Hello, I was recently diagnosed with CH, this cycle has lasted 3 months. Neurologist put me on Verapimil which seems to be helping. Only been taking it for 2 days so I hope the results become more noticeable but any improvement is a God sent. My last cycle was treated with Xanax of all things, but it worked. This time around was a bust, probably the only reason I did seek specialized help. But after 3 months I just could not take it anymore. The pain, along with sleep disruption still has me in a fog. It is shocking how distinct my symptoms are, how accurately I described them, and how it never got properly diagnosed. I told the doctor I had at time, I was getting headaches every night, behind my right eye which was blood shot for some reason, waking me up just after falling asleep, and it was like no other headache I ever had, having suffered migraines as a kid I knew what they felt like, and they were nothing compared to these, ibuprofen was not doing a thing, even if I took it all day, and the fact that I always rocked myself during this headache, occasionally pacing, but never sitting still, even a mild CH headache, I can not sit still, I can't be still, can not be around people, never hit my head on the wall, but punched myself in the head certainly. I don't scream, but I groan, massage the lower part of my face. I just feel that it was not taken seriously, by anyone. This cycle was different, different doctor and she got blood work done, has been years since I had blood drawn, plus my medical coverage has been spotty, but had blood drawn about 2 weeks into this cycle, she called me at home and asked how I was feeling, told her I felt good that day, then she told me I was diabetic, bloodsugar was 389, I asked if that was high? Lol, looking back it's funny. But because of that diagnoses my headache symptoms were put aside as a possible result of high blood pressure (180/124) the week prior to my bloodwork and the diabetes. Finally on my last visit about 2 weeks ago I told her I had it with these headaches, couldn't even have a beer anymore cause I get a headache when I drink, and I love beer, and it's yard mowin time, the 2 were created to go together in my mind I told her. So she told me I needed to see a neurologist because that was not her field. Which brings me to right now. So I have posted all my medical mishaps on social media, just to try and get it out there, and I think people find my diabetes to be worse than my headaches. Ignorance is bliss,
Thank you for putting all this information out there, it has helped a great deal. It's also nice to know I am not alone in dealing with this.