They are back.

[madmike]

Hello, It has been a decade since I have visited y’all.  I regret forgetting how support this group had giving me on the past.  I’m sorry I have not been there to support others when I was pain free.

There is a vitamin D cocktail that helped me very much, could you direct me to it?

Recently I have been diagnosed with an autoimmune disease called CIDP and coincidentally or not my headaches have returned after being five years pain free.

Up to an imitrex injection nightly for a month and high flow O2 throughout the day.  Not going completely away at all.

Im am going to hit the forum archives hard.

So as you all know I am in panic mode and am reaching out for help and support.

Thank you, Mike D

[BoscoPiko]

Hi Mike,

Sorry to hear that the headbangers are back... It's always a serious bummer to read about this sort of situation. Attached is a PDF of the D3 Quick Start guide. There has been some good discussions on splitting your trex injections as most find that they get the same relief with a half dose and this method helps to reduce overuse.  

There are other resources on here if you are open to less conventional methods to manage your bangers (Blue ribbon at the top-New users please read here first). I hope this passes soon!!

Quick Start Guide - Sept 2023.pdf

[madmike]

Hey thanks for the help.

I actually am able to have vials RX and dose myself.

Also have a demand valve setup.

Appreciate the links.  Mike

[charles87sf]

Hey Mike,

I hate that for you, brother! I get it though.. .Like you, I also kinda disappear from the forums when I'm cluster free. I always find my way back when I go through a cycle though... Like right now... But I wanted you to know that I've had a good amount of success so far with Emgality. I started taking it a little over a year ago and I think it's been working quite well. I still have attacks, but not as many as I would if i was not taking Emgality... Though... Cigna JUST dropped covering it as of last week... Soooooo.... Fun times. Good luck to you though and feel free to reach out anytime! My current cycle is just starting so I suspect I'll be on here frequently over the next few months.

Take care,