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  1. It was about a year and a half ago that I met the ‘kid’ on the video during a patient day in the neurological centre. Although his young age I was surprised how much he already knows about CH, but also that he was frank and open about the things science does not know yet. He said that O2 really helps, but they just do not know why?, is it because of the cold airflow up the nose, or that there is somewhere in our system a ‘switch’ that signals that enough O2 is in our blood and that the blood vessels can be contracted again. Anyway, they would like to start conducting scientific studies i
    4 points
  2. Hi guys, After about 5 months free, I think I can confirm that the D3 regimem really works. In the past 20 years, I tried almost every medications possible without any great success. The best scenario was about 15 attacks/month. Thanks to this site and especially to Batch for the great help. I am now completely free. From my part, the D3 regimem will reduce the frequency and severity of the attacks. Combined with Verrapamil, it completely stoped my CH. Even my doctor his amaze of how well I am. Thanks guys for your support and help for giving me my life back.
    3 points
  3. A-Z, Glad you're asking for help. It can be challenging, I know. I'd highly recommend seeing your doctor. There are several antidepressants that even at low doses can really help your symptoms. I took a generic version of zoloft for close to a year recently. I had some situational challenges going on with a lawsuit against a contractor that had damaged my home. I'm not familiar with most of the drugs listed in your first post. I'd wonder if something you've taken recently, Zomig etc, might have created a serotonin imbalance? Please, do go see your doctor. (I'm in a bit of withdra
    2 points
  4. This year's Headache on the Hill event that is put on by AHDA (Alliance for Headache Disorders Advocacy) is being held in March (22-23) and will be virtual like everything else these days. The deadline for registering is coming up this Friday. There is a $50.00 registration fee this year due to the high costs of the company organizing the complicated process of scheduling hundreds of meetings with Senate and House offices. Anyone from the cluster community will have their registration fees covered by Clusterbusters upon request. If you live in any of these states, we really need you. You
    2 points
  5. Welcome Dave, This site is full of info that may help you out with figuring this out. A little more info on your headaches, Are they the same time of day every day? Do they run in a cycle, Spring, Fall, of only on a certain month and only x number of weeks? Does alcohol bring them on? things like that will help figure out if they are for sure clusters or not. Like Jon said above Oxygen is something you will want to get as soon as you can if you do have clusters. You will want it in a tank not a concentrator machine and you will want a high flow regulator and a cluster mask to get the full ben
    2 points
  6. Thanks J for replying, well i am replying late as i saw no one was is interested in my post,,, so checked it late. Yes! i too had the feeling of being nervous during and after smoking cannabis but after few hours later i am fine. However, this time i took a bit lot and i suspect only cannabis, a year go first time when i smoked a little panic attack came after a week but it was manageable and it went away after some medication. It seems my body takes cannabis differently than majority. My pothead friends say same as you said, they had anxiety and low/high mood but have no panic attacks. I
    1 point
  7. My only comments on the great advice above are (1) I'm not sure there's great evidence that taurine is a significant factor in the effectiveness of energy drinks/energy shots. There might be such evidence, and I might have missed it. For some people at least, plain strong coffee or energy drinks without taurine seem to work fine. I mention this because there can come a point when you get really sick of the energy beverages. (2) Triptans are very effective against CH, but not in pill form (takes too long to get into your system). The nasal spray works for many, and injectable forms work for vi
    1 point
  8. A-Z, I've tried cannabis a few times. Every time, I've had an almost panic reaction. I think my body is wired differently than most other peoples. It didn't make me feel good at all, just wayyyyy nervous and all I could think about was never doing it again. It seems odd that the feeling occurred after several weeks for you. I'm no doctor, but to me it would seem like it's not related to the cannabis. Cheers, J
    1 point
  9. Some links I found. 35 year old woman with coronary artery disease has a heart attack after first dose of SQ sumatriptan. http://www.ncbi.nlm.nih.gov/pubmed/7783891 56-year-old female patient with migraine who experienced a myocardial infarction shortly after using sumatriptan, despite having had a normal cardiovascular evaluation. http://www.ncbi.nlm.nih.gov/pubmed/8682677 Risk of severe cardiovascular adverse events after the use of a triptan is estimated at 1:100,000 treated attacks http://www.ncbi.nlm.nih.gov/pubmed/20977405 42-year-old man with episodic cluster headache
    1 point
  10. After hearing from several of you suggesting making this thread a "sticky", it is done. I feel that it is that important. BB
    1 point
  11. Sumatriptan caused me to have 51 attacks in 7 days. I have stopped taking it and do not plan on taking it again. It seemed to make the pain worse too. IÂ’m still having a couple a week. Somewhat keeping them at bay with verapamil. Physicians will continue to prescribe it because they are making money on it, kickbacks from pharmaceutical companies and dinners at nice restaurants. They do not care about the patience and it is all about the $$. This goes for profit, not for profit and county health care providers. All of them make a lot of money! This is why my neurologist will not prescri
    1 point
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