CyMan

I appreciate i am very late to this conversation but I just want to drop in that red bull is now a key part of my armoury the moment the dreaded knock kicks in. I will post a detailed synoptic of my experience in coming days but for anyone suffering right now, seriously consider taurine. To me it's a life saver but I do have to say we are all different and some of us have intolerances and other complications so do be conscious of your personal needs. But if you don't have an issue with caffeine and taurine give it a go. Pour on lots of ice and gulp it freezing cold so it hits the back of your throat which is the nearest you can get to your pituitary gland without poking a hole in yourself. The cold soothes the brain and the taurine does some magic and at least dulls the agony. X

Stories like this give hope to those of us who are in the middle of an episode. So glad you found your sweet spot and wish you a life fulfilled and happy and pain free

It's far too early to say much due to the aggressive nature of CH but over the past 3 days I have treated each attack with only red bull and ice packs and for the most part it seems to have a significant effect in reducing intensity and duration. I avoid my triptan shots as I'm mid bust atm and living in a 3rd world country called UK I don't have access to o2. Basically if it wasn't for this group of ppl on CB.org I'm on my own... Will update again in due course. I appreciate though it's very much horses for courses and what may help one person may not help the other. Im currently 5 weeks into my episode and fed up doesn't even come close to describe it. Every single time I lapse into a sleep I get a massive attack. Im functioning on max 2 hours a day of sleep made up on 30 minute cat naps. I never knew the human body can function on such little sleep although I barely describe myself as functioning I'm more just trying to survive

Ive been begging the pathetic nhs for o2 and I can't get any. How did you manage it? I literally have no support except for occasional prescription for 2 nasal vials of that awful triptan. They simply don't care about me and forgotten me completely

I know this is an old post topic but I tried red bull twice this week and both times I felt the attack ease and even dissipate. I don't remember to take it as soon as the attack starts but nevertheless have had positive effects. I will post more updates as I just purchased a big box of these for emergencies and plan to continue using until it shows its not working or is working etc.. We are in it together so let's keep it together x