SoCalCH Posted October 5, 2020 Share Posted October 5, 2020 Took some Baclofen a couple nights ago for neck tightness and noticed that my nighttime hits were less severe and more easily done away with. Some were gone by the time I walked from my bedroom to my office where I keep my oxygen set up. Last night I took 20 mgs Baclofen before bed and slept through the night for the first time since my cycle started (other than busting nights). Has anyone else here tried/had any success with Baclofen? I see at least one small study that showed results. Quote Link to comment Share on other sites More sharing options...
SoCalCH Posted October 9, 2020 Author Share Posted October 9, 2020 Update on this in case it ever helps anyone. After taking baclofen for a couple nights I actually got a few pain free nights without any form of medication. Two nights ago I was back to my usual number of hits which I attribute to using some cannabis before bed. Last night I again used 20mg baclofen and slept for 11 hours pain free. Woke up with very minor headache aborted in ~5-10 minutes with oxygen and energy drink. Likely will use the baclofen through the weekend and try to go without starting Sunday night to see if I can get back to PF with no drugs. 3 Quote Link to comment Share on other sites More sharing options...
CHfather Posted October 9, 2020 Share Posted October 9, 2020 Thanks for keeping us updated about this. 1 Quote Link to comment Share on other sites More sharing options...
SoCalCH Posted October 10, 2020 Author Share Posted October 10, 2020 @CHfather Most definitely. Seemed noteworthy enough to make a record of and sparsely discussed at any time on the board. 2 Quote Link to comment Share on other sites More sharing options...
Amd542 Posted January 2 Share Posted January 2 Hi , sorry my first time on boards and would like to ask , how would you dose baclofen , do you still use it ? Quote Link to comment Share on other sites More sharing options...
MB Cluster Suffering 25yrs Posted January 5 Share Posted January 5 Yes, I have tried baclofen, but gave me a residual side effect of depression Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 6 Share Posted January 6 Baclofen has been mentioned before. I did a little looking around, and it seems that dosage (based on a small 2001 study), should be 15 to 30 mg per day, in three divided doses. A report said that baclofen "is quite safe when started at a low dose and built upward." (https://www.proquest.com/openview/1b8c7ab0317bbe4c7e9eac6b49072a14/1?pq-origsite=gscholar&cbl=4402921) This one -- https://www.frontiersin.org/articles/10.3389/fpain.2023.1265540/full -- says, "The most common side effects of baclofen are dizziness, ataxia, muscle weakness, and drowsiness." A document about CH treatment in general said, "Pizotifen, levetiracetam, gabapentin, baclofen, intranasal capsaicin, and melatonin have been shown to be effective in small studies and can therefore be considered as a third-line option in refractory patients." If you do try the baclofen, please let us know how it turns out for you. Quote Link to comment Share on other sites More sharing options...
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