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  1. 9 points
    jon019

    Episodic to Chronic - advice

    My greatest fear over 23 yrs of episodic was that it would become chronic. I was obsessed with the thought. Used to dismiss comments on ch.com that chronics preferred it to episodic.... thought they were nuts. Then it happened.... and the reality was FAR less than the fear of the unknown had led me to believe. Hits were lighter, aborts worked better, triggers were reduced or went away, depression lessened. It still aint no damn fun...but if ya got the right attitude, a plan and the right tools..... it's controllable. Best Jon
  2. 8 points
    MoxieGirl

    Cluster Headache Poem

    No Escape Today is like any other, Yesterday, today & tomorrow, all blur together. Day in and day out, everyday the same, I wish I could escape this game. The Beast visits most when least expected, My face drains of colour, and I feel quite infected. Into one eyeball, always just the one, the Beast comes, Blinding and piercing like I’ve been poked hard, with a thumb. My eye seems to freeze as if turned to ice, And the pressure builds as if placed in a vice. My nose starts to run and my eye begins to tear, As my body is gripped with fear. Red hot nails, they pierce and twist in my eye, The burning is such that I wish to die. Sharp blades cut and rip through my skull, As I pace the room and bang my head on the wall. I can feel my cranium crack, As all my world turns to black. For one hour or maybe two, How long it really lasts, I dare not tell you. For all that time, I pace and I walk, Sat on my bed, back and forth I rock. I suck on oxygen and drink caffeine, I can be quite snappy and downright mean. But eventually the nails are removed, as are the blades, And the pain within, all but fades. I am drained, I am spent, My energy is at zero percent. I need water, I need food, But instead, I lay here unable to move. I take one deep breath, and maybe two, Before the next symptoms ensue. Then the crying truly begins, As my body shakes from my bones to my skin. I am racked with hot convulsions in wave upon wave, To this terror I am now but a slave. Eventually, even this fades to a whimper, As my body begins to shiver. Wrapped in a blanket I raise myself up, Sloshing some water into a cup. Today was like any other, Yesterday, today & tomorrow, they all blur together. Day in and day out, everyday the same, Oh, how I wish I could escape this pain.
  3. 8 points
    Pebblesthecorgi

    Psychedelic Science 2017

    MAPS notes Just finished attending the last lecture of the Multidisciplinary Association of Psychedelic Studies (MAPS). Coined Psychedelic Studies 2017 this was the largest (to date) gathering of professionals, academics, lay therapists and those with a life long interest in the benefits of psychedelic modalities. There were researchers, clinicians, advocates and enthusiasts sharing data, experience and advice. Among those at this robust and vigorous event was Bob Wold representing Cluster Busters at an informational table and Brendan Burns sharing his personal story and knowledge. Emmanuelle Schindler presented the clinical study design and rationale setting the stage for presenting solid data at future meetings. Our cause was well represented. Certainly our situation is a bit one off from the mainstream but it is important we don't let the avant garde of this exciting movement forget our interest as psychedelics rapidly reenter current therapeutic options. I attended many of the talks and wish to provide a high level summary of some of the talks that may be of interest to those considering alternative cluster treatments. The videos of specific presentations are going to be available on You Tube and searching MAPS with the presenters name should guide you to the source. The program should be on the MAPS sight. No claims are made of unerring accuracy, lack of bias in interpretation or completeness. My best is all I have to offer. Stanislav Grof opened the lectures and included his work on breathing techniques to produce a psychedelic state. He is a well loved researcher in LSD psychotherapy prior to making LSD illegal and developed these techniques in the void left by draconian legislation. Many workshops have evolved based on his techniques and components are reminiscent of what Batch has suggested. There was much about herbal roots from around the world I don't want to spell but since we have limited input on things other than LSD and psilocybin I leave their usefulness to inevitable discussions. MDMA got lots of attention but no data for us. Sounds like great stuff for the right application. These will eventually crop up in one form or another. I will also reserve judgement on the large number of folks bemoaning their migraine experiences to Bob. The guy suggesting a stem cell transplant fixed his clusters will go on the shelf for now, Heaven points for Bob. Psilocybin was discussed in a significant number of presentations. The context was in death and dying, addiction, PTSD and pharmacology but the message was loud, clear and repeatable. The use of psilocybin in these context is safe, effective and long lasting. This included measures of anxiety, mystical experiences, squashing suicidal ideation and overall improvement in sense of self. Trait measures of forgiveness, life meaning and faith maturity are amplified in a sustained way. Psilocybin was given in a safe set and setting and included psychotherapy and counseling. Look up work at Johns Hopkins and NYU. Neuroimaging studies report pretty consistent findings. There is the well known interconnection throughout the brain on psilocybin. Decreased blood flow is seen in the Cingular nucleus. This results in slowing or blocking the brains inhibition of data inflow allowing for freer communication. There is desynchronization of the posterior Cingular nucleus and decreased inhibition. Basically psilocybin is believed to inhibit the inhibitor and allow free flow of information. Interestingly the brains Default Mode Network (DMN) decreases with immediate dosing but in 24 hours and then increases in a sustained way for a long time. Similar changes are seen in experienced 1000+ hour meditators. Meditation showed similar findings to a dose of psilocybin 25 mg / 70 kg. The posterior hypothalamus is activated by psilocybin and this activity can be affected by hormones, genetics and inflammation. UW- Madison presented participants in a pharmacokinetic study looking at dose relationships and physiologic safety. It was a Phase I trial to establish safety parameters. It was very safe at all doses. There were 3 dose regimens given a month apart and dosing was based on body weight. 0.3-0.6 mg/kg body weight. So if you weigh 154 lbs your largest dose was 42 mg. That is equal to 6.7-8.4 grams dried shrooms. (4 grams dried is equal to 20-25 mg psilocybin). No adverse physiological events and the participants report sedate to wild experiences. They sought each other out after the study and remain bonded. The question of dosing by body weight or standardized dosing was addressed. Study's showed no difference in outcome measures related to body weight. The experiences where all over the place irrespective of dose and body weight. Seems you get what you need? Looking at bad experiences on meds (bad trip) demonstrated guidance through the event in a safe set and setting was effective. Most related the experience to be profound even if seemed negative to sitters while occurring. Good experiences and bad experiences were latter judged helpful. Look up the Zendo project on psychedelic harm reduction and study the tenants of safe place, talk through not down, sitting not guiding and difficult is not bad. The biggest impression was all the 70-80+ year old wandering around with extensive experience in psilocybin and LSD use. Of course these represent folks who see a profound benefit of these substances in their lives. They are healthy, intelligent productive folks with mind blowing exposure to these substances. A pretty good real life testament to safety.
  4. 7 points
    BostonHeadacheDoc

    Remission Over

    Hi blueblueblue, So how is the migraine coming along? - only kidding! Sorry to hear of your troubles and welcome to the group. There is an extremely active closed discussion group on a certain other social media platform that you will be told about, featuring many of the Clusterbusters group members. You need to attend the annual Clusterbusters meeting in Denver, middle of Sept 2018. I am happy to facilitate an early office visit on your request-if you are interested message me with your contact info, I have not been on here in a while but will keep an eye out now. Regards, Brian E McGeeney, MD, MPH, MBA Neurology Dept, Boston University School of Medicine and Boston Medical Center.
  5. 6 points
    Ricardo

    Dr Elliot Shevel

    The thing is Mr. Shevel, the published studies that you are talking about include a total of one on cluster headaches and that study has a fail rate of 20%. That's IF you actually got relief for these people by your surgery and it's not, to use your own words-- "In the treatment of CH, the possibility must always be borne in mind that the cluster stopped spontaneously, not because of the intervention, but because of the natural progression of the disease." (or because you gave them the right drugs for anesthesia which knocked them out of cycle, just like many of the meds that we use for clusterbusting) The 80% success rate in this story gets a lot of press from you and your business, but very little attention gets paid to the failures. What are their stories like? Because on this site we have heard from more than one of them and the stories have been pretty horrific. In case Mr. Shevel has not taken the time to read through the rest of this post here are the reports- "August 29, 2015 My niece went back to JoBerg and stayed there for three weeks. During that time she had 3 procedures done but unfortunately it didnt work. When she arrived home in Australia she was worse than ever and it has been devastating. " "My sister went twice as she really believes Mr Shevel could cure her. Both times her wounds got badly infected and the cuts in front of her ears looks horrible as the stitches were not done properly." "I have been through 2 operations, and sadly my headaches is not even 1% better. As a matter of fact, where he has cut hurts tremendously. AND I AM R70 000 South African Rand poorer. He promised me he would make it better. > My husband took out a second mortgage on our home. I have also found out that he has lied to me. My jaw could not open after the first operation, and he said he never had this problem... Just to find out someone else on this forum had the same problem. I went to the headache clinic specifically asking them to help me with medication overuse headaches, and they just wanted to operate. I was already taken morphine on a regular basis, I WAS DESPERATE. I THINK THE HEADACHE CLINIC IS THE LAST PLACE TO VISIT IN SOUTH AFRICA IF YOU ARE SUFFERING FROM CH. IN my opinion they are money hungry sharks, which thrive on the desperate and vulnerable." After every operation, I got infection. They do not sterilize where they cut, that's why infection happens so frequently. I know they do not sterilize, because the tears on my cheeks where clearly visible through my make-up. The day when they did the tests I have given them a list of all the meds and ASKED HIM ON SEVERAL OCCASIONS.... WHAT ABOUT THE DETOX. Seriously, if I asked him 5 times, I am not joking. Every time, he told me that so how, after the operations, there IS ZERO DETOX effects. I had the WORST DETOX in Desember after the first operation. Sad, since, my original reason I went there was for them to PLEASE get me off of all the meds!!!! For goodness sake, as a clinic specializing in headaches, the effect of rebound headaches should be so clear!!! Again, they are money hungry sharks!!!" Even if you get relief from your clusters, if your clinic is so messed up that you die of a sepsis infection because your wounds weren't treated right who cares? Or how about some really great facial scarring with a side of bankruptcy and still have no relief from your clusters? It's true that it is hard as hell to find a doctor that knows what they are talking about and when it comes to cluster headache there really is only one way to prove that you are actually basing your actions on facts, not opinions. That's to pass the exam the United Council for Neurological Sub specialties has for headache medicine. https://www.ucns.org/ McGeeney has passed this, have you? When you say "If anyone is misguided, according to the medical literature, then it is Boston Headache Doc. Most “headache gurus” have very little real knowledge of the origins of cluster pain. They offer opinions with emotive phrases to scare patients and when in fact they are dooming them to a life of misery when help is actually available and scientifically substantiated." I would say you have this quite backwords. McGeeney has proven time and time again to all of us here on this site that he has real answers that can and have helped us. He's proven he knows what he is talking about and he has done all of this essentially for free, never once trying to make a buck off of anyone. I am pretty sure he has not actually left anyone without the option of eating solid food anymore either, which I am pretty sure is something you can not say. The only thing that you have proven is that you are willing to disparage people you know nothing about in order to save face from the mutilations and pain that you have caused in your effort to fill your bank account. Final note--On this board it is generally frowned upon when people try to sell things to other members. Especially when the price tag is around $50,000 and the only thing you are likely to get out of it is the knowledge that sometimes things actually can get worse than just having clusters. By the way, thanks! I'm giving a conference talk at the biggest psychedelics conference this world has ever seen in about a week and I was looking for some more material for my talk. The rogue "Dr's" that are out there trying to make big bucks off of desperate people by the old slice and dice will make for a good attention getter. -Ricardo
  6. 6 points
    Leonhart

    Low Histamine diet worked for me!

    Histamine Restricted Diet "the list" Allowed/Restricted Foods This diet excludes all: foods with naturally high levels of histamine fermented food artificial food coloring, especially tartrazine Benzoates including food sources of benzoates, benzoic acid and sodium benzoate Butylated hydroxyanisole (BHA) and butylated hydoxytoluene (BHT) Milk and Dairy Foods Allowed Plain milk Ricotta cheese Foods Restricted All prepared dairy products made with restricted ingredients All cheese All yogurt Buttermilk Breads and Cereals Foods Allowed All plain grains Plain oats and oatmeal Plain cream of wheat Puffed rice and wheat Foods Restricted Anise Artificial colors Artificial flavors Bleached flour Cheese Chocolate Cinnamon Cloves Cocoa Margarine Preservatives Restricted fruits Some jams, jellies Any food made with or cooked in oils with hydrolyzed lecithin, BHA, BHT Commercial pie, pastry, and fillings Baking mixes Dry dessert mixes Vegetables Foods Allowed All pure fresh and frozen vegetables and juices except those listed Foods Restricted Pumpkin Sauerkraut Spinach Tomato and all tomato products All vegetables prepared with restricted ingredients Fruits Foods Allowed Fruits Apple Banana Cantaloupe (rock melon) Figs Grapefruit Grapes Honeydew Kiwi Lemon Lime Mango Pear Rhubarb Watermelon Fruit dishes made with allowed ingredients Foods Restricted Apricot Cherry Cranberry Currant Date Loganberry Nectarine Orange Papaya (pawpaw) Peach Pineapple Prunes Plums Raisins Raspberries Strawberries Fruit dishes, jams, juices made with restricted ingredients Meat, poultry and fish Foods Allowed All pure, freshly cooked meat or poultry Foods Restricted All fish and shellfish All processed meats All leftover cooked meats Eggs Foods Allowed All plain, cooked egg Foods Restricted All prepared with restricted ingredients Raw egg white (as in some eggnog, hollandaise sauce, milkshake) Legumes Foods Allowed All plain legumes except those listed Pure peanut butter Foods Restricted Soy beans Red beans Nuts and seeds Foods allowed All plain nuts and seedsFoods restricted All with restricted ingredients Fats and oils Foods allowed Pure butter Pure vegetable oil Homemade salad dressings with allowed ingredients Lard and meat drippings Homemade gravies Foods restricted All fats and oils with color and/or preservatives Hydrolyzed lecithin Margarine Prepared salad dressings with restricted ingredients Prepared gravies Spices and Herbs Foods allowed All fresh, frozen or dried herbs and spices except those listed Foods restricted Anise Cinnamon Cloves Curry powder Hot paprika Nutmeg Seasoning packets with restricted ingredients Foods labeled “with spices†Sweeteners Foods allowed Sugar Honey Molasses Maple syrup Corn syrup Icing sugar Pure jams, jellies, marmalades, conserves made with allowed ingredients Plain artificial sweeteners Homemade sweets with allowed ingredients Foods restricted Flavored syrups Prepared dessert fillings Prepared icings, frostings Spreads with restricted ingredients Cake decorations Confectionary Commercial candies Miscellaneous Food allowed Baking powder Baking soda Cream of tartar Plain gelatin Homemade relishes with allowed ingredients Foods restricted All chocolate and cocoa Flavored gelatin Mincemeat Prepared relishes and olives Soy sauce Miso Commercial ketchup Gherkin pickles Most commercial salad dressing Beverages Food allowed Plain milk Pure juices of allowed fruits and vegetables Plain and carbonated mineral water Coffee Alcohol: plain vodka, gin, white rum Foods restricted Flavored milks Fruit juices and cocktails made with restricted ingredients All other carbonated drinks All tea All drinks with “flavor†or “spices†Beer Wine Cider All other alcoholic beverages
  7. 5 points
    Psiloscribe

    Patient Registry

    Hello everyone!! Have you registered on the Clusterbusters “Patient Registry” yet? Over the years, Clusterbusters has built the largest worldwide patient database in the world. Become a member of the database and possibly a participant in a research project that will lead to better treatments and eventually a part of the cure. By completing this form, you are not registering for a specific study that is underway or that will start in the future. You are not agreeing to become a participant in anything. You are only agreeing to the possibility of being contacted in the future to ask for your participation. Research studies sometimes only require your participation from home. It may only require completing surveys or questionnaires. Some of you may have recently done this for the work underway at Yale University. Some clinical studies require your participation in other ways. Some may include travel. Each study has different requirements. Choice of participation is yours and that of the study investigators and does not involve Clusterbusters in any part of the process. This registry is open for everyone. There are no requirements of past, present or future choice of treatments or any particular cluster headache or human traits. People from all walks of life, all ages and every description, suffer from cluster headaches. We are presently involved in several ongoing research projects as well as several others that are in the long process of approval. As we are involved in research on an international basis, this survey is open to everyone worldwide. We encourage anyone with cluster headaches to respond and help inform others of its existence. As many studies focus on certain segments of the cluster population, episodics vs. chronics as an example, you may not be contacted for every study that is underway. Be a part of a better future for cluster headache patients and participate in our registry. As you will see again on the forms themselves, all of this information is and will remain completely private. The survey, all data and any and all future distribution is administered by the Clusterbuster’s Administrative panel and members of its medical advisory board. Information and people will move the research forward. Please be a part of this. Just the completion of the questions on this short survey, by the thousands that are included, helps gather important information. Please share this with others you may know that suffer from clusters. If you know of anyone that does not have access to a computer, contact us at info@clusterbusters.org and we will mail a written copy for completion and inclusion. To participate, please go to this link: http://tinyurl.com/n9ou73a Some of the questions may give you an idea of some of the projects we are currently working on and there will also be more information available at this years conference. Even if you can't make the conference, we'd love to have everyone here on the registry. Thank you Bob Wold Clusterbusters
  8. 5 points
    jon019

    5 year cycle

    Hi littlecush...welcome...sorry you gotta be here...but tis the RIGHT place! For many years I was DESPERATE to "explain" to non clusterheads what it was like. Even best of friends, coworkers and family members would roll their eyes and "yup" me. There is even a marvelous letter penned by Simon explaining what the ailment is...quite thorough and touching...and I even gave up giving that to folks....it just didn't register. The ONLY person...other than other clusterheads and ONE neurologist..... who ever got it..... was a coworker who had a friend with CH he used to drive to the ER. Anymore I just don't give a damn....got more important things to concentrate on....nobody hears nothing but positive from me. Getting hit is a bitch....in between hits? life is wonderful. Mind game I guess............ Re work...I get it...used to worry obsessively about how I "appeared". This kind of depends on the type of work and the kind of folks you work with and their regard...or not.... for you...beyond your "ailment" ... YMMV. I just worked my ass off in between hits or inability to function: accepted extra work, extra hrs, extra responsibility, extra anything. I know this sounds glib....and it is the hardest thing to do and NOT always possible....but I figured I had no choice. Additionally, the stress of work was a preventative...until I got home...THEN got BLASTED..... What made the above...and life in general POSSIBLE was OXYGEN!!!!!! I carried an e-tank with me everywhere I went...with a clustermask purchased at ch.com (my favorite possession). I hit that baby with an energy drink appetizer at first sign of hit.....and back to work. I sure hope you got access to O2 ...and with proper technique you will be transformed.................................... Night time hits are particularly cruel...pain, sleeploss, aggravation, etc..... am quoting myself from another post below: When episodic and in cycle I used to get BLASTED at night...8 times...once per hour..so I may have compensated by becoming a light sleeper. Anyway, I would set up my O2 buddy right next to me...turn the dial to 0 and crank the valve open. The instant I was awakened I would slam the mask on (non rebreather purchased from ch.com...my FAVORITE possession!) and turn the dial up all the way (easier than trying to find the valve handle and fumbling in the dark). For some reason...also I know not why...these hits were more subject to successful O2 abort than day time hits (perhaps learning to wake before the hit got too bad, dunno).....5 mins or so and I could go back to sleep. Ya gotta work the mental aspect too. YMMV...this is what worked for me: Early on I used to get all agitated... screaming, thrashing, cursing, pacing, sweating, ADRENALINE by the bucket full. Learned the HARD way this was getting me NOWHERE...for any hit at ANY time...life got a whole better after I figured that out. Next I realized besides remaining calm I needed to remain "not fully awake" which allowed me to go back to sleep nearly immediately. Left the lights off, kept my eyes closed, stayed on the edge of the bed with minimal movement, and most importantly concentrated on BREATHING only...no thoughts of anything else....'breath in-breath out" rinse and repeat.... Finally....the next morning...on the way to work....rather than cursing the bad luck of constantly interrupted sleep....I rejoiced that "HEY...I got 6 hours last night" (which was WAY better than before)......it got to be a game that me and the beast played. Attitude...it's all in the attitude... CH as well as life................ Best Jon
  9. 5 points
    Jay176

    Dr Elliot Shevel

    I don't like speaking ill of someone but I went to see Dr Shevel in 2013 and left the consultation in tears. After suffering with clusters for many years, I stumbled across Dr Shevel on my local radio talking about his surgery and hope sprang up inside of me. I contacted his clinic and waited a few weeks till he came to my city. When I went to see him, he asked me what was wrong and I told him about my history of clusters. He seemed tired and uninterested and his answer was that I needed surgery and that it would cost round about R70 000 in total (That is our local currency) which medical aid does not even cover. No tests, no checking me out, nothing. I told him that I wasn't on medical aid and my family couldn't afford that type of money and he said a plan could be made. I will be emailed a quote. As I was in a cycle at the time, I asked him for a script for the medication that my neurologist normally gives me and after I had told him, he said he needed to read up on Verapamil and will email the script to me. I saw him on the Friday and only received the scripts on the Monday. For someone that 'knows' the pain that we go through, there wasn't much urgency to get the script to me and I suffered with many beasts that weekend. (Still have the emails btw) Anyways, I received the quote which I declined and promptly received a call from the clinic offering a smaller surgery at a cheaper cost (About half the price). Apparently they really wanted to help me. I declined this and went to see my old neurologist. When I told him about the surgery, he said that I'm not the only person that has been fooled. Dr Shevel - Your procedure may or may not work but I will never forget the consultation that I had with you. Yes, you may help thousands of people but you didn't help me and your lack of empathy was soul crushing. I am so grateful to people on sites like this that look out for one another and can identify with the pain that we all suffer with. Verapamil has helped me keep my clusters in control and this past week I went for my Vitamin D3 blood test for the first time and my doctor found that my level is very low. Today I started the D3 regimen and that's all thanks to sites like this.
  10. 5 points
    zanycheff

    Please help me

    Hi Andrew As Ch father states busting or d3 may help but first a correct diagnosis is essential ,as you are in the Uk like myself can i ask a few questions that may help us help you 1.has a headache specialist /neurologist diagnosed you? 2.have you tried oxygen ? (its quite possible you now live in an area where the demand valve system is available on prescription ) 3.if no to the two above has your GP referred you to a headache specialist neurologist ? pm or answer here if you wish zany
  11. 5 points
    ThatHurtsMyHead

    Please help me

    Andrew, mm (and truffles), LSD and LSA definitely help. They've been the only thing that's given many of us our lives back. I was chronic and have been taking regular doses for over 7 years now. I've been pain free a significant amount of that time. I believe truffles are available where you live. Please read the files section on this message board. There's a specific process you need to follow. 1) detox from all triptamine type drugs (Imitrex, maxalt etc. etc). 2) Wait 5 days from he start of detox for your first dose. Take enough for a "threshold" dose. Meaning you get some trip out of it. Most of us find that the stronger the trip the better the medicine works on our CH. 3) You'll likely get what's called "slap backs" after your first dose. Don't worry, the attacks will go down after the 2nd and 3rd doses. Take each dose 5 days apart (not 4, not 6). For some reason 5 days is the sweet spot for something in our brain to reset. After the 2nd dose you should notice the attacks being milder and slightly further apart. After the 3rd dose most people are pain free, but a lot of people also need another dose. It all just depends on your body chemistry, and the strength of the mm. post questions. (but please read the busting files section). :) J
  12. 5 points
    harry65

    new from south london

    hello all,my storey is 2 yrs ago i started getting a pain in my right eye and the side of my face after drinking alcohol and only when i had a drink this would happen didnt know what was happening to me went to docs and he said i had a sinus infection and put me on antiboitics which didnt help.then i started getting the pain more and more with out drinking alcohol i was getting 3 attacks a day all at the same time,so went to docs again who booked me in for mri scan and to see a neurology team,where i was told i had cluster head aches.i am allso a recovering addict and was on methodone for this and allso was on anti depressents citalipan i was told that these head aches was maybe caused by long term methodone use and maybe its a good idea to get off the methodone,i was perscribed verpmil 80 mg twice a day and sumartripan in jections,the verpmil seemed to clear them for about 2 weeks then i was back to having 3 a day again so i started using sumartipan injections what used to work but the pain used get worse,i would take the injection and have 15 mins of screaming pain and the pain would suddenly stop,but i would have a horrible migran after a hr of having the injection and because you can only have 2 injections in 24 hrs i was having to ride 1 of my clusters allso the injections gave me horrible side affects after a year of having these attacks and using the sumartripan injections and having these clusters everyday and allso trying to detox on the methodone,i was in despair and became very depressed i ended up using drugs again relasping but the herion didnt seem to help after a while,so i got back on methodne and the clusters got worse i was having 6 attacks a day,i wanted to end my days on this planet i was on the floor with these attacks started in my right eye and then it was like someone was hitting with a hammer on my head i was in tears with these,this went on for a 18 months i had 3 five day breaks in 18 months they had got worse and worse.anyway a friend of mine was looking on the internet and sent me a link about using majic mushrooms for clusterhead aches,thats where i found clusterbusters and found the info on the majic mushrooms,i have used lsd and majic mushrooms before when i was younger so new a bit about them and where to find them,so in october i found a feild full of them and picked a load i was still on a low dose of methodone and was still using ssi antidepressants and new that these drugs didnt play well together so i kept the mushrooms untill i detoxed,this took me up to april 2016 i had come off the ssi and was on a very low dose of methdone but i was still gettin attacks everyday and went back to the neurology team where they put me on steriods and gave me oxygen the oxygen used to work a bit but not well,but the steriods seemed to work for 3 weeks the head became less and not as painfull,so in this time i decided to come off the methodone and stop using the sumartripan,so i could use the mm and try the busting,after 3 weeks of total detox i noticed the head aches where not as bad and the oxygen seemed to work better the headaches seemed to ease,so i decided to take the first dose of mushrooms which was six weeks ago i took 1.5 grams for which i did trip i think the mushrooms in england are stronger than in the states because i was off me head,but i noticed a tingling feeling where my clusters were while on mm,the next few days after they head aches had eased and were not as painfull,so 5 days later i took another dose of half a gram which i didnt trip and after that dose they eased even more,then in five days again i took another dose and they are much much better i havent had to use the oxygen as i just every now and then i get a slight pain in the right eye but it go,s,some times i get a slight head ache but it is handleble allso ive noticed my depression has eased from when i took mushrooms,i am now totally clean from all drugs for the first time in 20 yrs and cluster free.all those migrane drugs they had me on i think made them worse.i just want to say thank you to this site you have saved my life.thanks bob.it wasnt the docs that helped me it was clusterbusters.
  13. 4 points
    Dylan the potato

    Having pain downplayed

    So im a tad nervous. I've been diagnosed for a little while and i haven't yet actually interacted with anyone else who deals with this before and i thought here would obviously be the best place to get other sufferers perspectives. I'm 20 years old though ive been dealing with it since i was 18. Before my diagnosis i didn't even know what CH is and..right now im still adjusting to all this. I've had a tendency to have trouble interacting with people who don't have CH and actually have become a bit fearful of telling others about it due to some actually getting angry with me when i describe the pain I've been dealing with..like they're appalled with how much im "blowing it out of proportion." I've had a lot of negative responses from people i try to reach out. Most people try to avoid me so they don't have to hear about it and i'm not trying to make them uncomfortable i just want a little support. I hate that everyone sees me as whiny and overdramatic now. Any way..im sorry for all the off topic rambling about my current state of mind..i kinda was just curious to hear some other people's experiences with having their pain downplayed or how others have responded to what we suffer with here,and just vent here a little bit, and if maybe there's any tips you have on interacting with others that'd really help..im just kinda confused and lost right now
  14. 4 points
    Welcome to the community Melissa....sorry you needed to join us! Your last post does indeed sound like classic clusters I'm sad to say! Your priorities should be getting a confirmed diagnosis.....with the diagnosis, if the doc is worth a crap, you should be able to get a script for high flow oxygen, and read up on the vitamin D3 regimen in the files. Dallas Denny
  15. 4 points
    Hi Melissa, I'm sorry this is happening to you. are your headaches spread out over your head? Or are they concentrated in one area? Where are they? what does the pain feel like, specifically? Does your nose run or your eye tear up on the side of the pain? Do your headaches tend to happen at the same time of day? We are not doctors and cannot diagnose you with cluster headaches; however, there are some tell-tale signs to look for, which is why I asked you those questions. To get a diagnosis of cluster headaches, you will need to see a neurologist. Preferably one with a headache specialty. The ClusterBusters and ClusterHeadaches.com maintain a list of medical providers that are familiar with CH. In the meantime, we have some techniques we use around here that may help you with the pain: 1) keep a large glass of ice water on you at all times with a straw and buy some 5 hour energy drinks. When you feel a headache coming on, IMMEDIATELY, drink one 5 hour energy in one go, then suck the ice water into the back of your throat on the roof of your mouth on the same side as the headache. This can sometimes abort a cluster headache attack (but it is not a guarantee). Keep sucking on that water until the headache feeling passes. If it comes back, keep sucking on it. Watch your caffeine intake when using this method 2) there is a tendon under your ear lobe on your neck. Sometimes you can ease the pain by pressing on this tendon on the CH side hard (it will hurt), and holding the pressure for a slow count of 30. 3) my go-to in a CH attack is to run an extremely hot shower. I sit in the shower, in the dark, and run the piping hot water right on my face. This sometimes eases the pain for 45 seconds at a time. It's not a solution, but can help weather the storm. For a long attack, it gets old though. Some folks around here prefer ice. There are many other treatment options available: if you have cluster headaches, the standard medical practice is to use: 1) Imitrex to abort acute attacks. 2) Verapamil long term to disrupt your cycle. 3) Steroids short-term to give your body a jolt and hopefully shake up the cycle. A doctor can tell you more about them if you like. More than anything else, the use of oxygen to abort attacks is indicated by the medical literature. You can find more information about oxygen in the ClusterBuster Files section of the forum. While you are there, read up on the Vitamin D method as well. Last, there is the ClusterBuster method, which involves taking certain psychedelic substances to stop a cluster headache cycle and prevent future ones. There are many knowledgeable people around here who can answer your questions about that should you choose it. finally, start keeping a diary of your headaches. What time are they? How bad are they? Where are they on your head? How long did they last? What made them feel better? This is important to help you plan what to do about them. again, I'm sorry this is happening to you, and I hope you find some relief soon. People here will answer your questions and you have many treatment options available. Stay positive !!!!
  16. 4 points
    fella1234

    Neck muscle tension connection?

    Before I knew I had CH (when I thought I just had a curse), I used massage extensively for treatment. The massage therapist I saw at the time was pretty physiologically knowledgeable and said there's a muscle group that runs from behind your shoulder blade, up the side of your neck and across most of your face on the corresponding side and mine was tight as a drum on my right (cluster) side . He told me to lay on my back and roll a lacrosse or tennis ball under my back until it hit just between my spine and shoulder blade and lay the muscle on it then give a slow count of 30. It has helped me during clusters from time to time. This cycle, I was reading another post on these boards that identified a muscle between your jaw and ear that is taut during an attack and to push on this muscle until it releases. I have done this a couple times for attacks and shadows; it has helped quite a bit. I have even ended an attack early using this technique. Since my busts have shown success, I've continued to use it for shadows.
  17. 4 points
    spiny

    MASSIVE APPOLOGY

    You did great Jeff. No sweat. Everyone has a life beyond the forum at this time of year I think. Yes, killed the 'dark web' jerk Jon. But the cascade of events following that could not be helped. Jeff donates his time and energy to keep the board up and running. Software is not always logical. That Is why I just ban and contact Jeff!! I am very sorry for the fallout. Also very glad that we have Jeff on board to keep this thing up and running!!!
  18. 4 points
    CHfather

    Gammacore/electrocore

    I don't know about the cost. You can see clinical trial results here: https://gammacore.us/clinical-studies/ It doesn't look like a very good alternative to oxygen to me, unless O2 doesn't work for you (but O2 works for almost everyone when set up and used properly). Portability is of course a significant advantage over O2. Useless for chronic CH, it appears. I remember that one study suggested that it had some preventive effect regarding subsequent attacks. If that's true, it would be an advantage over oxygen. I always feel like I should add this to any discussion of Gammacore: In the clinical trials, some people got placebos (fake devices). That is a heck of a commitment, to agree that you might be enduring attacks with something that won't help you at all. My appreciation and admiration for the people who volunteered to do that is enormous.
  19. 4 points
    MoxieGirl

    Episodic to Chronic - advice

    HI Anita, and gang. I've always been chronic, and to be honest, being episodic used to scare me. Sort of along the lines of what Jon said above. At least when I was getting hit all the time, my life was prepared for it. I always said, still do actually, life is what happens between headaches. Although these days, it's mostly chronic migraines and chronic daily headaches. Cluster Attacks, not so much any more. In 2011 I was getting up to 5 vicious attacks a day, every 2-3 days for an entire year. That was about my worst year with Clusters since they started in Jan 2007 (add on top of that my migraines and daily headaches, of course). I had gone through, and maxed out every drug the doctors could give me over the years, and they just got worse and worse and worse. If I had 3 days attack free, I was amazed. And when they hit, it was HELL on Steroids! Nov 2011 I had my calendar in front of me, and was selecting a date on which to leave planet Earth. I had decided to give myself one more year to find a solution, and then good bye. I had been told about this board in 2010, and read through some of the pages. But to be honest, LSD scared me. I've never done anything harder than pot, and that was when I was very young. As a result, I had always held this option as a last resort. That day when I was picking a date to die, I knew I had reached my last resort. So, I joined the forum, and was instantly greeted by the warmest and nicest people on the planet. You've met them already. I began coming off of Topomax (Topiramate) as quickly as possible, to quickly if I'm honest, and I spent all my free time reading these pages. By the time I was clear of the doctor prescribed "waste of time", I had a small amount of shrooms and some RC Seeds. After my very first dose, I knew I was onto a solution. My next attack after that dose was COMPLETELY different than anything I had ever experienced before. I knew the routine, I knew the schedule. But this attack after busting, it didn't follow the schedule, or the routine. My routine was: Sudden attack, like being hit in the face with a baseball bat. 30-60 minutes of extreme pain, usually sitting on my bed rocking back and forth with snot dripping down my face, followed by 20-30 minutes of uncontrollable tears and shaking, as if someone where rattling my bones. But, after my first bust, there was NO post traumatic attack. No crying, no shaking. I had a short, 20 minute attack or so, and then got up and dusted it off and got on with things like it was no big deal. The attack was sharper, and 'clearer' than any other. It was like crisp, cold, crystal clear water instead of the heavy, oppressive attacks I normally got. It took me the better part of a year of busting on and off to make a huge difference, but a difference it made. Year 2, I only busted occasionally, a few weeks at a time 3-4 times a year. Two years ago I started micro-dosing, which is amazing! It involves taking a small dose (0.20 grams or less) every day with no tripping affect. But, I don't even do that very often now. In fact, all my busting material is going to my best friend who has ALS, she needs it more than me. Do I still get attacks? Yes, I had one yesterday in fact. It lasted about 30 seconds. Took my breath away and brought a few tears to my eyes, but that was it. I get 1 - 2 attacks a month now, and consider anything over 15 minutes a shockingly long attack! In fact, 5 minutes is unusual. I'm not as scared of being episodic now as I once was, simply because my attacks are not what they once were. I'd be concerned though that if they stopped for a year or two, they might come back with a vengeance. But I have a solution now. I know how to stop them, and I have no plans of leaving this planet anytime soon. MG
  20. 4 points
    sierra

    First time on this board

    Hello Jacob, most of the people on this site have been where you are now. In order to get the best advice/help please tell us about your back ground with treatment, a lot of people think they have tried 'everything' before coming here and that is not always the case. Do you have oxygen and know how to use it properly? if not please read up on it and check the files on this site. Are you currently taking any Dr. prescribed meds ? if so, please let us know what they are. Have you been diagnosed with cluster headaches by a doctor? There is nobody here that can 'cure' cluster headaches, but there are plenty of smart people who can teach you how to manage this awful disease and hopefully help get you some pain free time. I found this site about 4 years ago and it changed my life. Please tell us what you have tried, and what you are doing currently to try and manage the pain, and we will try and help you.
  21. 4 points
    Dallas Denny

    Dr Elliot Shevel

    So, we either have the latest incarnation of Danny Boy here or Quack Shevel in the flesh......either way, FECK YOU and go away!!
  22. 4 points
    Dallas Denny

    Please help me

    Welcome Andrew! With respect to oxygen, some folks in the UK experience problems sourcing O2 thru ya'lls NHS....however, unless there are underlying conditions that contraindicate its use, it is recognized as a viable treatment in the UK....if you have any problems of that nature, contact OUCH UK and they will provide assistance with the HOOF form. Where are you located in the UK? I know several clusterheads in England and Scotland....a friend in Scotland hosts a couple meet n greet events every year.....nothing like meeting someone who "gets it" and understands exactly what you deal with! Dallas Denny
  23. 4 points
    Your response is not uncommon. If you think about it you are a torture victim. For the perpetrator of torture part of the strategy is making the victim suffer at the anticipation of pain. Classically when in cycle the pain comes in a somewhat predictable pattern so you become afraid to sleep or if you are expecting an attack you melt down as the time approaches. These are normal responses and I personally have had what you describe happen ove the years. It becomes a real problem when things threaten to interfere with work or responsibilities. I believe the best way to handle this is to actively manage the condition. What I mean is control as much as you can (O2, be prepared with meds both abortive and preventative) develop a systematic strategy for dealing with auras,shadows and attacks. Have a strategy worked out for escalating levels of pain so you approach it in a predefined fashion. For example I start with O2 for 12 minutes, add caffeine 250 mg if that doesn't help and as a last resort inject 2 mg imitrex if still kip 8 or above. When things don't work I have a mantra of telling myself to stay strong and there is more good than suffering most of the time. I refuse to let the beast win and know the pain wont kill me and the pain will end. When in cycle I know an oral triptan will hold off an attack if I have critical things to get done so I will take one prophylactic. THe literature says it doesn't work but my experience is that it does work. Thee is a price though because if you use too much triptan the cycle can seemingly be extended and some attacks seem worse. Steroids can help to bust a cycle but there are side effects. I hate them but they have saved me a couple of times. With the help of this board and many kind magnanimous souls I think the D3 regimen is safe and effective and should be tried following directions closely. 5-MEO-DALT has shown much promise andthough not for everyone, MM\LSD can be a godsend. All the info in Bob's handbook can help and should be explored in a systematic fashion. In the end what I am trying to express is use your knowledge and your strength of will to put the beast in a compartment, don't let it rule your life and reign terror on you. It will win sometimes but you csn find ways to control it and live normally most of the time. Learning to deal with it will make you the strongest person you know.
  24. 4 points
    mit12

    Welding Oxygen

    I woke up at 2:00 this morning with an CH attack, I used my oxygen setup and a aborted the headache! started at 25lpm and reduced it to 8lpm after the headache went away for the post headache time. When my doctor tried oxygen on my headache it did not work, high flow did the trick. Thanks CHfather for pushing me into trying oxygen again with the proper setup.
  25. 4 points
    MoxieGirl

    My literary contribution

    I had posted this back in April and it didn't get a lot of comment. Not that I'm craving your adoration or anything like that. But am curious what people think. Should I not give up my day job? MG Longing to Escape.. Today is like any other Yesterday, today & tomorrow, all blur together Day in and day out, everyday the same I wish I could escape this game. The Beast visits most when least expected My face drains of colour, and I feel quite infected Into one eyeball, always just the one, the Demon comes Blinding and piercing like I’ve been poked hard, with a thumb My eye seems to freeze as if turned to ice And the pressure builds as if placed in a vice My nose starts to run and my eye begins to tear As my body is gripped with fear Red hot nails, they pierce and twist in my eye The burning is such that I wish to die Knives cut and rip through my skull As I pace the room and bang my head on the wall I can feel my cranium crack As all my world turns to black For one hour or maybe two How long it really lasts, I dare not tell you For all that time, I pace and I walk Sat on my bed, back and forth I rock I suck on oxygen and drink caffeine I can be quite snappy and downright mean But eventually the nails are removed, as are the blades And the terror within, all but fades I am drained, I am spent My energy is at zero percent I need water, I need food But instead, I lay here unable to move I take one deep breath, and maybe two Before the next sensations ensue This is when the true crying begins As my body shakes from my bones to my skin I am racked with hot convulsions in wave upon wave To this terror I am now but a slave Eventually, even this fades to a whimper As my body begins to shiver Wrapped in a blanket I raise myself up Finally sloshing some water into a cup Today was like any other Yesterday, today & tomorrow, they all blur together Day in and day out, everyday the same Oh, how I wish I could escape this pain.
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