Hemicrania Continua: In Need of Resources and/or Reassurance

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I forgot to follow up on my earlier thread, but thanks in part to @Dallas Dennyand @CHfather, I've been working my neurologist to explore the possibility that I actually have hemicrania continua rather than cluster headaches, and that seems quite likely.

He put me on 50 mg of indomethacin twice a day, and after a week of some relief (not complete, but definitely more than the oxygen or triptans) and minimal side effects, I'm now up to 50 mg three times a day. I'm very grateful to say that I haven't found the indomethacin as intolerable as I'd feared, even though it feels like this is still a much lower dose than I'll need to fully get on top of the pain.

I know this is a forum for cluster headaches, but I can't seem to find any better place to ask, so if anybody knows of any hemicrania resources, I'd be immensely grateful. I'm not even sure what to really expect, honestly--whether it's even reasonable to hope that this pain might ever go away, or that I could ever lead a functional life again. Until the last couple of days, I'd been able to not dwell on the possibility of this being a problem for the rest of my life; but now that I'm in another emotional rough patch, that creeping sense of "this will never end" is increasingly weighing me down.

Maybe higher doses of indomethacin will eventually get this under more control, and maybe it's just a matter of continuing to be patient, especially since I'm only two months in (and it seems the standard for hemicrania is that it lasts at least three). But even though the pain has slowly gotten a little better from week to week, the mental toll is brutal.

[CHfather]

  There's this, with Gammacore.  The problem has been (and probably still is) that it is very expensive: Hemicrania Continua and Paroxysmal Hemicrania Treatment.

I would PM Batch (his handle here is xxx) and ask him whether he has any experience with vitamin D3 and hemicranias.

There are other alternatives.  I'd google [new treatments for hemicrania] or something like that.