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  1. Hi all! I'm considering starting a new local/regional support group for Illinois since we have a conference every other year in Chicago. Any ideas on days/times that would be good for attendance? Would a 6pm CT or 7pm CT on a weekday work well or a weekend day/time? I'd like to be able to advertise something like the 2nd Thursday of the month at 7pm type of time so it's consistent. Open to ideas and I'll lead it until someone else feels comfortable and I will always be available for support. Just thought this might be helpful and if there are people who have an idea of another location that could use a virtual/zoom support group, let me know. We have California and Texas and both have been really amazing groups.
    2 points
  2. Hey thanks for the help. I actually am able to have vials RX and dose myself. Also have a demand valve setup. Appreciate the links. Mike
    2 points
  3. I see the kitty in your profile pic now @Craigo
    1 point
  4. Just as an aside to my post above, I have been using AI lately for complicated work projects with amazing results. If you haven't messed with AI yet, I'd suggest just going to ChatGPT.com and using the free version. I had pasted an image below, but it doesn't seem to show up. I asked ChatCPT to take a photo of me that I supplied and dress it up for my avatar, which you can see, This is completely trivial but an example of fun you can have. A more complex example, I asked it to give me a list of all Chicago Public Library branches located within a state legislative district (state house or state senate) where the legislator has a Hispanic surname. There are about 80 branch libraries and about that number of total state representatives, so you might imagine how long it could take to do this the old-fashioned way. With one more query, I had an answer in less than three minutes (about 90% correct). Or, if you ask about the best ways to treat CH, or the pluses and minuses of using psychedelics to treat CH, you'll get a perfectly good answer in a few seconds.
    1 point
  5. I don't encourage anyone to jump on the megadose experimentation unless you have a solid idea of what you are doing. I do megadose on what is safe. My baseline is an energy revitalization powder that contains over 35 vitamins, minerals, even the BCAA’s/Protein. I use a potassium gluconate powder to reach about 60% of the RDA, the rest is met by diet. For protein, the RDA of 0.32 per pound is grossly understated; I subscribe to 0.8 per pound, and that isn't for bodybuilding either. I intake at least 800mg of Magnesium, and I take up to 1200mg every few hours during a migraine to abort. When I could afford the IV treatment during an attack I would do that with IV of insane doses of C. Now I megadose on Magnesium and C powder (ascorbic acid) until the issue is mitigated. At my height and weight, that is 135 grams of protein. I don't use whey. When I was heavy into weightlifting in the early 2000s we all knew what that did to the kidneys, the body, and how bad it is for the body (acne is a prime indicator). Plant-based is best. I use one shake a day and the rest through diet. Diet is easy. Eggs for breakfast: no cheese, no butter, and God no, no margarine (that will kill you fast). Don't believe the pseudoscience from the 90s, I eat 4 XL eggs a day, and my total cholesterol is almost too low, 170. There is ample evidence at 160 or lower people with mental disturbances become suicidal. I consume at least a cup of cooked beans a day, and couscous or whole grain rice. I hate vegetables but stomach 1.5 servings of corn, 1 serving of peas (technically a legume), and a serving of carrots. I supplement with a Garden of Life powder that provides the other required 5 servings of fruits and vegetables, the super greens, phytonutrients, and so forth. I'm Croatian and so we don't consume meat like American’s. Well, I am 2nd generation, and I still don't. Red meat is almost nonexistent, and that deli meat, bacon, and processed meat according to Harvard is linked to a 30% increase in Colon and Pancreatic Cancer. I notice when I eat that mess an instant onset of headache occurs. All that salt, preservatives, and chemicals can't help. I eat poultry at most 6 times a month. I don't believe in Paleo, Keto, or fad diets, but my hunch is that steak and deli meat will trigger headaches and that it will lead to coronary artery disease, and eventually kill you. If that doesn't help, as in my case, then you add, only clinically proven supplements and what western medicine can help as an adjunct. I use feverfew and butterbur, with over 3000mg of nicotinic acid, 3000mcg of B12, at least 800mg of magnesium, vitamin C to the bowel (in my case that is 6 grams for breakfast, 6 for lunch, 4 for dinner, and 2 for bed). I also take a Nordic Naturals Super Omega 3 (the best quality of EPA DHA), I mega dose on D, and should disclose that my serum level is low. I should also disclose that I have stiff person syndrome and even when my B12 level is normal, I run the risk of pernicious anemia. Then, I treat the gut. H pylori are linked to migraines. I use caprylic acid, and Pearl Elite Prebiotics ( to my knowledge the only prebiotics that survives stomach acid). Since NSAIDs cause Candida overgrowth, I use white willow bark when it gets nasty/intense. I also treat the thyroid, despite a “normal TH level.” it doesn't take an Einstein to realize that the TH lab is inaccurate. I use a supplement that provides 10,000% of the daily RDA for iodine, provides selenium, and a lot of zinc. Not surprisingly, your BPH symptoms (if a middle-aged male or older improves overnight and in two weeks you can fire the urologist). Finally, there isn't a one size fits all approach, and even I have to resort to the western medical-industrial complex of doctors “it's been 15 minutes I don't care about you get out” model of medicine. I get my Psych NP to write for a calcium channel medication that can be used for self-harm/cutting prevention. Though I don't cut, with my personality disorder she can get away with this. Why do I do this? From experience, all neurologists treated me like a pharmaceutical lab rat and had zero interest in my well-being, and I have seen world-renowned neurologists. Truth is, you can fire your doctor, and doctor yourself. I found the NP’s to spend considerable more time with you, and provide exceptional care. The problem is, to my knowledge, only a handful of states (like mine) allow them to practice on their own. I now refuse to see an MD and only see NPs. It's a matter of preference, I suppose. Last, I have enclosed a baseline journal to prove that vitamin supplementation has a basis, and I encourage all I you to treat the gut (it starts there), treat the nutrient deficits, then try herbal supplements, then pharmaceuticals. I get one migraine a month. I was daily, or up to 5-day benders. And my Fibromyalgia, Chronic Pain Syndrome have improved enough that I could manage with Tramadol (schedule 4); at one point I was on Fentanyl, Demerol, and OxyContin (Schedule 1). And the batshit crazy part 120 lorazepam as a protocol/front line for the stiff-person syndrome. Megadosing on magnesium until normal levels eradicated most of those issues. When I do wig out, hydroxyzine (no scheduled) resolves it. Here is the journal: Vitamin Supplementation as Possible Prophylactic Treatment against Migraine with Aura and Menstrual Migraine https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4359851/pdf/BMRI2015-469529.pdf
    1 point
  6. ...hi @Lizzie Hall, have heard very little on the sites i visit re psilo and migraine. could you share type, dosage, frequency, etc. would be valuable info for newbies on a strategy that worked....
    1 point
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