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Hard for me to believe but we went live 15 years ago on the 27th of this month!! It's been one hell of a ride!! Dallas Denny

I know how easy it is to be so mad at this condition and the number it does to us. I find that for me, practicing being as kind and compassionate to myself and then to my loved ones really does help. Staying as calm and peaceful as I can (both while having an attack and during pain free time) helps to lessen pain and attacks overall. I know it is SO MUCH easier said than done. But just try and practice compassion in every way you can, starting toward yourself and it helps. Sometimes what I do to facilitate this is I imagine myself as a 16 year old kid getting these attacks for the first time. I think about how scared he was and how alone he felt and how much pain he was in. I feel so, so sad for him and just want to hug him and tell him everything will be ok and comfort him the best I can. Then I take all of those feelings I’m experiencing toward the young version of me and extend them toward present day version of me. Compassion and care and empathy toward myself. For me it helps to calm me down and lessen overall pain and suffering.

My husband started getting episodic cluster headaches in 2002. They affected his life so terribly he lost jobs, and missed tests at college. He worried about ever being able to hold down a job, or be a functional person in society- if he was taken out for 6 weeks, 2-4 times a year. Imitrex nose spray helped but only delayed the headaches- they always came back, and the rebound was worse than riding them out to begin with as they were often longer headaches than the 60 minute ones he had. I loved this man, to see him in agony was torture in its own right. I resolved that if the cure to cluster headaches was ground up Mona Lisa, then I was off to France with a ski mask in my luggage. My research began, to see what others had discovered, since doctors were damn near no help. In 2008 I found Clusterheadaches.com and it helped. Oxygen brought relief in 20 minutes. I learned how to crack a tank and properly attach hardware and valves and it scared me to do but what of it. But that wasn't enough. He was tied to the tank on the wall or small portable tanks. The search continued. I found clusterbusters.com in 2009. I had never done any drugs but I bought spores in cash, grew two fishtanks worth, dried them, and micro-dosed him. He only had to do it 6 times or so before the cluster headaches were gone forever. He'd feel the shadows come on, microdose, do it again a bit later, and poof- no cycle. They eventually left and just never came back. He spent over 13 years cluster headache free (we had 25 amazing years together) before he passed away in his sleep at 49 years old from complications from sleep apnea. This man, who worried what would become of him, got a double bachelors with honors in History and Cultural Anthropology and then got a Masters with Honors in Secondary Education. He became a History Teacher. He was nominated by his students to be an educator hero in his first year of teaching. We had 3 beautiful daughters. He taught them to fish and camp and cook and laugh. We traveled extensively. He kayaked the Pecos River. We had a glorious life. And I am so thankful that he got out from the shadow of this disease. And he was able to stand in the sun and live unhaunted by it for 13 amazing years. I will always be grateful to Cluster Busters for what it gave to my husband. So, so thankful. From the bottom of my heart- thank you, from me (Lauren) and from him (Lucas) You gave the world back a good man, and we are all better for it.

That was me. In 2011 I had 257 cluster attacks (plus 276 normal headaches and 42 migraines). It was a bad year. My doctor-prescribed meds were actually making the clusters worse. I'd only had 63 the year before (and I thought THAT was a bad year). By October I had had enough. I was sitting at my computer with my calendar in hand planning the day to exit planet Earth. I decided to give myself 1 year to find a solution or else that would be that. Then, in that moment as I was selecting the day, I remembered someone had given me a link to this forum about LSD and Magic Mushrooms. At the time, I was just starting my journey as my clusters only started in Jan 2007. I still had other doctor meds to explore and things to try before I turned to hallucinogens. So, I bookmarked the site. But in that very moment when I was planning the end, I remembered Clusterbusters. So, I joined and started reading and asking questions. Within a few days, I started weening myself off Topiramate and I met with my GP to explain to her my plan. It took me 6 weeks to get clean of Topiramate (it was too fast, I should have taken twice that long). During all of those six weeks, I spent every free moment on this site. I studied the clusterbuster files and made friends. Once clean, I started on an alternating pattern of shrooms and seeds. I taught myself how to grow my own medicine, which was an amazing experience. I loved being in control of the process, start to finish. In 2012, my clusters dropped to 169 and I only had 3 migraines. So far this year, 2024, I've had a grand total of 2 cluster attacks, each lasting less than 30 seconds. I'm not even sure they are technically clusters, but they have all the hallmarks. Ultra-intense pain, watery eye, drippy nose, energy drop that lasts hours. But, all in a compact 30 seconds of terror. Also, after my first dose of shrooms, my post-traumatic stress attacks that I'd get after every cluster headache vanished. I used to rock back and forth, crying my eyes out for 30 minutes after every attack. Sorry, I'm talking about treatment, not suicide. I've gone off-topic. I don't have an issue with suicide. I know that's a bold thing to say, but I don't. I've had daily suicidal thoughts from the age of 7 till I was 41. I firmly believe that when my day comes, it'll be by my hand. But not this day. Not when there is a remedy. Not when there is hope. There is life after clusters. I can attest to that. OK, I'm still dealing with 400 headaches and migraines a year, but my clusters are so trivial I barely notice them when they do strike. You have to be prepared to fight. You have to be your own doctor, herbologist and test subject. You have to be prepared so you don't get hit out of the blue. Understand how to prevent them. Try the D3, try everything. Don't give up! You'll make me angry and I'll swear at you if you give up! Mox

...mee...2 days or 2 weeks post cycle...depending on the need and the courage...

Going on my 10th year as a Clusterhead this 2025. Always been a lurker in the shadows (no pun intended) Figured I'd actually join a forum and involve myself more. Just wanted to say hi, and thank everyone over the years for sharing their experiences and advice. I have learned more from the community than my own doctors and medical professionals. I know how alone and isolating this condition can feel and decided I should network more, So hey /wave

Not sure what a "Normal" life is anymore. My new normal is to deal with things one day at a time and adjust. I know I am going to get beat down with a massive cluster at any time of any day so I am always ready to fight back with whatever I can. I keep oxygen in the car at all times, I have it in my office at work keep a triptan injection near by as much as I can and a 5hr energy drink in my pocket. I can no longer drink alcohol so my new norm in a social aspect is water and coffee. I am not shy or hiding my clusters so when someone who does not know what I deal with and comments about not drinking or avoiding some sort of smell I tell them how it is. I can no longer burn a candle, my wife can no longer ware perfumes and depending on how my clusters are on any given day I need to avoid other scented things like cooking dinner. This is my normal life, not great but it is what I have so I embrace it and know things could always be worse. The new normal and I still love it.

Yup jeebster, made this old man's eyes leak as well!! Absolutely wonderful and well written testament @LaurenAla! So very sorry for your loss!! As BeJeeber’s said, our supporters are our hero's......clusters are equally devastating for both the clusterhead and the supporter!! Thank you so much for sharing ya'lls journey with us Lauren...... ....Fair winds and following seas Lukas...

I can't just reply to questions and be done with it (so you can skip my reply if you wish). I work in psychiatric ward and get sometimes called to help when there are patients who are suicidal and have CH. Very, very often when CH is managed to get under control, the suicide plans vanish and again, very, very often never return. But there are people who have more complex problems and conditions and need help beyond getting CH under control. Then you need to keep reaching for help - relentlessly as long as you need, or better yet - find a support person who helps you fight. And it's incredibly tough when the things that work for others do not work for you - these people would need a community of their own. People with torturous chronic pain - whatever the diagnosis or no diagnosis at all, who have not yet found help and those who have found something that helps mixed in one group. I hope you keep reaching out and find help.

Hi all! It’s been a long time. Happy to report I’m cluster and shadow free for almost a year now. Keeping my fingers crossed to continue this trend. My fiancé and I are taking the plunge. We are leaving FL and moving to Raleigh North Carolina! Looking for good recommendations for headache specialists or neurologists in the area and O2 suppliers. thank you!

I have been there, I had the talk with my wife. Thank god things changed. Today I am still suffering with migraines and Clusters but have gotten peace within my self, I no longer prey every night that I will die and end this! Its a tough life living with extreme pain and having no controll over it. I have learned to love the good days and plow through the bad days. I can say that life is better when you love life rather than hate life constantly praying for death. I know that this is more like rambling but I hope you can find some peace within. Hang in there.

Ideation, yes. For the numbers on this board, I have no idea. I know we as a demographic are more likely, I mean thus the name. If you have a plan I implore you reach out to a friend, a help line, a doctor, someone, the step from just thinking about wanting this shit to end permanently to having a specific set of steps in mind is a huge step and rather large red flag, so talk to someone, reach out.

I will definitely try to get a second opinion. I’m on a wait list for a headache specialist, hopefully they will give me more answers!

You stay strong! No matter what we are all here with you!

....no particular place on head is definitive..... but anywhere the trigeminal nerve goes is a possible. my pain was a straight red hot poker from temple thru eye, into tooth..... ymmv

Welcome to the Triangle! It’s been my home for many years and I love it! I don’t recommend Raleigh Neuro. They had a high turnover of doctors and I spent a lot of time explaining / fighting them on stuff. APRIA I’ve used them for my oxygen for years. They deliver and show up at the time they tell you their drivers are also very nice. If they initially tell you it’s not covered, you may need to call the main one 800 corporate office first. DUKE I highly recommend Duke Neuro. I see Dr. Timothy Collins at the Moreene Rd. Very knowledgeable. I haven’t see Dr. Mhoon, but he’s supposed to be amazing. They are likely a 6-10 month wait for new patients, so book now. They are worth the wait. I did see Hillary Yu at Duke. My social anxiety didn’t agree with her. CHAPEL HILL / UNC I can’t remember the specific doctor’s name, but I’ve heard good things about UNCs headache clinic. Give it a Google and you’ll find it. If you have questions, feel free to text me. I’ll forget to check back here for responses. 919-218-3318

Hello, it's nice to have a place to go were people understand. I am also fairly new. I don't post much but I do try read alot here so I feel like I'm not so alone. I have only had CH for about 5 years, chronic for the last few. I have also learned alot from this community. Everyone seems very compassionate and caring. I wish you well. Welcome !

Here's something from 2019: https://pmc.ncbi.nlm.nih.gov/articles/PMC7802413/ "As previously mentioned, it is still unclear why oxygen exhibits such good efficacy in the treatment of CH. The vasoconstrictive theory was prevalent in the early 20th century until Wolff et al. found that ergotamine constricted external carotid arteries and simultaneously relieved migrainous headaches.20 Therefore, they proposed that headache is caused by vasodilation rather than vasoconstriction. The study was published in 1938 and overturned the past theory.20 In 1961, Horton7 proposed that histamine cephalalgia was caused by the vasodilatation of extracranial vessels, and that oxygen was a vasoconstriction factor. If the vasoconstrictive effect of oxygen exists, oxygen therapy should be effective for both migraine and CH. However, the oxygen treatment is only effective for CH. In the 1980s, some studies reported a decrease of cerebrospinal flui in patients after breathing 100% oxygen as compared to breathing room air.21 Since then, animal model studies have demonstrated the protective, anti-inflammatory role of hyperoxia in microcirculatory inflammation. In 2006, Schuh-Hofer et al.11 demonstrated that hyperoxia can inhibit dural plasma protein extravasation in rats. Recent studies have suggested that CH is associated with some brain structures, including the trigeminovascular system, the cranial autonomic system, and the hypothalamus. The activation of the trigeminovascular system is thought to play an important role in the pathophysiology of CH. Goadsby and Edvinsson22 attempted to demonstrate the associations between hyperoxia and neuropeptides, and the results indicated that a significant reduction of calcitonin gene related peptide concentration in the jugular vein after oxygen treatment occurred, which suggests a possible effect of hyperoxia on trigeminal afferents. However, animal experiments have shown that oxygen does not directly act on trigeminal afferents, but appears to play a key role at the parasympathetic pathways.23 At present, studies assume that oxygen may act as a terminating factor in CH attacks. More research is needed to clarify the specific mechanisms of oxygen treatment for CH. Table 1. The history of oxygen used for cluster headache Study Year Findings Alvarez et al.15 1940 First use of oxygen for headache at a flow rate between 6 and 8 L/min. Horton16 1952 First description of oxygen used for histamine cephalalgia. Horton17 1955 Oxygen treatment in 1176 patients with histamine cephalalgia. Horton7 1961 He raised the vasoconstrictive effect of oxygen in histamine cephalalgia. Kudrow et al.18 1981 First systematic study on oxygen used for cluster headache. Fogan et al.12 1985 Crossover study found that oxygen was more effective than room air. Cohen et al.19 2009 Oxygen at 12 L/min, as well as at 7 L/min, was effective. Open in a new tab Figure 1. Open in a new tab The possible mechanism of oxygen in cluster headache. Note: TCC: Trigeminal cervical complex.

Migraine buddy includes clusters these days It actually has great functions of adding meds or other ways that gave some relief or not. most ways of aborting are already in the app, so it's really easy to add them in a log. If it's not in there, you can create it yourself it's definitely worth a try. I think it's really helpful to keep track All I have to do is try to remember start/end times so i can put it in when it's over

It's astonishing to me how instantly tears can come to the eyes when reading this (especially the passing away at 49 years of age, but glorious life part). Thank you for posting this, replete with the ski mask, tank cracking etc. color . You are quite the example of an above and beyond cluster hero.

I asked an A.I. image generator to convey the dark agony of a cluster headache...

Thank you to all of you who have made this message board a place for community and safety and compassion. You have saved lives and offered hope to me and so many.

WOOHOO! Thank you to the moderators who put so much work into keeping this going! The forums are a wealth of resources but mostly amazing people who are helping those in need to connect to the information they need. Love you guys! Thank you! I don't post often but have read and gotten many answers and resources along the way of my own journey. And when I have posted or commented- the answers come quick!

Just want to say a huge thank you to everybody that started this forum, and those that keep the community going. I'm in my longest remission ever, thanks to the good people here. This is such an incredible resource for those suffering, and those that support somebody suffering. THANK YOU!

Glad to be here! Almost six years for me.

Well trying to express my gratitude for those before me and those involved with starting this site would surely fall short! My words may 2, but trying won't kill me I suppose. Thank you 2 all of the pioneers that understood the need for a place like CB, thank you for compiling experiences into a haven for folks like me, thank you for caring beyond monetary gain, thank you for having the insights to recognize the need!

Well damn! That just sux and bloze as the jeebster would say!! Sorry to see that the Beast is having his way with so many of us!! On a positive note though, I'm thinkin maybe the bastard Beast overheard a conversation I had in the past couple of days regarding DiMiTri and got skeered!!! After having heavy shadows all day I went to sleep at 9 last nite and woke up at 8 this morning......zero, zilch, nada in the hits department!! This after 2 back to back 6 hit nites!!! Feelin quite refreshed this mornin so my mantra at bedtime going forward shall be, " better behave Beast or I'll get DiMiTri after ya!!!"

Early arrivals....

Hi Erin, I think anyone that suffers with an extreme headache condition not only belongs here, but can and will benefit from being here. I have read many a post from those with both HC and PH. Some have benefited from CH methods of maintaining pain free time as well as experienced a community of folks that understand pain in a way that non sufferers just can't comprehend. Sometimes it helps just to know you're not alone in your pain..

I recently heard about your organization on NPR and was immediately drawn in when I heard the words “cluster headache.” It’s rare to hear about this condition, and as soon as it was mentioned, my ears perked up. Other than my dad, I’ve never known anyone else who suffered from this debilitating condition, which is why I felt compelled to share his story after hearing the NPR segment. My dad was a strong, tough man—a former Marine who served in WWII. On the outside, he was all grit and determination, but he had a soft heart, especially when it came to his family. He loved his life and the people in it, and he rarely complained about anything. From what he told me, his cluster headaches began when he was 22 years old. The pain was excruciating and would nearly knock him off his feet. It was always the same side of his head that was affected, with that side looking flushed and reddish, while the other side appeared normal. During an episode, my dad had to retreat to a dark room, sitting upright because lying down only made the pain worse. The headache would eventually pass after about an hour, but it left him drained. My dad’s headaches were cyclical. He told me they would return every 18 months, like clockwork. Despite the immense pain, he never complained or wanted to burden anyone with his struggles. But these headaches were one of the few things that truly brought him to his knees. At 60, my dad was diagnosed with metastasized lung cancer. He underwent chemotherapy and radiation, and remarkably, he survived until just before his 65th birthday. He was an incredible fighter, enduring everything with the same quiet strength he had always shown. What stands out to me, and what I wanted to share, is that from the time he began cancer treatment until his death, he never experienced another cluster headache. Listening to the NPR report made me wonder if the chemotherapy or radiation somehow alleviated his headaches, and I thought it might be worth sharing this information with your organization.

Hey guys, so I saw the neurologist this week, he was actually pretty thorough and listened to what I was saying. I was pleasantly surprised. but he doesn’t think I’m having cluster headaches, and thinks sinus headaches instead. He explained his reasoning and didn’t just dismiss me; What he said did make sense, the pain is primarily in my sinus area and I don’t get the stabbing pain in/behind my eye like is described. My pain is above and below it and feels like pressure not stabbing. But, it’s so extreme. Like never below an 8 but very often a 10. Unless I’m just like, really a baby about pain. Are sinus headaches that bad?? And can you get them multiple times a day for 3 months!? I’ve never had pain like this before in my life, it was even worse than my appendix bursting! It is true that I didn’t have the eye watering/nose running either, or my pupil going funny, at least not that I noticed. And my eye never drooped, even though it felt like it was, when I’d look at it it was fine. The only automatic symptom I got was that the pain made me feral. I had to pace around and yell and flap my arms during the episodes, like a compulsion. But he said that was probably my anxiety (I do have a diagnosed anxiety disorder but it has never manifested that way before) and the fear and pain making me do that. But I also didn’t have sinus congestion. So idk how I can have a sinus headache with no congestion? And they did a CT of my sinuses and said they looked fine. He said I could have a wisdom tooth on that side that is pressing on the sinuses, or the roots have grown into them, or even an infection or abscess. So I have to go to a dentist and get a CBCT to rule it out. But wouldn’t that show on the ct? It’s all very confusing to me. also, although most of my episodes happened at different times each day I almost always had one at 11am and 2pm and always right after I fell asleep. And they were always 2-3 hours… So I don’t know. I suppose that could be a coincidence. And the fact that they kind of slowed down and then stopped is weird to me too. he did say to keep monitoring it, writing everything down, and that he’d order an mri just to check there was nothing else. And that if the pain comes back to go to him again. He said we could reevaluate at that point to see for sure if it’s CH or sinus. At least he is open minded, and at least I have no pain for the moment. I like that he is investigating every avenue. I don’t know, he was very nice and like I said he did listen to my concerns and answer my questions. I felt heard. But I don’t know what to think! anyway, I might just be a huge wimp about pain I guess!! I’m sorry to all of you with true CH, I feel like I’ve been mocking you now! I haven’t, at least not on purpose! it really was the worst pain I’ve ever had. but I wanted to say thank you to everyone who took the time to read my posts and give advice and encouragement. You are all so helpful and caring, and I felt real hope for the first time during my ordeal when I found this board. The support that you offer here is so important for people who are scared and in pain and don’t understand what is happening to them. So thank you again and wishing you all cozy, pain free days ahead.

I probably have said this before, but there's no harm in starting the vitamin d3-based anti-inflammatory protocol now. Since you're looking just to build up your level over time (to help prevent or mitigate a next cycle, if there is one), you don't have to do anything "drastic" like the loading process. D3 regimen - ClusterBuster Files - ClusterBusters

Never hurts to get another opinion. I'm seeing a new Neuro myself - it's been ages because I had pretty much given up on doctors. He ordered two MRIs (says they're the best method vs PET scan, fMRI or CT - his opinion), but the soonest I can get them is September, so more waiting. My situation is complicated because I have chronic daily headaches and hormonal migraines since puberty that can still hit even though I'm well into menopause. The possible Cluster Headaches have been around for many years but no one would touch the diagnosis.

This is so common, I had a maxillofacial surgeon tell me I had clusters after a root canal did nothing to help me. You never know what type of doc your gonna get until you meet them for the first time. My doc not only knows clusters but also looks at and supports this site. You may luck out and get a clear diagnoses and find out its not clusters (that would be ideal) or you may end up having clusters(not so much fun) but at least you will know what path you will need to take. Your above description sounds like clusters to me for sure, you also seem to have a somewhat upbeat attitude about this knowing the type of pain your having. Keep your head up and just take it one step at a time and we are all here to help answer any questions you may have.

Well at least you've braced for that in case it happens, but hey you never know, you might get a good diagnosis out of the deal. Especially if this neurologist is a headache specialist. It's unfortunately true that regular old garden variety neurologists are thought of us as often being ill informed regarding CH. I bet you've seen that this is indeed some straight up classic CH behavior. I've known some diagnosed CH'ers that mainly get hit in the temple (upper trigeminal), as opposed to the behind the eyeball routine I got used to thinking of as the CH standard. It sure sounds like how a cluster cycle often ends - CONGRATS ON MAKING IT THROUGH, and now hopefully you'll gain a nice long remission. Yep - all they can really go by is a description from the patient, and your descriptions seem fine. Best of luck and results with the upcoming appointment. I'd say don't make too big of a deal out of it - if the doctor isn't right, just set this as another appointment/doctor to ignore, and seek out a headache specialist while you're in remission. They can have long waiting times, but you don't have to be in an active cycle to go in and get a diagnosis.

Hello,and thank you all for your answers! In monday i visited my neurologist,he suggested to try Vydura. I took the first pill on Teusday afternoon!and as a miracle headached gone,just a small pain or shadow from time to time. Wednesday - Thursday - Friday i woke up and waited for pain to come- once the pain came i took one Vydura per day and like magic it was gone all the time and the whole day! The pill is expensive , around 30 usd But after 7 months of everyday pain 4 times+ per day and around 10 years dealing with the beast it s the first time that i am excited! Still want to see how it will work in the long term and if it can keep it sleeping, but after immigran that lasted for 3-4 hours this damn thing keeps me pain free for the whole day!

Hi all, I'm Anna and I help manage Clusterbusters ClusterBuddy program. I have a request BUT I also wanted to take a moment to provide a bit of information as well about the program. My request is I currently have a need for more chronic clusterheads who have lived experience and feel up to helping someone newly diagnosed or has newly found Clusterbusters and really needs someone who "gets it" and can help them find some things that may help them- they may not have a doctor who knows how to prescribe correctly, may not know what to ask for, or may just need a listening ear. So a bit about the program: ClusterBuddies is a peer-to-peer and one-on-one program that connects you with a supportive, empathetic, knowledgeable, and experienced volunteer who understands life with cluster headache and can say, “I’ve been there too.” We provide monthly groups where we explore topics or share our experiences of helping someone else. You can reach out to me or another member of the team at any time. If you would like to come alongside someone and be their Buddy (we have a strong need for chronics, but episodics and those who have experienced both are welcome to apply!) https://docs.google.com/forms/d/e/1FAIpQLSeFvIXjreXUQ685AYZ0y0ehxCMOLFr3ODw2JOHY8SgvSF1xZA/viewform If you are that person that needs someone who gets it - you can apply here - no one should go through this alone- and we know many have never gotten to speak with another person with cluster headache- we want to connect you. You can apply here: https://docs.google.com/forms/d/e/1FAIpQLSet22ryEOeToWOlr6yLXXJsziCfnsPpl3P4QyY2qjVuPNV6lw/viewform

Health Canada must reconsider man's bid to use magic mushrooms for cluster headaches, Federal Court rules | CBC News

Really nice shoutout in an article in Vox this month! https://www.vox.com/future-perfect/2024/5/15/24156372/psychedelics-chronic-pain-cluster-headache-medicine-lsd-psilocybin

Positive Results: Psilocybin Reduces Cluster Headache Attacks A new extension phase study from Yale led by Dr. Emmanuelle Schindler proves that repeated, low-doses of psilocybin lead to a significant reduction in the number of cluster headache attacks. After doing a 3-dose pulse regimen of low-dose psilocybin, cluster headache attacks went down from a baseline of 18.4 to 9.8 cluster attacks per week. For more information: https://conta.cc/4d8NI22

Is this a constant pain with no pain free time at all? This has been reported by others as well Were you using the proper non rebreather mask and flow rate up around 25lps? Has happened to just about everyone on this site, We are all here to help you out at any time of day or night! Great place to vent. A good test that works for most of us is drink a beer- get a attack. When in cycle for episodic and any time for chronic. Some are lucky and can drink with no effect but it is still a good test. I does not matter if you get one a month or 5 a day, it all sucks and everyone has the right to talk about it. Spill your guts here and we will help clean up the mess

I am at the end of a 3 week cycle, so the attacks are shorter and more shadow like, but I had one that was lasting around 8 hours with no relief and read on here to try ginger. I made ginger tea and the pain finally started to let up! I have now had a cup of ginger tea right when I start to feel the pain come on, or tightness in my neck, which is an indicator for me, and for the past few days and attacks it has stopped the pain and the attack by the time I finish the cup of tea. Who knows how long it will last, or if it will continue to work for the lesser/shadow pains but every small bit of help to reduce or stop pain is worth it. I have been using the pure ginger tea from yogi tea. Hope this helps someone, even if just a little!

In!

Ummm yeah, I reckon I'm up for the 80 mile drive to hang out with a bunch of clusterheads!!

MountainAire Medical Supply in Grand Junction, Colorado, came through for me. Unfortunately the mask provided was a joke, so I've ordered the mask system that is available on this site. First night I needed to use oxygen and even with the funky mask, it worked wonderfully to abort the headache! Yay! After seeing the tanks, regulator and mask, I have no idea why the other places were giving me the runaround. One place literally said the regulators were hard to come by so they were saving them for hospice patients. Doesn't make sense. It might be because I wanted to self-pay because we're out of network for my insurance. We've found with other medical procedures that entities get a lot more $$ from insurance then if a patient self-pays.

...old saying...Dr B i believe: if you are not sure a med is working...it's not! but, when you say "cans" it sounds like that faddish and worthless "Boost". you need at least 15 lpm, a proper non rebreather mask, and a breathing technique that works for you. at best an O2 abort takes 5-8 mins...a boost can gives less than 1. you ALREADY got the breathing technique which is a highly effective one for many and the type advocated by the expert on O2. get thee some tanks (not a concentrator) for pure oxygen. and to paraphrase @CHfather, if the O2 doesnt work its one more diagnostic clue to rule out CH. it sounds to me that either you have a very odd type of CH or one of the others he mentions.. best jon

..LC...as the saying goes...we hate the reason you are here but glad you found us...welcome. best jon