WTH?

[Cindi]

It’s me again. First time experience with CH at 65 years old. I had 4 days with no Ch and no shadows. Then night before last woke up at 4:30 am with a mild, like the start of a CH that never happened. Next night nothing. This morning I wake up at 9 am with another mild CH and have had shadows all day. Just when I thought it was over, it’s not! My anxiety and depression are sky high and I’m still 10 days from my first appt. With a neurologist. I need help, hope, words of encouragement or wisdom?? I’m a freaking mess. And what the Sam hell is going on? Is it never going to end? I’m 9 weeks into this and I’m so over it!!!!!

[Dallas Denny]

10 hours ago, Cindi said:

@Cindi I can just imagine what it must be like to have such a late onset of this terrible affliction!!  About to turn 76 myself but I've had almost 40 years to get used to this nonsense!!

I need help, hope, words of encouragement or wisdom?? 

Being so early on in your diagnosis, my best advice is probably H.O.P.E...Hold On Pain Ends!!

Wishing for some pain-free time for you soon!

Dallas Denny 

[CHfather]

As I remember, Cindi, you are only taking verapamil, probably at a pretty low dose.  So the hopeful part is that soon you'll have more of an arsenal.  Don't know whether you have started the D3 regimen or tried any of the "Treatments Without Oxygen ..." that are mentioned toward the end of this document -- https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ -- which I'm pretty sure I would have linked to in your earlier thread.  

CH is very unpredictable for lots of people.  With the pattern you have described here, I'm also wondering about triggers, which you can read more about here: https://clusterbusters.org/forums/topic/4568-triggers/ .  (I'd suggest reading through the whole thread, not just the first post.)