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ClusterBusters

tmeseck77

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Everything posted by tmeseck77

  1. tmeseck77

    Just diagnosed

    Hello, I was recently diagnosed with CH, this cycle has lasted 3 months. Neurologist put me on Verapimil which seems to be helping. Only been taking it for 2 days so I hope the results become more noticeable but any improvement is a God sent. My last cycle was treated with Xanax of all things, but it worked. This time around was a bust, probably the only reason I did seek specialized help. But after 3 months I just could not take it anymore. The pain, along with sleep disruption still has me in a fog. It is shocking how distinct my symptoms are, how accurately I described them, and how it never got properly diagnosed. I told the doctor I had at time, I was getting headaches every night, behind my right eye which was blood shot for some reason, waking me up just after falling asleep, and it was like no other headache I ever had, having suffered migraines as a kid I knew what they felt like, and they were nothing compared to these, ibuprofen was not doing a thing, even if I took it all day, and the fact that I always rocked myself during this headache, occasionally pacing, but never sitting still, even a mild CH headache, I can not sit still, I can't be still, can not be around people, never hit my head on the wall, but punched myself in the head certainly. I don't scream, but I groan, massage the lower part of my face. I just feel that it was not taken seriously, by anyone. This cycle was different, different doctor and she got blood work done, has been years since I had blood drawn, plus my medical coverage has been spotty, but had blood drawn about 2 weeks into this cycle, she called me at home and asked how I was feeling, told her I felt good that day, then she told me I was diabetic, bloodsugar was 389, I asked if that was high? Lol, looking back it's funny. But because of that diagnoses my headache symptoms were put aside as a possible result of high blood pressure (180/124) the week prior to my bloodwork and the diabetes. Finally on my last visit about 2 weeks ago I told her I had it with these headaches, couldn't even have a beer anymore cause I get a headache when I drink, and I love beer, and it's yard mowin time, the 2 were created to go together in my mind I told her. So she told me I needed to see a neurologist because that was not her field. Which brings me to right now. So I have posted all my medical mishaps on social media, just to try and get it out there, and I think people find my diabetes to be worse than my headaches. Ignorance is bliss, Thank you for putting all this information out there, it has helped a great deal. It's also nice to know I am not alone in dealing with this.
  2. tmeseck77

    Just diagnosed

    Thank you CHfafher, maybe it is wishful thinking or I am at the end of this cycle. 3 months is about as long as it last with last cycle, time will tell.
  3. tmeseck77

    Freezing

    I sometimes get very flush during my headache, but almost always get cold on the downside, which is nice because 1 it usually means it's ending, and 2 I am so tired that being cold and kinda pain free, I can stop holding my face and rocking and lay down and sleep!
  4. tmeseck77

    half time

    Same with me, and yes I am thanking God, sometimes I even get to lay down and sleep for a short time, then it is back to massaging my face and rocking myself on my bed, sucks!
  5. tmeseck77

    With my two feet back in clusterland

    Hope you don't have to wait till September for relief, sounds like this isn't your first rodeo and nobody knows ur body and cycle better than you. Good luck!
  6. tmeseck77

    New need info

    The more cycles you endure the more you will know about your particular cycle, unfortunately. Verapimil seems to be working for me but I have only been on it for 2 days, fingers crossed. My cycle has lasted 3 months so far, if you have medical coverage use it. Hope you are in the clear!
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