Ketamine infusion Therapy

[Stephanie Pace]

My husband is going on 14 years now with these damn headaches also known as suicide headaches! We are at our end!!!! My kids have only known there father as sick!! We are getting ready to try Ketamine infusion therapy and wondering if this has worked for anyone? 

[spiny]

Hi Stephanie! Yes, it has. If you search for 'Ketamine' in the 'search bar' you should get a bunch of threads come up that refer to Ketamine in them. Does he have O2 with a non-rebreather mask to abort his hits? Concentrators do 't work, but pure O2 is a blessing.

ATB

[Stephanie Pace]

Thanks Spiny! Yes he has had oxygen for years but it didn't help him much at all, just created more problems. Dry nose, bloody nose! He had a cyst removed from his maxillary and it's already grown an inch. He had his first Ketamine infusion last wed and it went well. He said it is the first time he has felt hope in years!! I so hope this works!!

[CHfather]

We'll hold good hopes for the ketamine.  There are people here who have it prescribed as something they take regularly.  If you put the word ketamine into the search box at the top right of the page, you'll see some of those.  I think that if you put the words ketamine and ricardo into the box, you'll find a report from one of the long-time members here.

Regarding O2, you can get a mask that allows him to breathe through a tube, so the nose isn't involved.  Many people do it that way.  It's also just a better mask system, made specifically for CH.  Our very strong overall experience is that people who have found that oxygen didn't help much did a whole lot better with a higher-flow regulator and a better mask (and sometimes with better breathing technique).  If you think about looking into this more, let us know.