Snowflake Posted May 31, 2019 Share Posted May 31, 2019 Hi All, I am an episodic CH sufferer for the past 24 years. I am currently in season, well, going on 4 months now. Most of this season I went cold turkey without any meds and paid an ultimate price last week with some nasty attacks. Only then did I get my O2 sorted and went onto the usual meds for a week. My last 2 days were CH free as I wanted the cycle to end naturally. I just wanted to know if anyone has experienced 'very similar' pain on the affected orbital area. It feels like a cluster only you know that it isn't cos there is no response to O2 and gets me only at night. It's not as deep as a CH. Once I wake up it subsides after 10 mins. I'm not sure what this is as I never had this before throughout the cycles. I have been for a few occipital nerve blocks earlier in the cycle as well. I apologise if I am not describing this properly. I really don't know how else to, since it resembles so much of a CH except I know it isn't one cos I even get some sort of relief if I apply heavy pressure to my eye yet the pain runs on the same vessel as my CH. Somewhat more of a burning pain than the 'drilling/boring' pain of a CH. Any help would be appreciated Pain free wishes always Thanks Quote Link to comment Share on other sites More sharing options...
xBoss Posted June 1, 2019 Share Posted June 1, 2019 I get some nasty tension headaches during my cluster cycles that can bring on similar but less painful symptoms. Quote Link to comment Share on other sites More sharing options...
Snowflake Posted June 1, 2019 Author Share Posted June 1, 2019 I think I may have found the problem. I tappered of the prednisone a bit too quickly. Cos the moment I increased the does I felt much better and even the shadows have faded. Thanks Quote Link to comment Share on other sites More sharing options...
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