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basoon

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  1. Thank you very much Lieutenant for your work on this and Par for reporting back on your experiences, has been v helpful. I'm sorry to hear you having a tough time at the minute, hope things improve for you soon Lieutenant, I had a question about the effects of 5meo-dalt. I really like the the idea of being able to measure accurately how much I'm consuming each dose. Know it's a difficult question to answer, as sure it varies a lot, but what I'm wondering about is how much of a trip is likely from a 20mg dose and how long it lasts? When i busted with shrooms I really really struggled with
  2. Here's a link to that double blind trial I mentioned on the efficacy of oxygen: http://jama.ama-assn.org/content/302/22/2451.full.pdf+html Might be a better thing to show your doc then the link I posted earlier as it's specifically about oxygen and it's taken from a respected, peer reviewed journal. It concludes that oxygen aborted attacks within 15 minutes for 78% of the trialists. If they agree to authorise it then here's a part completed oxygen order form: http://www.ouchuk.org/html/news/HOOF-new-part-complete-amended.pdf
  3. Yeah oxygen works amazingly well for me. Apart from the middle of the night attacks if I can get on oxygen during the day right at the first tingle of an attack, it'll generally stop it from coming on totally. It's not as effective for everyone but it has proven efficacy. Goadsby carried out a double blind controlled study and though I can't remember the exact results it was something like 70-80% successful in aborting attacks within 15 minutes. It generally works quicker than that for me. Also, unlike other treatments there are basically no side effects and no health risks from long term us
  4. Also, regarding melatonin different brands seem to work better for different people. Biotech seems to be amongst the best though. You can actually get your GP to prescribe them for you or you can buy them online.
  5. Hi Hajada, I'm based in the UK too and have pretty similar story to yourself. Have had them for 14 years, Starting when I was 18, wrongly diagnosed til I was 25 and each episode I've had has got progressively worse. I ended up looking on here when I started having problems with some of the more conventional treatments but as mentioned above it's still worth signing up with OuchUK. You can get a lot of support from them in regards to NHS regulations and treatments etc. You really should persist with trying to get oxygen. Change your GP if need be. You need to have one who can give you sup
  6. Hi Renee, I genuinely can't imagine hearing of a single method of aborting (or reducing pain of) an attack that any ch sufferer would consider strange. Seems appalling (though not surprising) that your doc has never provided you with oxygen as it's down as one of the first line abortive treatments in the UK (you can print this out and show it to your doctor http://www.ouchuk.org/html/new/Precriber.pdf). OUCHUK also have a completed oxygen request form (http://www.ouchuk.org/html/media_downloads.asp - it's the 4th pdf down) which you can take to your GP and get them to sign off and fax to y
  7. Edit - Just saw your other posts that you're taking it for other medical conditions. Is great that you're feeling better from those other conditions and truly hope you continue to feel healthy! If you look at the general research on MMS and the bad science it's predicated upon though it seems much more probable that that any recent improvements have been due to other factors. I'm also based in the UK, by the way. They've changed the NHS guidelines now so you can request to be treated by any doctor. If you unhappy with your doctor I'd def recommend that you ask to be referred to Dr Matharu'
  8. Hi Bushman, I know you only mention MMS as you feel you've had good results with it but I would strongly suggest that any improvement you've had with your headaches have been to do with the irregular nature of our condition and just a coincidental return to the mean. miraclemineralsupplement has been thoroughly debunked by various sources and their lucrative affiliate scheme encourages many unscrupulous sites to promote the drug knowing that they'll receive 50% of any sale. 50% profit to an affiliate also gives an indication of the massive mark up they place on the drug. There's only some
  9. Hi there, Thought I'd say Hi as I've been lurking for the last few months... I've been CH sufferer since 1999. Was episodic for a few years and bouts were fairly predictable but they've lengthened so much in recent years I'm not sure if I'm chronic now or not. Hadn't really considered shrooms etc. til recently as I'd been on verapamil which had been largely effective. Over time though I was having to increase my dose until earlier this year it caused me to suffer a complete heart block when on a train... A pretty scary experience where I actually thought I was going to die. Spent a few d
  10. Hi all, Just thought I'd say a quick hello and introduce myself. Am heading over from London with my girlfriend Louise. Been a ch sufferer for 11 years but they've got increasingly difficult to control over the last year. Feeling pretty upbeat about things now but am looking to try to find a new way of dealing with them and getting a bit more freedom back... Looking forward to meeting you all later this week. Zak.
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