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  1. It's great that you got that relief, Mike. Do not let it lull you into letting up on getting oxygen! For a lot of people, the effectiveness of energy beverages tends to decline with multiple uses. (Incidentally, the smaller "energy shots," such as 5-Hour Energy, are easier to get down fast and have as much of the CH-fighting ingredients as the larger drinks (more of those ingredients, actually). Also, at least one person here has had success with V-8 energy drinks, which might be a touch healthier.) Many people would be surprised that your triptan pill helps at all (it is reasoned that they take too long to get into the bloodstream). If your attacks are predictable, some people will take the pill before the attack hits. There are a lot of other things I think you might benefit from knowing. The D3 regimen, for exampIe, and busting. I think you might benefit from reading this: Basic non-busting information - ClusterBuster Files - ClusterBusters
    3 points
  2. Hi everyone, I'm a long time lurker here. I'm 55 and have been suffering from Cluster Headaches for almost 20 years. I typically enter a new cycle every two years or so and they tend to last for 6 to 10 weeks. I am currently in my third week of a new cycle. I usually use Sumatriptan (100 MGs) to deal with category 10 attacks and just got my new prescription yesterday but am a little hesitant to use it because during my last cycle I think I may have overused it and made my cycle even worse and longer. I have never used oxygen but I am trying to get that now. In the meantime, like the rest of you, I would be willing to try anything to end an attack. In recent years, I have seen that some people have had success with Red Bull but I never tried it. I have never even had one before as energy drinks just aren't my thing, but last night I bought a few of the small/standard size cans at a gas station thinking I had nothing to lose. When I got up today, I had a shadow pain in my left sinus but it wasn't that bad. I figured it would pass within 10 minutes. I was wrong. In the span of about five minutes it escalated to a full-on attack. Pain level 10. I grabbed the Sumatriptan I just got and was going to take one but something in the back of my mind said - Try the Red Bull first. I opened a can and drank it all down in three gulps. About ten minutes later - ZERO PAIN. I am absolutely amazed. It was as effective as Sumatriptan and worked more than twice as fast. I wish I had tried this years ago. I realize that not everyone has the same success with each method, but I wanted to post this to let others know in case they want to try Red Bull as an alternative. I am positively stunned at how effective it was for me. Wishing you all a pain-free future. All the best. - Mike
    2 points
  3. ...that would be a double YUP!
    2 points
  4. Hi to everyone here im new to this site but i have suffered from chronic cluster headaches for the past 6 years.There has not been 1 day in the last 6 years where i have had a single day without having any where between 3 to 8 severe attacks per day.Ive had everything that medical science has had to offer,sumatriptan ,verapamill,botox injections imgality,nerve blockers,you name it and nothing work as most of those treatments were only proven to help people that had episonic clusters but not affective for chronic cluster headaches. It got to a point where i was that depressed that thinking about suicide was my only option to end my suffering and even went as far as paying $14000 dollars to buy a funeral plan before ending my life.Then after watching several videos of people claiming that taking magic mushrooms or lsd gave far better results in very small micro dosages of 0.4 grams every 3 to 4 days had far better results than any medications with no nasty side affects what so ever i started taking shrooms and to my suprise i was getting alot less attacks per day and not as severe.Then i started looking into something that no one really ever talks about and that is ECS short for Endocannabinoid system wich is something that we are all born with our bodies naturally produce endocannabinods however as we are all different so some of us dont produce enough of this compound in our body and funnilly enough i found that people that suffer from chronic migraine and cluster headaches were the ones that were lacking this enzyme.The reason we have cluster attacks as far as i know is due to vessels in our brain become inflammed and cause the vessels in our head to swell up and put pressure on the trigeminal nerve just above our ear and intern sends severe pain signals to the nerves behind your eye your nose your cheek bone and your jaw line and in my case even my neck.So i thought well if this theory is correct then how can i increase endcannabanoids in my system that my body could not do naturally.And thats where my life changed completely.I got onto a company who was liscenced to sell very pure high grade CBD oil which had no thc in it but had the cannabanoids CBD,CBG and CBN also particularly CBG which has a very powerfull inflammitory property bound to it but also helps greatly with dealing with chronic pain, so i thought well if its such a powerfull inflammitory then if it reduces the swelling in blood vessels in my head then it will not put pressure on the trigeminal nerve.Low and behold from the first day i took a very small dosage of 0.2mlg under my tongue twice a day it was instant.For the first time in 6 years i went a full day without a cluster attack it was almost to good to be true ,but 4 weeks have past since ive been taking this particular CBD oil and my clusters have dissapeared completely.Doctors say they just dont have a cure or know why people get cluster headaches well all i can say is they need to start looking into the endo cannabanoid .I urge any one here suffering from this debilitating illness to try it i mean what have you got to loose buy giving it a try .After having chronic clusters for 6 years without have not 1 day without at least 3 to 8 attacks per day to just stop completely from taking this CBD oil cannot be just a coincidence.I feel your pain and only want to give you another possible option that is drug free with absolutely no side affects that comes with traditional medication,and if you would like to talk to me personally about how to go about it im happy to leave a number if you would like to talk to me personally.
    1 point
  5. I use the 5hr smaller size to help hold the cluster off until I can get to my oxygen tanks. it will sometimes abort a very mild one if I drink it soon enough in the onset of the cluster. Oxygen is the cleanest and best option for aborting a cluster as long as you get the o2 kit and a regulator that will allow you to maximize your intake.
    1 point
  6. Hi,Andrew. I'm from Japan and I’ve also been suffering from chronic cluster headaches for over 10 years. I’ve tried all the medications that were mentioned, and I’ve even undergone nerve blocks and trigeminal nerve surgery. Although I’ve been managing the pain with opioids, they’ve started to lose their effectiveness, and that’s when I came across this. It seems that Humacology’s CBD oil is also available in Japan, and I wanted to check if the following product is the right one. Formula No.3 Broad Spectrum Oil 34% CBD content: 7,500 mg CBN content: 1,800 mg CBC content: 600 mg CBG content: 100 mg Net volume: 30 ml I would really like to give it a try. I’d really appreciate a reply. Miho
    1 point
  7. Hi everyone. Dr. Haghdoosts presentation from Sunday evening is below. If you had any questions or insights you'd like to share that may assist in their study design, you'd be welcome to place them as a reply below and I could email them once collated. Thankyou.
    1 point
  8. I’ve just started taking this 2 days ago. I know it’s anecdotal at this point but I’ve been in a cycle for nearly 10 months now. Nothing is helping d3 , mushrooms everything. my doctor here in Canada gave me a 30 day trial and so far it’s really helping. I’ll update soon
    1 point
  9. Yes, this is also a pet theory of mine. My husband has ECH and had a litany of trauma growing up from alcoholism and drug addiction in his parents, physical abuse, homelessness after leaving his home early, death of friends and close family as a young man. I just finished The Mindbody Prescription book, which is primarily about repressed rage and grief, and how it will present as pain in the body as a way of distracting the mind from its subconscious feelings. But what's more, it is absolutely possible for the limbic system to form neural pathways to the hypothalamus and cause autonomic dysregulation.
    1 point
  10. @Craigo thanks to your recent YouTube video, I think my triggers right now are actually coming from my tooth. It seems the seal of my crown has failed, and sometimes there is pain there (same side as my cluster attack) and could be the trigger for this cluster period. Getting it checked out on Wednesday. Thanks for all the advice guys
    1 point
  11. Thought I'd watched them all but somehow I missed this clusterbusters YouTube video.....until just a few minutes ago!! I've had the pleasure of meeting and getting to know almost everyone featured several times over the past 13 years! Be forewarned, grab a hanky or some tissues before watching as this video may result in eye leakage...
    1 point
  12. My mom can't learn anything cuz she already knows it all.
    1 point
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