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amon10

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amon10 last won the day on December 14 2017

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About amon10

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  1. amon10

    When do you know your cluster cycle is over?

    Episodic over 25 years now and the majority of my cycles did not end any way special. For me it took a while to grasp it but I know when my cycle ends because it is like a fog has been lifted. Unscientific I know but I just feel “normal” again.
  2. amon10

    MASSIVE APPOLOGY

    Absolutely no apologies needed. Thanks for all your hard work keeping things going. With my tech skills I just thought I screwed my device up and it was going to be a while before I fumbled my way back here. lol
  3. amon10

    Getting a bit worried

    As a fellow episodic I wouldn’t put too much into your sleep schedule starting your cycle. I work swing shift all the time and the only thing certain for me is when I’m in cycle 80-90% of my attacks are coming during sleep.
  4. amon10

    another odd one...

    Good advice CHF, the verapamil's effectiveness will be lowered. Sometimes it's a balance you won't lower the D3's effective but I have found when I get my blood levels where they need to be I have relied less on the verapamil.
  5. amon10

    Stay on D3 regiment?

    Episodic and have stayed on the D3 on maintenance dose based off my blood levels. Absolutely convinced it has also helped with my years of joint pain and arthritis. I have been able to reduce my intake of OTC anti inflammatory medication by 80-90%.
  6. amon10

    Bad Doctor?

    Any doctor you can't have a conversation with in my opinion would gone. A doctor that dictates medical treatment without feedback from the patient, does not deserve patients.
  7. Not looking for a share but just heads up, another room should be available. Unfortunately had to cancel yesterday, feeling bummed.
  8. amon10

    Wisconsin Cluster Heads!

    Also there is a good Facebook group that has several people from Wisconsin and also a link for map to fellow suffers. Clusterheadaches is the best group on Facebook some of the other ones are kinda of controlling and limit topics. Let me know if you are on Facebook and want me to send you an invite.
  9. amon10

    Wisconsin Cluster Heads!

    Fellow Wisconsin suffer here. Out of cycle right now, but know what you mean by CH effecting all parts of your life. Also agree with DD about the conference this year. Another member here has been suggesting it to me and my wife for a few years already and after meeting some fellow suffers in person last year we are heading to the conference this year. There is something truly validating about meeting fellow CHers in person, wish I would not have waited 25 years to do it.
  10. amon10

    Help needed fast

    I agree with CHF, trying adding the D3. It will make them O2 aborts even more effective.
  11. amon10

    Oh 3 yr attack...They're back!

    As far as welding oxygen goes it's pretty straight forward. Purchase your own tank or rent from a welding supply company. The oxygen is produced in the same manner. When you purchase the oxygen you will need a "story", they won't knowingly sell you it for medical reasons. More liability reasons than anything. Tell them a buddy is teaching you welding, or glass blowing. You don't need any other equipment, just extra 02. Buy a regulator online or one at a tool supply store. Need one with a CGA 540 style regulator to fit a welding oxygen tank. Then purchase a non rebreather mask. This is a good one: http://www.clusterheadaches.com/ccp8/ Then check back and someone gave you best practices on how to use it. If your doctor can't give you a valid reason(respiratory conditions) for not using oxygen you should be fine.
  12. amon10

    very week after ch

    Sorry your getting CH hits daily. I have no answers to help you but know it's not the oxygen leaving you tired. Cluster attacks take more of a physical toll than we sometimes realize. If you have some milder attacks try a 5 hour energy shot or Red Bull. Also if you have daily attacks with a unending cycle you might want to research busting in the files section.
  13. amon10

    Looking For people in South Louisiana

    Hope you guys can meet up. I waited 25 years before I meet fellow sufferers in person....wish I never waited so long.
  14. amon10

    Emotional Support Animals?

    Have had dogs and cats most of my life. Dogs have always stayed away until right when attack is over and then come out to comfort, they just seem to know. Just said good bye to my cat a few months ago, I should probably get another. She was a tough cookie, would never run off and stay near, but not too close. She would always seem very composed even when I was hitting my worse. I know you could train dogs for just about anything but for CH I think it would take many years and not sure if it would be a benefit.
  15. amon10

    Newbie

    I agree with what CHf said, also not everyone has a set pattern to when they get attacks. Mine can change their pattern just by my daily schedule changing. Start logging your attacks, pain level, meds, and possible triggers. If a medicine is not working discuss with doctor and get off it. I spent too much time taking useless meds. Good luck to you.
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