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@Riyalusid just stop trying to sell your crap over here, idiot

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Hi everyone. Dr. Haghdoosts presentation from Sunday evening is below. If you had any questions or insights you'd like to share that may assist in their study design, you'd be welcome to place them as a reply below and I could email them once collated. Thankyou.

@Darryl Lang did you find out why your Vitamin D level is high?

Hi guys. A heads up this Sunday I am privileged to host Dr. Faraidoon Haghdoost via live webinar who will share insights from his recent work in cluster headache research. During the session Dr. Haghdoost will discuss his recently published 2026 study exploring patient perspectives of cluster headache in Australia and provide an overview of the upcoming PEACE trial investigating psilocybin based therapy as a potential treatment for cluster headache. This is an opportunity to hear directly from a researcher studying a treatment approach long recognised by our community. Sunday 22 March New Zealand 6:00 PM NZDT Australia 1:00 PM Perth 3:00 PM Brisbane 3:30 PM Adelaide 4:00 PM Sydney / Melbourne / Canberra / Hobart Register and watch live: https://streamyard.com/watch/eRh3FsriH3x7 Pre-read the study being discussed: Patient perspectives on research gaps in cluster headache https://pubmed.ncbi.nlm.nih.gov/41562498/ More about the PEACE Trial (The Psilocybin Efficacy and Acceptability on Cluster headache Episodes) If you have a question you would like Dr. Haghdoost to answer regarding the above, or feedback, he is very receptive to input from the community. Please send your question or feedback to craigedstewart@gmail.com or submit anonymously here: https://forms.gle/k46Vz5CZigTRn8MJ8 and I will make sure he receives these ahead of time so they can be answered during the presentation. I imagine there are hoops and lengths Dr. Haghdoost and his team need to jump through to get studies like this across the line so I am doing this to help raise awareness and hopefully he will be able to recruit enough participants and garner enough insights from our community to give the study the best shot. Everyone is welcome - if you are interested but do not live in Australia or New Zealand and can accommodate the timing, you are welcome to register and join. Also I will try and make sure it is recorded and shared after. Thanks everyone.

Hello I am an Illinois resident and a CH sufferer. I want to connect with a community of cluster busters to feel supported on this difficult journey.

Thank you, fingers and toes crossed for you, and please do update.

I’ve just started taking this 2 days ago. I know it’s anecdotal at this point but I’ve been in a cycle for nearly 10 months now. Nothing is helping d3 , mushrooms everything. my doctor here in Canada gave me a 30 day trial and so far it’s really helping. I’ll update soon

..

Yes, this is also a pet theory of mine. My husband has ECH and had a litany of trauma growing up from alcoholism and drug addiction in his parents, physical abuse, homelessness after leaving his home early, death of friends and close family as a young man. I just finished The Mindbody Prescription book, which is primarily about repressed rage and grief, and how it will present as pain in the body as a way of distracting the mind from its subconscious feelings. But what's more, it is absolutely possible for the limbic system to form neural pathways to the hypothalamus and cause autonomic dysregulation.

That’s actually something I’ve been curious about too. Even if herbal cigarettes are tobacco-free, the act of inhaling smoke itself can still be irritating and potentially trigger attacks for some people. Cluster headaches are often sensitive to strong smells, smoke, and changes in oxygen levels, so it wouldn’t surprise me if they could exacerbate symptoms. From what I’ve read and heard in similar discussions, many people with cluster headaches tend to avoid any type of smoke altogether, just to be on the safe side.

Thank you

I must of missed them, I've had 20-25% results with busting, I'm on the D3 regime all the time, I thinks its just good health to be anti-inflammatory, I also intermittent fast to keep inflammation and insulin spikes down. I tried a 96 hour fast at the beginning of this cycle, and so far I think its reduced overall attacks. I'll try anything during a cycle. But once its gone, I rarely even think about it.

One thing that many people have noticed is that when the tank gets below a certain level (half-full for some, one-third full for others), O2 loses effectiveness. With a regulator that goes above your usual level, you can increase the lpm to compensate for this. You didn't answer about D3 and busting (perfectly fine), but I'll just repeat that they make a big difference.

Jetpack Compose + Material13, Language Kotlin. I build in Antigravity.

I'll check that app out in the next few days. What framework is it? Also the iPhone thing I can relate to. That is why I usually stick to a web app so both android and apple are available without needing to build two apps but thats just my preference.

I hadn't loaded all the the data into the app yet, I only had a few actual live runs with it where O2 was logged, and then I was back loading attacks so that I could see a complete cycle. When doing so I realized that the past logged events didn't include O2 usage so it through the stats off. I fixed that, in the latest update. The new Stat averages 19.61 min per attack or 922 Minutes over 47. I had also corrected the calendar issues, added edit ability to past attacks (sometimes I forget to hit end) I'm just so happy its over. We already had the JSON export, but I added and tested an import in case you switch phones later, you can export out of current phone, load app in new and re import. No data loss. I ended up hosting it on Github as then when I push releases or add on's people can just update. There is also good notes on what app is all about along with ability to audit the code if your inclined. For $25.00 I get get it listed on the Play Store, something I might consider to get it to a larger community after I get feedback and see if this is an app people will want to use, then updates will be automatic. I did look into optimizing for Iphone, I figure it would take me an entire weekend (personally I am not a fan of Iphone) but I may consider it if like I said there is enough interest. Good news is that I will not allow advertising or charge a fee as I consider this my contribution to the community. https://github.com/MyDigitalFreedom/ClusterTracker/releases As far as optimizing O2, I can't say that I have been overly successful, What works one day, doesn't the next, as many know this beast just changing. My old manual records were harder to see any patterns. I'm hoping with the graphs I will get more insight.

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Herbal cigarettes may be tobacco-free and nicotine-free, but they still produce smoke when burned, and that smoke can irritate the airways and potentially trigger coughing, wheezing, or asthma-like symptoms in sensitive individuals. “Herbal” does not automatically mean safe for the lungs. If you’re curious about the types available in the market, you can explore this list of herbal cigarette brands. However, even these product can still cause repiratory irritation, beacuse the main issue is the smoke itself, not the tobacco.

@Trent, I remember from some years back that you gave a lot of thought to optimizing your O2 usage, and you were dealing with some Canadian restrictions on equipment. An average attack duration of 44 minutes seems too long, and a total O2 usage of 45 minutes over 16 attacks seems quite low, so I'm curious about what's going on, and of course I am also curious about whether you are doing the D3 regimen or busting, both of which typically reduce attack durations. Since this isn't really the subject of these posts and you aren't asking for any advice, you don't have any obligation at all to answer . . . It just makes me curious about whether there's something that could reduce those longer attacks.

Here is some screen shots, also of note not available on i-phone. You can see where I thought it was going away, so I stopped O2, then quickly regretted that.