Bejeeber Posted July 19, 2013 Share Posted July 19, 2013 I sure appreciate all your (and your son's!) efforts C'man 59. At first glance my only issue is that the term "headache" is used 19 times on the home page. Actually that's just a reflection of a bigger/deeper issue, beyond your personal control, that I have: I believe the term headache is just plain wrong and entirely misleading, and changing it would be one of the singly most effective ways to improve understanding of the condition. How do you get the name of a medical condition officially changed, such as when manic depression was renamed bipolar disorder, or mental retardation was renamed developmental disability? I don't know, and granted, all I've ever done is whine about the name cluster headache, but I do feel that when it comes to raising awareness out there in general public-ville, the name change should be step one. And I wouldn't be surprised if leaders in the medical field like Dr. Goadsby would be onboard with such a change. So, sorry, I may be the only hard-liner on this issue you encounter, and maybe I should just be swatted away like an annoying mosquito on your noble march to raise awareness, but I personally can't imagine myself flying any banners with the term headache emblazoned upon them. Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted July 19, 2013 Share Posted July 19, 2013 I am behind you a 100%, you know that John and everyone deserves to give your praise as well. Quote Link to comment Share on other sites More sharing options...
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