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Anyone out there have clusters that start in the ear and move up through sinus cavity into the head??  I have had clusters for 35 years and had a break for this past 10 and they came back 4 months ago and they start in the ear like an ear ache!!!  Thanks

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tkummer,

Sorry, but I've not heard of that specific start to a CH attack.  It might not be that out of the ordinary, but you might want to see the doc.  Since you've been in remission for so long, and I'm guessing your previous attacks didn't start this way, means there could be something else going on.

J

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  • 2 weeks later...

Hi there, I just started getting CH again a week ago, worse and more often then ever before; my starts usually in my right eye and ear, not inside the ear but on the side of face right before ear opening it kills, when I don't have a headache it's fine there. Seeing doc on Friday if I make it that long

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