jms Posted August 9, 2016 Share Posted August 9, 2016 The TV show "The Doctors" did a segment today on CH. One of their staff members suffers from CH. I didn't catch the show but saw a clip on their website. I'm glad to see CH getting the coverage. Maybe more people will begin to understand what it is all about. 1 Quote Link to comment Share on other sites More sharing options...
CHfather Posted August 9, 2016 Share Posted August 9, 2016 The clip is in two parts here: http://www.thedoctorstv.com/videos/doctors-staff-member-seeks-help-for-cluster-headaches (second part is in the "click here"). I agree that it's nice that CH is getting some attention, although I so wished that the segment could have been more thorough. We're left with the idea that the patient is basically fine now that he knows how to use his oxygen. And I really don't think all this calm patient-talk and doctor-talk truly conveyed how bad CH is. And my blood is still boiling, as it always done in these circumstances, at the fact that he was prescribed oxygen by a neurologist but was never shown how to use it correctly, and that he's been doing it wrong for 7 or 8 years. Quote Link to comment Share on other sites More sharing options...
surgeonasim Posted August 9, 2016 Share Posted August 9, 2016 :'milimetering' forward......hopefully the next generations will see more awareness and acceptance. Thanks for the link. Just tonight I bumped into my orthopedic colleague at the hospital. He just returned from some conference at Bali. He mentioned a session on pain management conducted by some french gentleman there. One participant did ask a question abt Cluster headache. The reply of the worthy speaker was "I could talk for hours....if you are ready to be struck by migraine just listening abt it" Quote Link to comment Share on other sites More sharing options...
mit12 Posted August 9, 2016 Share Posted August 9, 2016 When I went to my headache doc over 20 years ago he gave me a little oxygen mask and had me breath it for 15 minutes. He told me to lay down and relax and breath. It did nothing! Not to mention trying to lay down with a CH is impossible. Based on that experience both he and I thought that oxygen did not work for me. CHfather pushed me to give it a try with high flow and proper mask. It worked! Although it was nice to see the CH talked about on national TV, they need to show the correct way to treat the beast. Quote Link to comment Share on other sites More sharing options...
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