Fishingboy Posted November 1, 2016 Share Posted November 1, 2016 Hi my girlfriend suffers from clusters and she has been great in educating me about them and various treatments. Would any of you please share any direct link to resources you would deem worthwhile and helpful for a supporter and someone just learning about clusters? I am eager to learn as much as I can about them without always having to overwhelm her with my curiosity and questions. So she directed me to the website and forums. I see some links through out the forums and website but really am unsure where to start. Please steer me in the proper direction if I would benefit most by reading certain information prior to other studies or publications. Quote Link to comment Share on other sites More sharing options...
CHfather Posted November 1, 2016 Share Posted November 1, 2016 Regarding treatments, you might want to look at this: https://clusterbusters.org/forums/topic/4567-bobs-big-pocket-guide-to-cluster-headaches/ That might give you a solid starting place for asking questions. There are a few general and specific resources about treatment here: https://clusterbusters.org/medical-research-reports-studies-case-reports-links/ If we could *@#(^ing attach things here, I'd have more to give you, including a document, "20 Facts About Cluster Headaches," and another called "Living with Cluster Headaches," which has 27 personal narratives from people with CH. If you PM me with an email address, I'll send them to you. Does she/do you feel confident that she's treating her CH as effectively as possible? Does she have oxygen? Is she doing the D3 regimen? What pharmaceutical meds, if any, is she using? What non-pharma treatment, such as melatonin and energy drinks? Is she giving any consideration to "busting" -- using psychedelic substances to end CH cycles and perhaps prevent new ones? Quote Link to comment Share on other sites More sharing options...
Fishingboy Posted November 1, 2016 Author Share Posted November 1, 2016 PM sent... Thank you. To answer your questions, yes I am confident she is very educated on treatments and is utilizing all of the things you have listed. I am eager to find out as much as possible about clusters. It is frightening and frustrating to me to know there is little I can physically do to help her should she have an attack. The only thing I for sure know I can do is educate myself as thoroughly as possible. Work on understanding the effects of various treatments, how or what if anything I can do to help her through those treatments, and find any nugget from others personal experiences that may be of any benefit to her. Thanks again Quote Link to comment Share on other sites More sharing options...
filacibin Posted November 1, 2016 Share Posted November 1, 2016 you on the right site for learning and understanding this horrific disorder.you sound like a decent bloke,respect to you for supporting your partner,she will really appreciate you for this ,also ch father and many more most educated folk will be here guide you through. best wishes Quote Link to comment Share on other sites More sharing options...
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