Quick hello

[basoon]

Hi there,

Thought I'd say Hi as I've been lurking for the last few months...

I've been CH sufferer since 1999. Was episodic for a few years and bouts were fairly predictable but they've lengthened so much in recent years I'm not sure if I'm chronic now or not.

Hadn't really considered shrooms etc. til recently as I'd been on verapamil which had been largely effective. Over time though I was having to increase my dose until earlier this year it caused me to suffer a complete heart block when on a train... A pretty scary experience where I actually thought I was going to die. Spent a few days in hospital but obviously had to totally come off the verap after that.

Tried Topamax which turned me into a dribbling idiot, Quite enjoyable for a brief moment to be honest! Have been sober for so long it was a some what novel experience feeling spaced and having a high foolish factor in my brain. Was like reliving being 18 again.Wasn't nice to permanently be like that though as couldn't function or work so came off it. Am now on Pregabaline which is hopefully working though don't know if it coinicided with a period of remission and we're now heading into the time of year when my headaches get most intense and I'm getting v heavy shadowing. Seems like busting could be the best solution for me longer term.

Anyway, always good to read some pretty inspiring stories and see how well supported people are on here. You can get a sense of perspective and realise you've had if far easier than many.

Tomorrow I fly from London to Chicago for the conference so I really look forward to meeting some of you then.

Zak.

[Bejeeber]

Hey Zak,

Good to see you here on the message board - and COOL that you'll be at the CB conference!  8-)

You are going to be one well informed, and I bet successful cluster buster, with lotsa new CB pals.