outofcontrol Posted October 17, 2016 Share Posted October 17, 2016 Hoping to find local CH sufferers to get together with and form a local support group to help each other during our time of need. Quote Link to comment Share on other sites More sharing options...
Hbomb222 Posted October 19, 2016 Share Posted October 19, 2016 Hi, I am moving to New Orleans in a week. Hit me up! Quote Link to comment Share on other sites More sharing options...
outofcontrol Posted October 19, 2016 Author Share Posted October 19, 2016 Let me know when you get there and I'll get you contact info Quote Link to comment Share on other sites More sharing options...
nolaNancy Posted January 28, 2017 Share Posted January 28, 2017 Hello- are you still looking for people in S LA? I live in NOLA- I'd like to contact others here who have/understand the condition. I found this site 4 or so years ago, but haven't been here for a long while, unable to access the "new" forum, and then browsing the Facebook page for support and information. I've busted in years past, it worked, but I got complacent, and now stuck in a very bad 6 week cycle. (ECH) Sometimes I'd like to actually talk to someone, not type. Quote Link to comment Share on other sites More sharing options...
outofcontrol Posted March 27, 2017 Author Share Posted March 27, 2017 nolaNancy- let me know how to get in touch. been suffering for 33 yrs with this. I live about 1 hour from N.O. in Thibodaux.Saw a Dr. in Chalmette last yr but the meds she prescribed DID NOT WORK. My only relief was oxygen. Busting has always been the way to go--sometimes 2 yrs w/o ha's with strong dose Quote Link to comment Share on other sites More sharing options...
nolaNancy Posted April 2, 2017 Share Posted April 2, 2017 hi- sorry I took so long to reply- bad habit of mine to not reply to emails, which just increases the isolation. I've had the HA for 15-+ years. In remission, but I can feel it creeping up on me- usually get a cluster in April. Funny you mention a woman MD in Chalmette, I've been to her too, some years back. Tried to tell her about cluster busters, headache on the hill. Not interested. I just read some of your posts from Nov. Please call- I wonder if you ever got your grow together? I could use some support, encouragement w/ the mycology. I agree busting is the way to go. Just getting a little anxious about the coming season. Almost tempted to try the Pred. taper the MD offered, but in general, I'm not a fan of conventional meds. At least not for Cluster Headache! Best, Nancy Quote Link to comment Share on other sites More sharing options...
amon10 Posted April 3, 2017 Share Posted April 3, 2017 Hope you guys can meet up. I waited 25 years before I meet fellow sufferers in person....wish I never waited so long. Quote Link to comment Share on other sites More sharing options...
outofcontrol Posted April 5, 2017 Author Share Posted April 5, 2017 HAD A BAD COLD LAST YR DURING MY CYCLE AND WENT TO SEE MY GENERAL PRACTITIONER. TOLD HIM I WAS ALSO IN MY CYCLE OF CH. HE SAID "YOU SUFFER FROM THOSE" I REALLY HAVE SYMPATHY FOR ANYONE WHO SUFFERS FROM THOSE TYPE OF HA'S. HE SAID HE WOULD PUMP ME UP WITH STEROIDS WHICH WOULD KNOCK OUT MY COLD SYMPTOMS AND WOULD PROBABLY STOP THE HA'S FOR A WHILE. HE WAS RIGHT , WENT ABOUT 4 DAYS W/O A HA, THEN RIGHT BACK ON COURSE WITH 3-5 A DAY. WAS A HAPPY PERSON WHILE IT LASTED, BUT CAN'T TAKE STEROIDS W/O HAVING EYE PROBLEMS AFTER. STILL WAITING ON MY FARMER TO GIVE ME SOME GOOD NEWS, BUT STILL NEED TO FIGURE OUT HOW TO GROW MY OWN BEFORE THIS BEAST COMES BACK WHICH SHOULD BE IN A COUPLE OF MONTHS Quote Link to comment Share on other sites More sharing options...
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