Take care Spiny and I'm thinking about you and everyone else on this board every day. Whether I'm in a cycle or not. Your pain and struggle is my pain and I'm praying every day literally for you guys to be pain free forever. I feel like besides my family being healthy and safe, the only thing that I really care about is not having a CH. They are bad to the bone!
  13. Hi Akiva, I am one of the lucky ones that seem to respond well to Verapamil. I take it 3 times and day. I'm on it now but I only use it when I feel a cycle coming on or am in a cycle. I hope it works for you. I'm praying for you to be 100% pain free for the rest of your life...CH free primarily! Call your doctor and give it a shot. I have a feeling there will be a cure in the coming years. Warm Regards, Jimmy-
  14. Hi friends in faith (faith that we can beat this horrible ailment), I'm in the Hollywood area and was wondering if anyone who has experience with beating CH attacks could help me? I might consider taking something that is considered "alternative". It appears I might be starting a cycle now (sad face) and hopefully I can beat it back into hell where it belongs. Thanks! Jimmy
  15. Jimmy Martinez

    very very light cluster headaches? does anyone get these?

    Thank you friends for your help! Last night I got a full blown attack after about 2 weeks of little "shadows". I had to find some old Verapamil and some old Ritatriptan to take as the pain was heavy and constant throughout the night after trying 2 rounds of advil. This is a horrible horrible ailment. Batch: thank you for your advice! I've been taking on average 4 to 5 Vitamin D3 pills (10K MG each) every day for over a year now. I also take fish oil, vitamin A, B, C, Magnesium, Calcium, and B-12, and a multivitamin. I'll bump up my VD3 intake to 6 or 7 a day. Siegfried: Thank you for the information. Oxygen works only as a temporary relief for a few minutes. It doesn't seem to kill the pain long term. I'm so glad it works for you. I will probably have to get some as I am sadly expecting a cycle here. J: thanks for there tip on the Melatonin. I'll give that a try by not taking it. I seem to be getting these attacks every 18-20 months since I was 37 and now I'm 46 next month. It rained here last week. other than that I can't figure out what the cause is. I'm a little stressed but nothing more than usual. I'm eating healthy. Drinking decaf coffee. getting good rest. Very sad and frustrating but I will beat this!
  16. Jimmy Martinez

    very very light cluster headaches? does anyone get these?

    Thank you J and Jon for your help! I called my doctor who is supposedly THE headache doctor in LA and he said to take Melatonin (9MG) for a few weeks. You are right, my neck and shoulders are stiff. I have been sober for 15 years so busting would be a huge disappointment for me in so many ways. I'm gonna pray and take the Melatonin and hopefully I can avert an attack. wishing you guys several lifetimes of happiness and health, Jimmy-
  17. Hi Anita, just wanted to let you that I am sending you my prayers so that you never experience a headache again in your life. I see that you are improving. Was it the shrooms?

    1. AnitaJ

      AnitaJ

      Thank you, Jimmy! It's actually my husband who's the clusterhead.

      He had a ketamine infusion on July 10 and since then, he has been symptom free. (Not pain free, but he hasn't had any attacks since then.) We are crossing our fingers that this particular cycle is broken. We're also looking at starting to grown our own shrooms and get some seeds and be prepared for the next attack, whenever that might be. I hope it's not soon.

      Thank you for asking. Are you also a clusterhead?

  18. Jimmy Martinez

    Hoping for help and relief

    Thanks Spiny! I'm going to start a new thread about seeds/shrooms. Hope you can pipe in. Thanks! Jimmy
  19. Jimmy Martinez

    Hoping for help and relief

    Hi everyone, my name is jimmy and I live in Los Angeles. I've experienced CH about 3 times over a 4 year period. I've been to a neurologist and he is currently giving me "maxalt" which my insurance company will only 9 tablets a month. I have oxygen at home and am also taking magnesium, melatonin, and capsicum nasal spray. I've upped my water intake as well. It's been over a year since my last attacks. I thought I was out of the woods! About a week ago they started. Luckily not as strong as in the past but painful enough for me to use the F word begging for God to be merciful and stop the pain. Then the headaches stopped for 3 beautiful heavenly days. Today was a warm day and I was out walking. The left eye ball started to throb and within 5 minutes I was begging for mercy. I got into the car and popped an Advil. With 9 minutes I was getting relief. But those 9 minutes were so bad I felt dying would be a good thing. My heart goes out to all of you especially those who suffer for long periods of time or who have been suffering for many years. Please know I will pray for your relief and for the headaches to disappear and never ever return. If anyone has any tips, suggestions, remedies, or potions that prevent, reduce, or stop the headaches please point me in the right direction. My wife is pregnant and we are expecting in November and I am praying with my entire heart not to be in pain when my baby is born. Whatever websites, forum boards, or information anyone can share that can lead to a reduction in pain, I would be eternally grateful. if I were to guess, my attacks are due to a combination of diet, weather, and stress. Perhaps an overactive mind!
  20. Jimmy Martinez

    Hoping for help and relief

    Hey everyone, just wanted to say hello and let you know I am thinking of all of you everyday, sending you all my strongest deepest prayers for zero pain/ NO CH. I've had 5 glorious days without pain. What a joy it is to not be in pain and to be able to sleep. I'll never take that for granted again in my life. Never. If I had to guess what has stopped the pain, it would be the combination of: * Less stress at work * slightly cooler temperatures * eating no gluten, sugar, dairy, or caffeine for almost 2 weeks. * Batch's loading schedule of 50,000 IU of Vitamin-D3 for the last week * Drinking more water * Taking Verapamil (but I had chest pressure and was told to cut my dosage in half). * Praying every day * Reaching out to others who are experience pain or suffering and trying to help them It scares me to think that the reason the headaches came in the first place was because of the season changing. My guess is that it was because of a stressful work situation. Who knows! I'm just praying to be remain pain-free and I'm continuing the new diet. Also, I've been taking chinese herbs. If anyone is in Los Angeles, Dr. Majeed gives the herbs. He also HIGHLY recommends staying away from dairy, sugar, and gluten. http://www.alioptimalwellness.com Wishing you and your families the most precious of all things, good health. Jimmy- While it is absurd to reject medical science, the principal factor in overcoming illness is the patient and his or her “life force.” In medical terms, it is our capacity to heal ourselves. Life force is a mystic phenomenon that transcends human understanding. Daisaku Ikeda-
  21. Jimmy Martinez

    Hoping for help and relief

    Thank you Matt, Spiny, Bejeeber, CHfather, and Twisted-Melon for all of your comments and help. This is the place where I am getting so much support and help....all thanks to you. Enough about me! How are you guys doing? Is life pretty normal and good for you guys right now? Are you guys managing the beast or have any of you kicked the beast out of town recently? The 80MG of Verapamil I am taking doesn't feel right. I feel like I did some speed or something. Sort of a pressure feeling in my chest and a chemical taste in my system. But good news is that I haven't had a night attack in over week so that means I am sleeping which I desperately needed to do. I keep feeling and thinking that I am coming out of my cycle and the beast will be gone for a long long time. I need a long stretch of pain free days for that to happen! I had 2 day time attacks last week that ripped me up bad and I went on this forum and starting typing to you guys about seeds. I was getting desperate and was ready to try seeds. I felt so "sick" as I was typing I lost the page and never sent it. But that is where I was on Sunday, hoping for seeds help. Maybe even ready for shrooms! I am so grateful right now that I am fairly pain-free, I don't think I could have been able to handle more multi-attack days and nights. It's been over a month that this cycle has been going. I can't stand taking all of the medications. It feels unnatural and unhealthy taking them but if they work, I have no choice but to ingest. I'm also sort of worn out right now of trying to figure out what works and what doesn't work. I've been mostly caffeine, sugar, gluten, and dairy free for almost 2 weeks now and my improved health may be because of it. Who the heck knows! I miss exercising. But if I workout, a nasty headache is almost certain. I sure hope you guys aren't in any cycles right now. And I pray each day that you will never experience a headache again. I would give every dollar/possession (happily) to never experience that horrible left eye ball pain again. My friend at work has been dealing with this since he was a child and he sort of is resigned to things. I think he takes a huge dose of Verapamil every day. I'm trying to encourage him to try new things but he basically has tried everything he tells me. He thinks he just has to "grow out of it" in time. Here is a quote from my Buddhist mentor Daisaku Ikea that I hope gives everyone strength and courage to keep fighting and believing that this can and will be defeated! Wishing you and your families good health because that is really what's most important. To be healthy. To your excellent health always, Jimmy- Hope transforms pessimism into optimism. Hope is invincible. Hope changes everything. It changes winter into summer, darkness into dawn, descent into ascent, barrenness into creativity, agony into joy. Hope is the sun. It is light. It is passion. It is the fundamental force for life’s blossoming.
  22. Jimmy Martinez

    Hoping for help and relief

    Thank you CHfather and Spiny so much. Your support and help is greatly needed and appreciated. Batch emailed me and was a HUGE help. He basically said I am taking the right regimen but asking about a different loading dosage. All of the VD-3 stuff is a little tough for me to understand and implement but I will get help and figure out it so I do it correctly. This last week has been better. About 5 days without night attacks (which to me are the worst attacks because they rob my sleep/energy). I've had 2 daytime attacks in the last 48 hours that I was able to beat down using Excedrin Migraine. I just started taking Verapamil today. 80mg tables, 3 times a day, every 5 hours per doc's prescription. I'm scared to take the Verapamil because of cardio risk. But maybe it could help knock me out of the cycle I am in? I'm hoping the cycle will dissipate naturally as it has it the past. I hope you guys and your family members are doing great and NOT struggling with any pain. You gave me lots to think about regarding caffeine, going gluten free, etc. I'm throwing so much against the wall right now that it's hard to know what's exactly working but I am doing better. To your health and happiness always my friends, Jimmy- PS: I'm praying for every CH sufferer and every pain sufferer in the world very day.
  23. Jimmy Martinez

    Hoping for help and relief

    Dear Friends, just wanted to update you on things with me. Believe me, I am thinking about all of you every day. Especially those who are struggling. I wanted to see if anyone has had any any success or somehow broken through to become consistently pain-free? I'm not ready to hit the shrooms but I won't rule it out. Here's what i have done just recently: * Doctor just put me on Verapamil. 80mg tablets 3 times a day. I haven't started yet but will any day now (insurance reasons). * Trying to get dissolvable Maxalt but fighting with insurance company to get more than 9 in a 30 day period. * Been gluten free now for about 4 days,. Also no sugar or dairy. Many are telling me that this could be a game changer. My doctor thinks it won't make a difference. * Trying to conserve the medication I have. was using Frovatriptan as a preventative but only worked 50% of the time. When i get an attack, I have had some Zomeg a friend of mind gave me. * Lately I have been getting more daytime attacks which is odd because I typically get the attacks 2 hours after I fall asleep. * Oxygen working a little better now that I have a higher flow regulator (max 15 LPM). If I catch an attack early I can knock it out, if caught late, the oxygen does;t work. * Have tried migraine excedrin a few times and it actually has worked. * I have also stopped drinking caffeine. * A friend of mine who gets migraines is telling me about Hemp Oil (CBD) which she says helps. * I've reached out to "Batch" to get more info on this vitamin D3 regimen which I am not taking correctly at this time according to CHfather. I will still try this regimen as I hear it has great success. * I've tried taking Benadryl at night and Melatonin/Magnesium but can't say it's helped much or that I have noticed any difference. I might be doing too many things and confusing myself but I feel like I have to try multiple things to get some impactful results. If anyone has had impactful success with anything, please share it with me. I have heard that "busting" works but I'm nervous about that. Thank you and here's to your health and success! Jimmy-
  24. Jimmy Martinez

    Desperately Seeking Help

    Hi Kay, just checking in on your husband? If he getting any relief? Have you looked into Verapamil? I'm thinking about him every day sending him prayers. Take care and please tell him that he can and will beat this! Aloha, Jimmy-
  25. Jimmy Martinez

    Desperately Seeking Help

    HI Kay, your husband can beat this or he can find much needed relief. Tell him that there are people just like me who "feel his pain" and who are praying for him. Hopefully your husband has access to good doctors where you are. The moderators who have chimed in are wonderful, smart, caring people who have great experience and knowledge to share. Winter never fails to turn to spring. There will be relief and happiness. Hang in there.
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