rhizz Posted November 16, 2010 Share Posted November 16, 2010 hi i was diagnose with ch by my gp about 2 and a half years ago i am 23 in december when i was diagnosed he just give me normal paracetimol (absolutly useless man) anyway i suffered the pain till my cycle ended in october i started getting them again im at a new gp now and i think there starting to understand, they've organised my MRI and will start sorting things properly after that. since october they have changed slighty they dont come on sudenly like they used to i ussually get an inkling one is on it way. but i seem to wkae up and spend all day everyday with a constant small pressure behind my eye like an attack except its not painfull enough to take meds so its a constant weight i'll get an attack possibly twice a day at around 11am and 9pm at the new gp they prescribed me 50mg of sumultrapan because im underweight i then begged to get stronger ones i now have 100 mg, but these dont seem to have to much of an effect anymore. i was given the imigran nasal spray but only 2 doses i went back today and he said he doesnt want me taken to much of the stuff so he's given me the sumultrapan tablets again and amitriptyline an antidepresent but only at 10 mg. i have been suffering a bit of depression recently especially since my cycle restarted. i hope this new tablet will help i've taken 2 100 mg sumultrapan in the 2/3 hours and its not helping. i mentioned oxygen treatment but he pushed that idea out the winder very fast. im hoping to see a nurologist soon after my mri hopefully he can help. does anyone else have the lingering pressure ? Quote Link to comment Share on other sites More sharing options...
This isnt fair Posted November 16, 2010 Share Posted November 16, 2010 HI, don't wait for the o2. You can get it at a welding shop,can get the regulator on ebay and the mask here at the o2 store located up on the left side of your screen that says menu.it will be your new best friend, read everything here and educate yourself, you can help yourself more and faster than the doctors.Ask questions the folks here understand and know what it is you feel,unless the doctors have this they cant even begin to understand the pain and hopeless feelings we have until we help ourselves.Pain free wishes and lots of luck. Adam Quote Link to comment Share on other sites More sharing options...
Bonkers Posted November 16, 2010 Share Posted November 16, 2010 Hi rhizz, There's a lot you can learn here that you'll find helpful. You're getting a good start by making an appointment to see a Neurologist. If possible, find one that specializes in headaches, perhaps at a headache clinic. Your GP is incorrectly advising you on the use of oxygen. It must be used correctly but provides more benefit to more CH sufferers than any other treatment. Educate yourself both on this site (you might start with the ClusterBuster Files) and on our sister site http://www.clusterheadaches.com/wwwboard2/index.html. Please feel free to ask questions about anything you're not clear on. You won't believe how much more you know about your headaches and how to treat them tomorrow than you do today. Good luck and welcome to ClusterBusters. Ron p.s. - Happy Birthday This isnt fair!!! Quote Link to comment Share on other sites More sharing options...
rhizz Posted November 16, 2010 Author Share Posted November 16, 2010 thank you very much for your responce i have loads of questions lol its amazing to find a community, for two years i felt alone (i know it sounds stupid) but the docs gave me no advise and after 2 years i finally came across a group of people i can actually relate to. my first question i would ask is do you have an experience with amitriptyline as i have 2 babys boys i would not want any drug to effect my family life anymore then the headaches do :-( i hope the same to you and thank you again Quote Link to comment Share on other sites More sharing options...
rhizz Posted November 16, 2010 Author Share Posted November 16, 2010 thank you bonkers you guys are great i live in london and there is actually a nurologist that specializes in micraine and clusters i've heard he's fantastic, i have asked to possibly see him. Quote Link to comment Share on other sites More sharing options...
rhizz Posted November 16, 2010 Author Share Posted November 16, 2010 excuse my spelling please lol im not usually this bad Quote Link to comment Share on other sites More sharing options...
Hipshot Posted November 17, 2010 Share Posted November 17, 2010 Welcome to the site. Like the others have told you: oxygen taken with the proper mask at 15LPM will be your first life saver. You will be amazed. Read up and sorry you had to find us here. Best of luck Dan Quote Link to comment Share on other sites More sharing options...
rhizz Posted November 17, 2010 Author Share Posted November 17, 2010 hi hipshot thank you i will talk to my doc about it but i dont think he's gonna do anything my best bet is to wait to see the nurologist which shouldnt be to long no appologies please :-) Quote Link to comment Share on other sites More sharing options...
Hipshot Posted November 17, 2010 Share Posted November 17, 2010 No problem. No apologies?? Hope you get relief soon. Dan Quote Link to comment Share on other sites More sharing options...
rhizz Posted November 17, 2010 Author Share Posted November 17, 2010 Read up and sorry you had to find us here. this is y say :-) Quote Link to comment Share on other sites More sharing options...
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