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Posted

Hi all! First off wanted to say thank you to everyone on this board for years of help and support. You all are the best! 

So right now I have something rather strange going on, that I haven't experienced in my 20 yrs of CH. I'm not currently in a cycle but I've been getting one headache per day. I have strange pain at the base of my skull on my cluster side that sort of throbs. I also have a sore spot at the top part of my spine where there's that knob in the top middle of my back. 

Im so confused by this! I've had one off, out of cycle headaches before that were triggered by physical trauma (usually facial on my cluster side) but never anything like this. And again, I'm not in cycle because I'm not triggered by alcohol or stuffy rooms. I don't have the eye twitches either. And all of the usual abortive things I do don't work, like mushrooms, red bull or vigorous exercise. Weirdly ibuprofen helps a bit and ice to the location. But I cant seem to pinpoint what's causing it or where the soreness is coming from originally.

I'm truly at a loss. Has anyone else experienced this? 

Posted

Hi swtbite,

It almost sounds like something is off in your back causing the pain to radiate up to the back of your head/neck.. The way you describe the pain sounds like a normal headache not a one off attack especially since you are getting some relief from ibuprofen.. I'm not big on chiropractic work but it might be worth a try in this instance..

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Posted

I may try to get in with either a headache doctor or let my physical therapist know. It's definitely the same feeling as a cluster headache though. One sided, around the eye, one nostril gets plugged up. It's so bizarre!

Posted

Yea that sounds like CH. I just always seem to think of Ch pain to be spikes or piercing pain. I do get something I call broke neck sometime prior to a cycle.. I hope you get it sorted out soon!

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