anthony g Posted January 7, 2012 Share Posted January 7, 2012 Is the best way to describe my clusters. I have had these chronic shadows for over a year since my last cycle ended back in may 2010. My shadows increase at times and I really havent had a true "headbanger" since end of april 2010. that being said I have been left with this "stuck cluster shadow" as mr wold calls it ( perfect description bob thanks) . I never really heard of anyone with this similar case? I am grateful that my chronic is not multiple headbangers each day but I am on edge and sucks just the same. I tried multiple meds and combos of them and nothing really worked so happy to say I am ned free for a month and a half and still the same ole shadows but happily without the nasty side effects of meds! I am new to busting did shrroms 2 times and rc seed 2 times and not much difference. I do think I felt a bit better with the seeds according to my journal at least one of the times. Well guys Im kinda at a loss I know this takes patience and determination and I AM DETERMINED! I just am so confused cause my chronic condition seems different from most. I have a great headache specialist here in nyc but honestly his guess is as good as mine. Of course he wants me to stick to the med thing but I refuse. He doesnt really feed into the busting thing so I just leave it alone. I would love some input from U folks and look forward to giving it my best shot!!! best Anthony Quote Link to comment Share on other sites More sharing options...
Guest Posted January 7, 2012 Share Posted January 7, 2012 Does sound very strange, are there any other headache specialist in your area? Perhaps get a second opinion? When you were diagnosed did you have all the MRI's CT scans and all that crap to rule other things out? What about the Klonopin you were taking? are you still on that? could there be withdrawls from it? when you dose with MM does the pain subside? only to return when the MM wears off? Sorry if I may seem a little ignorant with your situation, I'll admit I get some people mixed up sometimes so I apologize if thats the case. AO Quote Link to comment Share on other sites More sharing options...
anthony g Posted January 7, 2012 Author Share Posted January 7, 2012 Hey agent When i was diagnosed I did have an mri. Everything was cool but that was 2 yrs ago. I had 3 cycles ever inmy life all 10 yr remission in between (crazy ey) I never had a ct scan though. About the klonopin i take a small dose .05 mg maybe once a day so not so much. maybe 2 times a day at times. when i do the m dose the pain doesnt really stop . You dont seem ignorant at all man its a tricky situation. I have a great specialist one of the top in ny and I was considering a second opinion.I actually did go to another specialist now that i think about it but didnt really like her so much. What would a cat scan show? I was thinking about doing rc seeds this weekend again. thanks Anthony Quote Link to comment Share on other sites More sharing options...
Pixie-elf Posted January 7, 2012 Share Posted January 7, 2012 A ct scan would show if anything has changed in your brain. Same as an MRI, it'll show if there's something going on with your head that is different than just the CH. You might want to get the doc to go ahead and re-run them, make sure nothing has changed over the past 2 years. Quote Link to comment Share on other sites More sharing options...
Guest Posted January 7, 2012 Share Posted January 7, 2012 How long and what do you take klonopin for? If you dont mind me asking... maybe how long you have been taking it could be the bigger concern... i am not fully aware of its effects or uses you say you dont take much, but if thats the case whats the point of taking it? maybe its causing more harm than good, dont take my thoughts the wrong way, i hate prescription drugs so i always ask people if the benefit is worth the risk kinda like when someone asks for a dollar, and you say no, and they say its only a dollar... well if its only a dollar why dont YOU have one lol just curious because there is a thing called MOH medicine overuse headache I am by far not an expert, not even close, just proposing some questions that may be good to ask your self or your doc Im sorry IÂ cant help ya more, if the MM doesnt subside the pain you constantly have there may be something else going on. most all who use these busting agents report while dosing their head becomes more clear than it ever was just thoughts and opinions and ideas, your situation has me baffled good luck bro, keep us updated, pixie has a good idea about the re testing. ive thought about going myself or maybe trying to get an MRI while having an attack, but i shy away from any "medical professional" i just dont trust them cuz of what has happened already AO Quote Link to comment Share on other sites More sharing options...
Bonkers Posted January 7, 2012 Share Posted January 7, 2012 Maybe you could shoot Bob a PM with your question since his description of that type of shadows so closely matches what you're feeling. That description could well be of his own shadows at some point. Ron Quote Link to comment Share on other sites More sharing options...
tingeling Posted January 7, 2012 Share Posted January 7, 2012 Doesn`t sound odd at all to me. This is something i always had after busting. It`s like i won`t get hit but the hits is camouflaged for the time the bust works. When it`s effect fades, it will start to hurt instead. Quote Link to comment Share on other sites More sharing options...
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