Sue mcdonald Posted December 1, 2021 Share Posted December 1, 2021 Started ha's in h.s. then used drugs (hippy era we all used em) for abt 18 months. Ha's went away '69 to '80 when i hurt lo back & migraines started. I never connected any of this before. Robaxin, tyl3 lorazpm slp, got great p t. Went from northeastern junior college prenursing to ucdenver premed (w murder att in between - long story, my ex's friends w some bad guys). Thats when migraines went L on me. Upon awakening like lite switch? Bad pain-->cod sulfate. Migraine w no pain, etc... end school. It was during like 2004,5 i started using thy t3? 1/4 tab + 1/4 lorazpm together because i was starting to go hyper. Rpeat as needed... what was happening? But i didnt realise it? Was i was starting w insane cha n didnt kno it. But the thy t3 stabilized bld sgr levels and the loraz now i kno its seen as system stabilizer. For ten yrs it worked until it didnt. It was simply what i had n i tried it was super interested to see cgrp protocol as it hooked into thyroid n thats implicated in cha. My view? Is start of it? Is when bld sgr levels tank, thy levels tank, whole endocrine system tanks... thyroid does quick work of stabilising whole endocrine system. Loraz? = System wide stabilizer.... stopped my cha dd for 10 yrs. Cldnt stay at farm, lost h trailer. Moved 8 m N got pushed out moved 200 m N, got pushed out. Lost horse moved back here.. then traveled, turned into lemonaid, mich u.p. oregon, wash, calif, nevada, arizona, canada, minn, wisc, wyo, and Mt learned a LOT. 2016 got into f.hse. left for mt, came back Nov '16 n to stay. Chas got real bad when i moved 8 m N. Had to stop all opioids, no codeine, 200 2 mgs lorazpm every 3 wks - super bad vis aura? BP 200/100 for a year solid (norm for me was 116/72). Cafeine added + inhaler beclamethasone + wildcherrypepsi (or dr pepper). Caff screwed up electrolyte levels w vomit. Found fioricet 2013. Great help, decreased loraz still on robaxin as it works on smooth muscle on arteries. That seems to be my regimen now? What worked since 2013 fioricet, robaxin, lorazpm, tiny amts of tramadol slows or stops tinnitis, which i didnt even kno i had. As cha r resolving last few months? Im using much lower doses rx. Pain is.. slowing so phase of hit head? Is extending.... but acute long (72 hrs) pain? Cha where u wake n cant even move, only groan? Not there now. Used to keep emerg pain max dosage rite by bed w pop so i cld reach n take it w.out moving. Used to keep emerg dose in spec pill bottle so i had it ready if bad pain hit, open mouth? Pour in n swallow w wcp. Back now to using t3 + loraz n it usually stops it, or slows it dwn substantially. Not a doc, cannot prescribe or dx or give med advise or tx plan. But if my own info helps someone? Good. Quote Link to comment Share on other sites More sharing options...
Juss Posted December 1, 2021 Share Posted December 1, 2021 Butalbital the active ingredient in Fioricet is legendary for a monumental rebound headache especially cluster headaches. The pharmacology of it does not fair well to abort a Cluster Attack. The amount of APAP-not for hepatic concern-effectuates medication overuse headache. This perpetuates the very thing you seek to abort. Lorazepam, I have only seen case studies with an average of n=50, never double-blind trials, of 200mg of ibuprofen with 1mg of Lorazepam. All of these were for migraine. The half-life for both the aforementioned drugs, especially Lorazepam appears far too long to work for Cluster Headache. Hell, I know when I was popping them for catatonic depression they didn't do a damn thing. That is me, one is never enough. Respectfully, with your purported background, I would hope that you understand the serious implications of NSAID use, and especially Benzo use. Chronic NSAID use destroys the gut and microbiomes, which opens the door for numerous issues (dysbiosis). Benzo use will cause dementia-like symptomology, marked cognitive impairments, depression, among other things. Most of the people on here are much smarter than I am. They can instruct you on Oxygen use, which I think works in up to 60% of people. By you stating that you are a child of the 60s I can tell you that Welders Oxygen is a bypass to the denial of CMS, and I trust it more. I used Oxy-Acetylene Rigs for years, and I welded with oxygen for years. The last thing we could use was impure O2, or the results would result in a disaster. There is a Vitamin D protocol that a member created and that is his brainchild. If that isn't enough, there are alternative means if you don't have a history of going to the funny farm for counsel. While most will tear my ass a new one, there is Dopamax (Toprimate). You have to start slow, titrate and reach at least 100mg. Even I admit that for those with Clusters it only seems to work if you have a migraine classification (my situation) as well. Despite what people think, there are multiple ways to counter the Temporal Lobe impairments and ACC impairments that Topamax causes. Finally, I know Emgality is dedicated to Cluster Headaches. That is a CGRP, I hear of a fairly substantial weight gain and hair loss, but not the doping effect. My point, I don't knock what people experiment or use unless I have lived it, researched it, and can prove it. Even mild Benzo use, especially Ativan, will have a profound lifelong negative impact on cognitive function. It is deleterious and deplorable to mood lability and unless you are using it for treatment of catatonic depression, it causes depression. All NSAID use is a terrible idea. I grin and bear it. That stated if we didn't have the draconian narcotic laws that treat chronic pain patients like junkies and that require a monthly piss test, I would justify the use of the Schedule IV Ultram. I have yet to meet a doctor in private that will admit to an addiction potential with that drug and most research supports this. We arent the dealers, yet the law treats us like we are. Garry Webb blew that myth open. My point is, I can't take one here and there. Otherwise, I would prefer the use of Ultram over most painkillers. Edit: T3, right I thought this was code for codeine. Okay, there is some evidence showing insulin resistance and prediabetes in some with migraine headaches. A recent study using meta-analysis found up to 40% had hypothyroidism. I find no discernable flaws in the blood sugar theory. I have a nasty sugar addiction. By using a quality fiber supplement three times a day I have made a dramatic difference in my blood sugar cravings and regulation. When I experience wild swings in sugar it always results in a migraine, which leads to a cluster headache most of the time. My concern with the thyroid is that TH levels aren't worth a damn. I have started dosing with one of the sane iodine supplements and am certain my undetected thyroid issue was borderline hypothyroidism. I would have to research that. With your background, you should look into this. That stated, it is never myopic. I have found there are several factors at play. Quote Link to comment Share on other sites More sharing options...
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