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  1. I put the official stamp of Jeebs "Like" on the Clusterheads Poem, but I do think these last two lines from it are worth qualifying: Unless you are a clusterhead You haven't got a clue I've long considered @CHfather to be an official clusterhead whether he wants to or not. This guy has consistently come to the rescue of tremendous numbers of fellow clusterheads on the forum over the decade, and while many may not realize it, all while going through the ultra severe pain/afflictions/hospitalizations wringer and them some himself - he's one individual whose severe health experiences I would actually not wish to trade for my own. Then with his own child a clusterhead, he's "got a clue" and then some. So here's a New Year's toast of infinite gratitude to one Clusterhead with a capital C who has made such a huge difference for so many of us, an individual who I shudder to think what Cluster Busters would have ever been like without, the hyper vigilant, ultra knowledgeable, incredibly empathetic dude who keeps the cluster info real, and who I find myself now building up into some kind of God-like figure, or at least a patron saint of headbangers, Chfather.
    11 points
  2. Update: This has continued to be effective, but he was still having occasional less severe attacks, especially when the weather changed which has been happening a lot recently where we live. Added Quercetin twice daily to the schedule about 10 days ago, seems to have helped even more. Only one attack since then. He’s even been able to have a couple beers without a headache which has previously been unheard of.
    8 points
  3. Happy New Year ya'll! Hope everyone enjoyed the celebration......meh, I turned off the tube, put on my jammies, and went to bed at 8:30! So , I ran across this poem by our very own @Fast Eddie ....I'm fairly certain it's posted here but it's been a long time.....I first heard it at either the Portland conference in 2010 or Las Vegas in 2012 when Eddie recited it....great poem by a great guy! ‘We call each other clusterheads" by Eddie Langford There are many types of headaches I'm sure you've had your share From stress and strains and migraines To a sinus one here and there But let me tell you about one friend That puts them all to shame This headache is a demon And a cluster is it's name To see a full blown cluster Is a very scary sight It can happen in a moments time No matter day or night It is the worst pain known to man It will put us on our knees We pray someone will knock us out And give us some relief We call the start a shadow A sensation in the brain That says "the demons coming back" To taunt us once again The brain turns into cornmeal mush The eyeball starts exploding We moan and cry and rock our heads There’s no doubt how bad we're hurting We call each other clusterheads Our tiny little crew Of others who are just like us Who know what we go through So please don't say you understand Just what we're going through Unless you are a clusterhead You haven't got a clue DD
    8 points
  4. Just want to say a BIG THANK YOU to Bejeeber,Spiny,Freud,CHfather,Jon019,Dallas Denny,Xboss and Fun times I'm pain free got my sanity back feel like I've got my life back, got so many more tool to fight the beast when he decides to reappear. As I said I'd never spoke to any1 who has suffered with this s--t before I found you guys and this forum , THANKS again
    8 points
  5. You see those nice Medical O2 tanks on my deck? THEY WERE FREE!!!!! Yes. I saw my Neuro last week and requested a script for O2. He gladly obliged and WE filled out a form. Our local O2 carrier is Lincare. The form has a bunch of questions unrelated to Clusters, so we left those blank. There were a lot of blanks! It stated ' minimum of 15LPM with a non-rebreather mask for 15 minutes, as needed for Cluster Headache'. My delivery came in 24 hours!! They will bring however much I require every week. 'How long does one tank last for you? How many next week?' So, should you need it and you are on Medicare, you can now receive it!! I am in heaven. Also in cycle, but this project makes it SOOOO worth the pain. I am delighted to have this cycle and uncover this stupid mystery we have been wondering about. Thanks to all of those who were able to attend 'Headache on the Hill'!!! WE WON!! Ok, time for a massive HAPPY DANCE. Yes, I will Pin this!
    7 points
  6. This is one of the best, most complete pieces on Cluster that I've seen. No surprise given who the authors are, but I thought everyone should see it if you haven't. Not tons of new information for those of us who are battling daily, but the main intent of the article is to raise awareness and education in the medical community. https://www.bmj.com/content/376/bmj-2020-059577
    7 points
  7. Hi all. Here is an interview explaining the Vitamin D Anti Inflammatory Regimen for cluster and migraine headache with Pete Batcheller, the cluster sufferer that came up with the regimen. (re-film of previous interview with new slides etc). If you've been thinking about trying Vitamin D3, have heard about it for overall good health or have questions about the regimen, i.e. how it works, what if it doesn't work, safety, testing, general supplementation questions etc. then this video will hopefully be of help to you. https://www.youtube.com/watch?v=SofbDDhmQUs As always, Batch - thank-you for your contributions. The Vitamin D Regimen for me personally has been absolutely amazing.
    7 points
  8. Happy New year to every CH sufferer. And every CH supporter We are 1 of a kind and we need to stick together
    7 points
  9. A week back on the ket and already my CH is much better!!! Decreased frequency and intensity for some hits. Slept through the night last night...
    7 points
  10. Hey folks sorry for the delay it’s been a bit of a clusterfuck lately w the move/transition But I’ve finally found a doc that is comfortable w ketamine and CH. we started w nasal spray and troches, and they do infusions which I’m going to try and work in per their recommendation . They don’t advertise that they do infusions like all the money hungry places here. They recommended I do infusions to kick back the beast so it responds more to the at home ketamine. ... they are more affordable as well. Found a pharmacy that charges 1/4 the $ as I was paying before... I can breathe again wooo hooo!!!
    7 points
  11. Hi! Welcome to the forum. You should be excited because life gets better with Cluster Busters.
    7 points
  12. Hey BoscoPiko, Cluster headaches are very sensitive to serum oxygen concentrations. If the partial pressure of arterial oxygen (PaO2) drops below a given threshold as it will when flying at a cabin pressure equal to 7,000 feet altitude (2100 meters) in most commercial airliners, PaO2 will drop by 30%. This opens the door to the CH beast jumping real ugly. The same thing happens when we sleep as our respiration rate is as low as it can get while we're alive. The low respiration rate also causes an increase in the partial pressure of arterial CO2 (PaCO2). The combination of low arterial oxygen and high arterial CO2 makes for a perfect storm occurring as most of you know, one to two hours after falling asleep. If you're an episodic CHer in cycle or chronic and need to fly, take a couple Imitrex (Sumatriptan Succinate) 50 mg tabs an hour prior to takeoff and carry an Imitrex inhaler or Imitrex SC injection pen during flight. If you're a CHer maintaining a CH pain free status taking a vitamin D3 maintenance dose of 10,000 IU/day and cofactors, take a 100,000 IU loading dose of vitamin D3 24 to 36 hours prior to the flight. The following chart illustrates the changes in vitamin D3 and 25(OH)D3 serum concentrations following a single oral dose of 100,000 IU vitamin D3. Take care and keep your immune system boosted with vitamin D3. V/R, Batch
    7 points
  13. Happy to see your post Shaun!! As I've said on many occasions here over the years, "One more cluster soul out of the darkness and into the light!" DD
    7 points
  14. Politics. I would like to suggest a return to CH specific discussion here, while enjoying the political discourse elsewhere. I can see that so far there are some folks on similar political wavelengths offering views, but can assure that political views of members here - all very good people - are all over the map. The more political it gets, the more divisive it will be, while we CH'ers need to be sticking together during these ultra hot button political issues times.
    7 points
  15. Oh my god just got back from visiting my daughter in hospital and she is know awake on really heavy pain killers so still groggy plus still on breathing tube at present , but slowly but surely my family and i are getting her back . This is probably 1 of the best days in my life I can't stop smiling. Gonna open a bottle of champagne to celebrate
    6 points
  16. What other medications are you taking? How else do you manage your clusters? You want to look into getting oxygen now it will change and save your life. You can abort a cluster in as little as 5 minutes with the correct setup
    6 points
  17. ER CARD, While I was on the Board of Directors at O.U.C.H., we developed a Medical Alert Card for Oxygen Therapy for CHers who had to go to the ER with bad CH. The document is signed by the CHer's neurologist or PCP explaining the bearer suffers from Cluster Headache and needs oxygen therapy as a CH abortive at 15 to 25 liters/minute STAT! The thinking behind this card was that it would help eliminate most of the Stump the Dummy questions frequently asked by ER receptionists and get the CHer oxygen as an abortive as fast as possible. Take care, V/R, Batch The quality of this image is not that good. Unfortunately, this web portal limits attachments fo 23 KB and that's not enough for the original pdf document. Take care, V/R, Batch
    6 points
  18. Juss, you are referring to a FB Group that is well known by many here. They are not 'us' and push/prefer Pharma for money reasons. You click, they make money. That group, is not any part of our group here and we were around for about a decade before they formed. And they will throw you out for mentioning MM. Please, take a step back, reread some of our responses to your posts and think about it. We, as a group, have tried to understand you, help you, and support you. For BPD, Dialectical Behavior Therapy has proven highly effective. It was developed for BPD. My child, with this disorder, has had only one meltdown in 8 months since she finished BPD Therapy. Normally, she would have had at minimum 10-12 meltdowns. Her IQ, is above 150. As I suspect yours is. Which makes the disorder even more difficult. I have seen it for decades now. It is horrid. My heart hurts for you. I wish you health and happiness. I wish you peace. I know that peace might be the most difficult thing to attain. For your posts on the board, please be kind and positive, or just scroll on by the post. spiny
    6 points
  19. Everyone has covered it pretty darn well Shaun. I find utter delight in helping one person become pain free. Each of them are special. And I consider them all friends. Stay safe, happy, and loving. Life will be great!
    6 points
  20. Yo CE...so glad you found us... talking, sharing, or just plain ranting with folks who understand and care can be incredible "medicine" all on its own......and then ya got spiny! kept reading that truly wonderful post to throw in something...but there weren't no room. Golden!! ...all i can say is that it makes me sad and frustrated that somewhere along the way there was no OXYGEN given. guess it goes along with the clueless misdiagnosis, but every medical reference i've ever seen (from the 80's on) acknowledged that O2 was THE recognized abort. safe, fast, easy once dialed in, ways of making it inexpensive, and none of the nasty side effects we all know so well with the migraine drugs thrown at us. may not work for all, but does for more of us than anything else...save maybe triptans. you've never been given, Imitrex (sumatriptan), Zomig...or any other triptan..or they didn't work? i'm shocked. OXYGEN can be a game changer...saved my sanity, perhaps my life. That should be your first step.... best jonathan
    6 points
  21. Yes, the usual amazing post from spiny. Like her, I have to ask -- Only Emgality? That would be very unsatisfactory. The Emgality might work, but there are strategies to get you out of pain now. And regarding that Emgality prescription, it is for 300mg? That's what is needed for CH. Even with a migraine diagnosis, you should have been prescribed Verapamil and some kind of triptan (perhaps the injectable form, Imitrex, but maybe tablets or a nasal spray). Did none of that help you? spiny has covered it all so well that there's not a lot to add, but this post might have something useful for you to know: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
    6 points
  22. So sorry to hear you are struggling. Sounds like you are going to need a fusion which are highly successful procedures in most cases. Will likely lose some range of motion but the pain will be gone so it seems like a far trade. Spinal surgery is not for sissies and since you are anything but a sissy you will do well. Make sure you have someone who has been at it a long time, has a good volume of experience with the procedure and is nice to your wife. Stay strong.
    6 points
  23. First of all, the "pain in my head constantly" may be what we refer to as a "shadow." Clusters are referred to as the Beast. Makes sense, huh? As to your other point, I have to remind myself at bedtime that if I wake up and wonder am I having a cluster attack, I am, and I should get right on the oxygen. The abort is easier. There are some documents on this website under patient resources about how to make the most of your oxygen experience (doesn't that sound romantic!). Also, Four cycles in nine years is, as you point out, lucky. I used to be episodic, one episode a year for 6-12 weeks with headaches only every other night (sleep and alcohol are my triggers). Slowly over 41 years my cluster disease has progressed, and now I'm chronic with 3+ attacks every night year round. Lots of resources here, glad you found us. We are, I think for the most part, people for whom the medical world has not really made a place (although thanks to Clusterbusters and others that's getting better), and we are each our own guinea pig, experimenting to find remedies and prevention that work. All the best!
    6 points
  24. Hi to everyone on here I just wanted to express my thanks to everyone that kept me afloat for my last 3 month cycle. It was a hard one and longer then I've ever had to endure . I really don't quite know how to properly thank everyone. I haven't had spikes or the devil visit me in 2 and a half weeks so I dont want to jinks myself but I think and pray I will be in the clear for a bit. I believe it was @spinythat said to me life happend between the clusters and I have had a few days of life. Road my horse.. and am now at my retirement home that I haven't been able to visit in months.. a little life is worth living for!!! I want to send picks but the site keeps telling a different size so maybe later. Thank you all.
    6 points
  25. @Kimbers Welcome to the community and thanks for being an advocate for your hubby!! We love our supporters! While a prednisone taper usually does stop the hits, it's primary use is as a bridging med to allow other Frontline clusterhead meds like verapamil or lithium to build to a therapeutic level in your system....however, it doesn't abort the cycle for most folks so the hits will likely return after the taper unless he's lucky and has a very short cycle. Since he's so new there's no guessing how long his cycle will last and cycles tend to morph over the years anyway for most of us.....mine are pretty consistently around 20 weeks followed by an 18 mo remission. How else are his clusters being treated? Two primary things for ya'll to educate yourselves on and put into place are high flow O2 and the anti inflammatory vitamin D3 regimen......O2 will abort individual hits while the D3 regimen will either decrease the intensity and number of hits or it can completely abort the cycle for many, many folks! You can find files on both in the Clusterbusters Files section. Dallas Denny
    6 points
  26. Hi Fern and welcome. Glad that you found us! You will find a lot of info in the blue banner above that says New Members.... Avoid MSG, alcohol, fermented foods etc. Eat clean. Msg can bring on one right quick for some. Caffeine: In an Energy drink or shot, V Energy, or coffee. If you can hack the Energy shots, some say the taurine in them is helpful. Otherwise, any strong caffeine. Most want them ice cold. Slam it down - drink quickly, at the very start of a hit. You can hyperventilate too and exhale with a crunch to get rid of the CO2 in your lungs. Many will suck in the cold air from an AC vent in the car. There are proponents of ice packs too. A really hot bath - shallow - helps some by opening the blood vessels in the legs. I have sat in many a screaming hot bath. I just kept adding more and put a cold cloth on my head. Well, cold water type cold. Not ice! Benadryl can help a lot too. Take only at night if it makes you too sleepy. Also, there is Melatonin in the 20-25mg amount. Do not take both at once! Try one, then when you know how it affects your balance, etc. Then you can add the other. Add the Melatonin 10mg to start. Or less. If you get hit at night, then sleep in a recliner with your head above your heart. It will enable you to get up and hitting the caffeine, cold air, hot bath, whatever works for you. We are all different. Some get great relief from an ice cube held against the roof of the mouth on the CH side. How about your experience so far? Share a bit so we can help you better.
    6 points
  27. Last night again--- pain free! I think (hope) I am done for a couple years. I consider myself incredibly lucky in a lot of ways. One is knowing/hoping my shadows will be gone for a couple years. If I disappear for a couple years, just know you all have helped a ton, even just by knowing there are people that understand this thing, and there are people helping people and doing incredible thngs making traction toward a brighter future. And isn't Batch an incredible man! Holy! It's like he was put on this earth to help all of us. Just incredible. Wishing all of you peace and serenity and all the joy and happiness possible. Goodness knows you've all earned it!
    6 points
  28. Sorry..I'm smiling and laughing, ...oh we get that, no problem......sometimes ya just have to. there are so few times in life when you can laugh and cry at the same time. still vivid memories of catching my bawling self in the mirror a couple times during a real bad cruncher, and bursting out laughing: hair askew, eye closed, face crooked, snot/spit/god know what else smeared all over....who IS that guy!?.... I think, because misery loves company. It's so nice to have people that understand this "thing" ....ask, share, support, make shit up, vent, whatever...we care! clusterheads/supporters are our own best, frequently only, advocates and company...we have to be.... This is my first time trying verapomil. Well the one last night after sleepng 4 nights with no attacks...that's what's concerning. ....oh, i thought you had more experience with it. my experience and observations of most frequently reported over the yrs: takes a 10-14 days to work (which is why a concurrent prednisone/methylprednisolone iv/taper is standard western med treatment), takes a while to dial in, just when ya got it figured stuff changes. 240 mg is a low dose, many go higher (some much higher) so best to start low and build to higher levels if needed. more reported success with immediate release vs extended. lotsa water/fiber to keep things moving along. timing doses to expected hits sometimes helpful. highly recommended to do baseline ecg and repeat as dosage increased significantly due to possible heart rhythm effects (reversible upon discontinuation). a headache specialist neuro (regular neuros can be and usually are as ignorant of CH as regular Dr's) is familiar with high dosage tolerance in cluster patients and can guide you through up/down tapers as well as other control measures. there are those who believe extended use causes ECH to turn CCH. again, an experienced HA specialist would have thoughts on this. i used verap for 7 yrs before dialing in the OXYGEN, energy/drink, D3 and zomig ns. turned chronic 2 yrs after...so never felt a connection. chronics will tell you they'd rather be episodic, episodics just the opposite. having been both, to me it's all the same shitshow, just a different channel. most all tools work, just in different ways....only you can figure your best path. Also worth noting--- I took melatonin last night, 1st night in 4 ....good on ya for finding that, many find help there, be willing to adjust dosage. Benadryl (diphenhydramine) also helps with sleep and allergies that may trigger hits... I like the suggestion of wriiting down possible triggers etc. I have been taking note of attack times start and end. First time ever, because traditionally, I didn't need to---if I was 11:01 pm, it was 11:01 Pm til I was done, apart from the final blasters, which I could never ever get away from.....it's the weirdest thing---i can never get away with no blasters at the end...If I OD'd on pain killer, like rizotriptan, timing it perfectly.....the devil would say-- "nuh-uh boy, I'ma hit you at 3am then.....no free rides asshole." ...a log is a great idea, if you are organized about it there is lotsa great info to be gleaned.... ...i used to PRAY for that last screamer...knowing a) this is gonna be bad!! b) yee-haw, it's gonna be beer-thirty in a few days!! it's all relative... I'm going to try the Vitamin D3. ... do all the regimen...no dabbling.. Have not tried O2 yet, ...YESTERDAY!...there are countless clusterheads who can testify to OXYGEN as a LIFE CHANGER! 15-25 lpm, non-rebreather mask/demand valve/direct from hose, and dialed in (for you) breathing technique all vital... and definitely I normally stay away from energy drinks.....but perhaps not anymore. ...totally understandable...i've never touched one outside of CH need myself....but, incredible difference maker used judiciously. some prefer just a high dose caffeine beverage...really hot or really cold for whatever you use can help... But my attacks, the worst ones anyway, come and crack me one after I'm sleeping......however, all of you know that there are worse things than being jacked up on energy at 2am....ummm, like for instance---being tortured behind your eyeball .....nothing regular or planned, but i could pound caffeine and be asleep in minutes....many others report same.... I'll say it again though, it is nice to be among people that know exactly what it is, and I don't have to explain it to friends and family....only to hear- "Oh yeah, I get bad headaches at work too, it sucks kinda bad" ..yeah, sorry, you don't get it my friend ...if ya want a chuckle check out this link: New CH.com Forum - Dopiest responses to CH (clusterheadaches.com) ....poke around the rest of the ch.com site too...priceless info therein....
    6 points
  29. 'I guess your doctor forgot to give you the jerk free pass card when they told ya you have clusters.. I got 2 of them and a card allowing me to be an ass twice a week.' Agreed, we all need at least one of these!!!! Bosco, we learn to laugh about it over time I think. Sort of laugh or cry? I'll take laugh any day. Let the anger about it out, scream to the heavens and then get on with life. I suspect it teaches us to value good times a lot more than many do and that is a gift to be savored. Fun Times made a great suggestion regarding RC seeds too!!!
    6 points
  30. Happens to most of us if not all. I feel mean, sad angry and I lash out at people all the time. My wife will sometimes remind me that im being an ass and kind of bring it to my attention but she understands why I am this way. As far as staying happy? I just kind of think about the ones I love and I am thankful that this is all happening to me and not them. I can deal with this my own way but if someone else had clusters then I would be one of the ones who just didn't get it. I know it will pass in a few days or weeks and I will feel better again. I am chronic so I have forgotten what it is like to be pain free for more than a day but I do have days that are better then others and I try to enjoy them. Depending no your location you may be picking up some sort of allergy from being out with your horses. you might want to look into the vitamin D3 by our member here know as XXX. I am sorry if you posted about this already and I missed it but how else are you dealing with your clusters? Coming on this site and venting about how your feeling is huge! people here understand and will help you figure it out.
    6 points
  31. Ginger!! Tea, candy, chews, etc. Ginger is great for shadows.
    5 points
  32. i am convinced that the drugs the docs pushed (verapamil, triptans) made my bouts worse. big pharma has done nothing for me except make the only drug that helps me illegal. too bad lsd wasn't profitable enough for sandoz. it sucks but such is life. about 10 years ago i decided to stop all medication preventative and abortive. i stick to O2, Red Bull, D3 and Psychs. So far i'm managing this godforsaken disease better myself than all the highly educated neurologists i have been to. i am not disregarding medicine and science, it's just that in this case science hasn't done shit for me. i don't expect huge changes either. even with bigger groups of sufferers (migraine) medicine is fishing in murky waters and throwing everything but the kitchen sink aht the patients...
    5 points
  33. It's been years since I've posted in the forum but something made me look today and I saw this old thread. I and my wife for the shot way back in August of 2017. This was just a couple months after the good doctor passed away. We got the shot from his friend and fellow doctor, (can't remember his name to save my life) and that was weird. This doctor is primarily a pediatric doctor. Picture to adults in their late 50s sitting in a pediatrics's waiting room!!! Anyway, I got the shot for my CCH and my wife got it for her fibro and arthritis. We both felt immediate relief and that relief went on for about four months for both of us. We were told that the shot wouldn't do much for the wife's bone on bone pain and it really didn't. but for the joints that weren't that bad, it REALLY helped. I went completely pain free for about four months and then the shadows slowly started coming back along with full on CH attacks. The only side effect either of us saw was that I had pretty bad thrush for a couple weeks with is typical for any large dose of any steroid, so no biggie really. Sadly for us, having to go to OKC just wasn't a realistic option. We spent 52 hours on the road, 27 of that driving. With the two $300 shots, we were about a grand down. To do that three times a year just wasn't doable. Since then we've discovered the beauty that is vitamin M and not we're both doing that and it's been going great for just over two years at this point. All I can say is find what works and exploit the HELL out of that, regardless of the risk. It's your life.
    5 points
  34. I don’t remember who it was that told me about drinking energy drinks during my last cycle back in October but I want to say “THANK YOU”! I was skeptical of drinking a monster energy drink or red bull during an attack but after trying it and then getting on the O2 it was a game changer for me. 5-10 minutes and headache aborted. For anyone that hasn’t tried this I’d suggest giving it a try to see if it works for you. you may just be as surprised as I was
    5 points
  35. ....i can dig it!
    5 points
  36. I look back often to the first day I felt the pain from CH. I had no clue as to what was going on. I remember the severe pain pulsating in my rt temple shocking me over and over again, going pale and sweating because of the new level of pain I had never experienced before. I remember the phone calls to the ER, the doctors, the shite show in its entirety. I'm still scared but nothing like what I was. I've turned or have tried to turn my experience with this mess into something to grow from (not sure I've grown a darn bit) but I know I move through each day a bit better than the one prior. The anxt not as bad, the fear not as bitter the continuation of remembering " I can't stop this but it will stop" has been so important to my mental health. Being lost without a clue is so hard. Having folks familiar with your own experience priceless! I suppose to wrap this rant up I should say that I don't believe any one medication or supplement regimen will work forever it is more of what @jon019 mentioned in the way that CH is ever evolving and we must evolve with it in new methods to fight this battle.. rant over..
    5 points
  37. Yep, just when you have this tricky beast and it's timings all figured out - beware, it can, and so often will, throw a completely unexpected curveball at you, even after 20, 30 or more years of entirely reliable, predictable precision timing accuracy. This'll go for cycle timing, time of day/night when hits can be expected, and other stuff not related to timing, like one of the biggest shockers I've learned of - switching to the other side of your head (!!!).
    5 points
  38. I'm sure I should know this, but what video are you referring to? (I've been here 11 years, and I admit that I haven't kept up outside this forum, even with things at this site.) As others have already said, there's a lot of possible help here, and if you feel like it, you might tell us how you are treating your CH now. It's possible if you skim through this file, it might have something new for you. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
    5 points
  39. Completely respecting your reluctance, and I feel like you're not a person to be led somewhere you don't want to go. So just FYI . . . There is often a misunderstanding that a "trip" is part of the treatment. It isn't. It's just a side effect, and as Jeebs said somewhere in a thread like this one, RC seeds at therapeutic doses are virtually guaranteed to have zero psychedelic effects. It is completely legal to buy and possess them in California. Preparation is extremely simple. Consuming them is unlawful. You can start at a very low dose. There was a time when RC seeds were considered a better busting agent than MM, but MM gets all the media attention, and many people here seem to think it and L are the big hammers. Seeds still might be considered better than MM (because their structure is closer to LSD). This is the original post on the topic: https://clusterbusters.org/forums/topic/684-5-lsa-seeds-of-the-vine/?tab=comments#comment-8326 This covers a lot of bases: https://clusterbusters.org/forums/topic/2353-moxiegirls-seed-recipe/?tab=comments#comment-29101 Blah blah blah here: https://clusterbusters.org/forums/topic/6816-number-of-rc-seeds-to-take-some-thoughts/ There are some small contradictions among these files, but if you start a thread in one of the protected boards I'm sure those can be ironed out.
    5 points
  40. For us chronics, at least me. I know the hits are coming numerous times a day. Often kipp 9-10s, so I see it like this. Plane, train, home all good same sht. There is no stopping them some times. But anything except the dentist while they are doing oral surgery. That was the worst. Take some trex and hope for the best. In the last 5 years I flew 5 times. Only once did I get a CH and I took a trex (that was when I relied on them). Now I don’t fly with anything except ketamine if I have it. That would be a great abort on the plane. People it’s not reported much but oral and nasal ketamine will abort CHs!!! If you get fewer attacks your less likely to build a tolerance. If you are worried about disorientation or other side effects the oral (troches) are much less intoxicating when you are a newbie. Takes a bit longer to kick in but what a life saver for me in the past. Having both is my goal.
    5 points
  41. Here is one of my most happy places. This was Thanksgiving day or as @Bejeeber said ThanksBirthGiving day I was having her connect up with me prior to hoping on
    5 points
  42. ....so glad ya found us, so glad a place like this exists...we are standing on the shoulders of giants here at CB...and i look forward to the time when we can talk about the "old days" when CH was still a thing.... and now is a usta be....
    5 points
  43. I had horrible neck pain some years ago. Every day a misery, wearing a cervical collar all day, unable to do anything comfortably. I was in the hospital for a week just because I was going nuts from the stress. The first day I was there a doc came in and said he had looked at my MRI and he was ready to do surgery whenever I wanted (fecking ambulance chaser). Nothing they gave me, even morphine or steroids, helped at all, and when they kicked me out they gave me giant bottles of things to take daily (neurontin, oxycontin, oxyIR . . . ). I flushed them down the toilet on the third day (too bad -- street value was probably pretty high). It happened that we had a connection with a top neurosurgeon, and I counted the days until my appointment with him, thinking he surely was going to rush me into surgery and finally fix the pain. Instead, he said to come back in two months after doing physical therapy regularly. I was crushed. I wanted it over, and I was terrified of doing anything to make it worse. Turned out that waiting was the right thing to do, and I never did need that surgery (and I never miss a day of doing my neck exercises). There are those famous studies where they would look at people's spines and try to predict who was having back pain. Turned out that except in extreme cases there was no connection between spinal condition and back pain. One person could have three herniated disks and be suffering, and another person could have something that looked just the same and be having no pain. And the other way around -- no structural issues but serious pain for some and no pain for others. So maybe, like me, you were just having some kind of awful episode and it's going to get back to normal or normalish and just become a memory. Or, of course, maybe not, but it sounds like they're ready for you if surgery is what you need. Love you, Denny, and sorry you're going through this now, too.
    5 points
  44. Welcome to the community cursed . So glad you found us . But also sorry you had to . Spinny has given you a great intro to this forum as she always does . She is 1 great woman . lits alot to take in but you need everything you can get to beat the beast . The people on here are great they will give you great advice and support , and their is always some1 here willing to listen whenever you need to ket off a little
    5 points
  45. Hi @Kprice, FWIW it looks like maybe some similar sumatriptan side effects are listed at mayoclinic: Less common changes in patterns and rhythms of speech confusion dizziness fast, slow, irregular, pounding, or racing heartbeat or pulse trouble breathing Rare lightheadedness, dizziness, or fainting severe numbness, especially on one side of the face or body trouble speaking or swallowing twitching weakness of the arms and legs And as @Dallas Denny mentioned, you may wanna revisit preventatives for consideration of something more consistently effective. For many of us that includes busting, as seen at the "New Users - Read Here First" blue bar above^^^^^^
    5 points
  46. It's a career buster for sure. We all have similar but very different paths with this mess. My life trajectory was changed as well like most of us. I try to take it as a challenge but it can def. be a downer. Like Bosco said, that work from home bit is huge now. I try to make money from several streams and one of them is making stuff that I sell. It's been a while but I used to crank out some cool stuff and sell the heck out of it.
    5 points
  47. @Kimbers I'm going to Reiterate Chf's O2 comment.....he needs to hit it as quick as possible after the first twinge of pain......over the years I've found it works best for me in a standing position.....while the ambu bag is filling exhale forcefully and then do a mini crunch to expell the residual air in the lungs.....then inhale the O2 deeply and hold it while the bags refills.....and repeat until abort. Many of us incorporate either energy drinks or shots that contain taurine and caffeine in conjunction with O2 therspy.....others use hot or cold coffee. Sleep deprivation is a terrible side effect of being in cycle for me.....for nocturnal hits he can try adding melatonin before bedtime and/or sleeping in a recliner helps some folks. DD
    5 points
  48. @Kimbers Very important to do all of the cofactors as they all work together and the K2 is needed to move the calcium from the large amount of D3 to prevent kidney stones.....I know it's a bunch of pills but it works great at controlling clusters.....is he doing the loading dose protocol? The guy that originated the regimen is a longtime member here and can help you adjust the regimen as needed for maximum efficacy! His screen name is xxx and you can message him directly with questions if need be. Next, tell us about hubby's O2 set up......it's often not prescribed as needed for it to be effective....should be administered at 15 lpm minimum via a non rebreather mask. Lastly, no way to know about episodic vs chronic at this stage of the game....we call it "dancin with the Beast"..lmao......chronic is defined now as having no more than 30 pf days in a years time. I know folks that were chronic from the git go and I know some that have gone from episodic to chronic AND vice versa!! The good news is the vast majority of the folks I know are episodic! DD
    5 points
  49. Welcome to the cool kid club Spida. I'm against pharma so my advice is to seek non pharma solutions like D3 and psychedelic busting. Oxygen for aborts etc. Red bulls and hot soaks also work for me when it comes to aborts. I'm sure pharma works great for some people but the side affects can suck. Try to learn as much as possible from here and inform yourself with some weapons to fight this terrible condition. It can be managed fairly well most of the time for most of us. Oh, and keep a log book of your hits and possible triggers. Just knowing your triggers can be very useful and there are many like alcohol, flying, foods, smells, even sitting positions! GL warrior! -Scott
    5 points
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