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Showing content with the highest reputation on 01/17/2022 in all areas

  1. ....it wasn't a choice, but you make a good point about predictability....and overall i "preferred" that part of ECH to CCH. always interesting to hear other clusterheads opinion on THAT discussion. have gone back and forth myself about which is "betta"...horrific but predictable Episodic or lesser but erratic Chronic.... ...really it's just the same beast in different guise. ya gotta adapt and adjust the strategies learned and the tools collected...
    2 points
  2. Hi, All Adroid users that want to log their attacks, medicine use, therapy sessions, vitamins or MM/LSD use and more, can download now the APP I made to log my own attacks. It is free to download in the PlayStore now. Look for: Register your Journey If you need a new button to log something that isn't listed yet, please request a button here I hope it will help you logging all you would like to remember about your attacks, medicine use and all the other things you don't want to forget. If you download the app, please rate it as well, that would help me a lot for knowing if I need to go on or stop with the development
    1 point
  3. This is something to hope for Jon. The other side of your post that seems scary is the erratic part. I like knowing when I'm going to hell for a stent (don't know exactly why) maybe it's because I'm a bit OCD in that way or maybe it's because I can mentally prepare? I've heard so much about aging out and I'm unsure if I can trust that (not that you are inferring as much. I don't want to give myself false hope as I am somewhat new to CH and received a diagnosis fairly quick with comparison to most (I was a tyrant thinking I would surely die from the hits). I am 42 and started having CH at 38 so as much as I would love to believe that maybe in my 50es I might go into remission I don't want to set myself up if that makes any sense? Anyhow I have been blessed by finding this site and all the amazing people on her so I take that as a win!
    1 point
  4. ...or BOTH. 23 yrs of clockwork regularity here, cycles and hit times...then cycles and hits became (thankfully) less and generally erratic for years more. my personal belief, backed by nary a whit of scientific support so wild-ass speculation, that the "aging out" of CH that every one of us has been "promised" (and some achieve) may be due to aging changes in our circadian rhythms...or, more likely, the CONTROLLER of same...the hypothalamus.
    1 point
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