Mikeb0622 Posted August 27, 2017 Share Posted August 27, 2017 Hey everyone. I'm new here. I finally found somewhere I can go to and people can understand what,I'm going through. I had my first cluster at 5 which I really don't remember what it was like, I am 36 now. I have been dealing with this for years. My wife gets scared when I'm in a cycle cuz I don't know what to do with myself, I can't take it anymore. My father had them as well. He told me it does get better with age. Ive been taking topomax 200mg, verapimil 80mg and propanol 20mg 2X a day for 12 yrs now. I do not like taking this medication. It does seem to help tho. I also take imitrex and zomig on the onset of a headache. My last CH was 2 yrs ago until this past August. I used to get them every year around the same time. They do seem to be getting weaker as I get older. I also use O2 which is a God send. I don't know what I would do without it. What works for you guys? I really don't like the way the topomax makes me feel so,if anyone has a better alternative please let me know Quote Link to comment Share on other sites More sharing options...
jon019 Posted August 27, 2017 Share Posted August 27, 2017 Hi Mike...sorry you have to be here...but you'll be glad you are. Sounds like you need a new doc... a HEADACHE specialist...not just any neuro will do. I say this because that' a bad cocktail you're getting. Propanol is basically worthless for CH...it works somewhat for migraine. 80 mg/dy of verapamil is ridiculously low...so also worthless...most find the sweet spot to be 480 mg/dy taken in divided doses (immediate release is better for many vs extended release). Some go even higher...I used to take over 1000 mg/dy when in high cycle. Some have found success with Topomax...but the side effects are life altering and most stop. I couldn't function mentally at only 100 mg/dy...can't even imagine what 200 would be like. Caffeine containing energy drinks (minimum 100 mg caffeine AND 1000 mg taurine) taken at the onset of hit (preferably COLD and fast) is an effective abort for many. Any brand will do...I get mine at discount grocery stores for about $1/can...red Bull is the most famous but has a relatively low amount of caffeine/taurine and you are paying through the nose for their advertising. Eliminate all caffeine during the rest of the day....allows the energy drink to have a bigger punch as the body has not adjusted and therefor damped down the response. We all love us some O2...glad you got that going for you....Zomig NS (5 mg) is my abort of last resort when all else fails...effective 99% of the time for me....damned expensive tho and the insurance bastards make getting enough difficult. Look into the Vitamin D3 regimen (sorry I can't post the link...my wifi is wonky) but I'm sure someone else will post for you. Best Jon 2 Quote Link to comment Share on other sites More sharing options...
CHfather Posted August 27, 2017 Share Posted August 27, 2017 Great advice from jon'. D3 regimen: https://clusterbusters.org/forums/topic/1308-d3-regimen/ Also, read about "busting" in the numbered files in the ClusterBuster Files section. Quote Link to comment Share on other sites More sharing options...
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