Welcome Debs, let's start with...have you seen a neurologist, if so, what was the diagnosis and suggested treatment. This place is a great resource for those who suffer with CH but we need to know a little more about your situation and how you are being treated. Please poke around the site for a while, read some of the threads that sound similar to your situation and some of the files on oxygen use and procurement.
Please post again with some info on how long you have had CH, is it a seasonal thing, did it just start etc. I am a rookie at trying to help others but there are plenty of folks here who have a far better understanding of CH and it's treatment than any doctor I have ever met. You will find help here, I did about 18 months ago when I was in a very dark place with chronic CH and they saved my butt.
Sierra