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  1. If there's one thing that I've learned over the years; it's that just when you think you have cluster headaches figured out...they change. Unfortunately, I don't you can ever know with any certainty. You just have to hope for the best, but, be prepared for the worst.
    5 points
  2. ...i am fluent in...............................smart-ass
    4 points
  3. @BoscoPikoit's ok @spinystole my other thread about my CH , I'm getting used to it Only joking @BoscoPikoMuch love
    4 points
  4. Jeebs, that is indeed my new baby!!! Meet Anatoly, 5 months old and helping me celebrate the recent death of our least favorite companion! He is the Russian Blue that I have wanted for 30 years! He is just now getting the 'shimmer' in his fur with his adult coat coming in a bit.
    4 points
  5. This encapsulation ^^^^ should be enshrined as a motto, or maybe as part of a cluster busting oath. Let us raise our right hands.
    4 points
  6. Bosco, just keep doing what you have been doing the last several months: D3 and seeds. I do the D3 year round, you know, just in case. I had my FIRST EVER summer cycle this year. I got it 'ended' on my normal start cycle day!!! So, after a pretty 'perfect' start for years - September 22nd - I no longer have a road sign to pass every year and recognise as 'Hey, you prepared!!' so things will be fine. I am in uncharted territory! So, I have a very 'fresh' reminder of what it feels like to feel a bit lost in the mess. And the 'plan' is to keep on keeping on. In my world, you can relax, if you are vigilant!!! If I missed my afternoon caffeine or bedtime D, I will get hit and reminded not to be forgetful!!! Live and learn.
    4 points
  7. I hear you, and agree 100%. It's especially frustrating when you think you have things like timing, or treatments sorted out after finding a pattern, or having success with something; only for it to completely change / not work on the next cycle. I think we can all relate to that. I do think that maybe / hopefully the D3 and busting might have helped you though. Maybe it's a sign of easier times to come as well!
    4 points
  8. ...ok...up The Reds.....but i couldn't find you in the crowd...and bollocks to those Everton tossers... Liverpool chants: Lyrics & videos to the most popular Anfield songs | Goal.com US
    3 points
  9. Yea, be the BUG!! You need the info and it is their job to help in that arena. I'll provide a tiny push for you!!
    3 points
  10. .....yup....it took me a lotta yrs to figure out that: "relax and concentrate" was the only way i was gonna get through this CH sane. ya start by learning everything you possibly can (some of that from you ) which leads to the right attitude....... so that you can formulate a proper plan......with what you KNOW are the right tools. ...never had kids, but had a buncha lady techs work for me, every one of them repeated back to me at some point: "sign your damn work!". made my fricken day. different road to accountability, not as good as yours, but no made up stuff or useless crud on my desk. amazing how ownership of something engenders responsibility.....
    3 points
  11. ...threadjack?,ok..... up Arsenal.....go The Gunners!!
    3 points
  12. Wow what a beauty of a Russian Blue, and what a once in a lifetime pose for that photo. Across the mountain it was proclaimed: "The Cluster Bunny is dead, long live the King (Anatoly)!"
    3 points
  13. Yep.. Good advice as always. Strange little bugger the cluster bunny is.. Guess he just doesn't care that no one wants thunder eggs in the winter... or summer for that matter
    3 points
  14. Jeesh.. All this fun to look forward to LOL.. For now I'm just gonna count my blessings and be grateful that I get any breaks at all .
    3 points
  15. Aww jeeb thank you. I know there is no solid answer to my question and I so appreciate you being so kind. I just revert to my old scared self from time to time and your words were just what I needed. I had a few spikes today and just got scared. I dislike how I allow it to shut me down and I'm working on that. Thank you for the positive influx..
    3 points
  16. What Darren said. I would bet that your diligent, all out preventive efforts this year have paid off royally and indeed are responsible for preventing (or tamping down in a major way) the expected cycle. Huge cause for celebration, and something I personally admire greatly! My hope is as you approach your normal CH cycle end time coming up real soon here, while keeping your arsenal and contingencies ready to go at a moment's notice, you'll go free of all symptoms, including shadows, and feel freer from the grip, with less dread, if you experience that. As far as what to expect for cycle timing now.....sorry but I kind of went into an "all bets are off" mode regarding cycle timings a good while back, considering this bit that is so common: ...but I believe that with your level of determination and vigilance you could continue to prevent lots and lots of more cycles all in a row.
    3 points
  17. Nicely said Darren. Thank you for taking the time to respond to me..
    3 points
  18. That said...it definitely could be milder because of the things that you mentioned. So, enjoy the time, but, don't let your guard down. Fingers crossed for you!
    3 points
  19. Hadn't realized until now that you spoke Shaun's dialect @jon019
    2 points
  20. John, we all know that tension is limiting and therefore a bad thing in any fight!!! You know, can you actually throw that punch when you are tense? Nope. Tension holds you back. Relax and punch from your foot, with all your might and controlled focus- like a bolt of lightning is coming up through you from the ground. Yogi was right!! And 'trust, but verify' is always good advice! My kids grew up with 'Quote your source!' to keep garbage out of the conversation and prevent made-up stuff inhabiting my house and car. They still use it today, which makes me feel that I got some things right along that long road.
    2 points
  21. This encapsulation ^^^^ should be enshrined as a motto, or maybe as part of a cluster busting oath. Let us raise our right hands. ...spiny this is all time classic....i almost fell out of my chair!!!....been my goal for 40 years but didn't know how to say it. relax and CH at the same time? no way?...YES, way! ...like Yogi said..."in order to hit you have to relax and concentrate" or Reagan..."trust but verify".....
    2 points
  22. He is rotten and I am loving every minute of it!!! I did get lucky on the pic, that is no lie. At that age, kittens are sleeping or running!!
    2 points
  23. Plus @spiny, if this new-ish profile pic is of one of your actual family cats, you are really soaring to new heights of awesomeness.
    2 points
  24. My go to is 3 to 4 Advil PM followed by a large cup of strong coffee, or an energy drink.
    2 points
  25. Any word yet Shawn?
    1 point
  26. Oh no Jono. You know I follow Liverpool fc !!!!!!
    1 point
  27. Back at ya! I tried to swing back to topic! Looking forward to the next update on your girls amazing recovery and can't wait for the "she's home" post!
    1 point
  28. He is beautiful @spiny! I would love to see a few more picks of him!
    1 point
  29. "Thunder Eggs". Ooh that is good @BoscoPiko - you know I'm going to be using that now.
    1 point
  30. Yep, no normal for me anymore. They have shifted from early in the year to mid to late and back again.
    1 point
  31. Thank you @Darren I suppose I'm just trying to keep trying.. if that makes any sense at all..I get tired just like we all do and hope is sacred. I wish this affliction was more like math but it's simply not. Math was never my good subject but at least it has set rules.. uff anyhow thanks for the well wishes.
    1 point
  32. Thank you! A little stressed about the MRI, but it is what it is. I will try another coffee this afternoon! Thanks!
    1 point
  33. I would try coffee at noon then. Just add an extra cup a day and see if it helps. It is food, not med! I had so many 'sinus' infections treated that weren't sinus at all, that I never suspect them at all now. Like many others, I also had the roto rooter sucky one too. Doctors were determined that it was causing my hits. Nope. Glad to know that you are getting a scan!
    1 point
  34. LOL Jon...I'm special and I know it Na I usually am using windows 10 when on here but do post from my droid sometimes.. Now that you mention it, most my double posts happen when using my phone...
    1 point
  35. Thanks Shawn. My thoughts are with you!!
    1 point
  36. Not yet, I sent some attack logs and other info in Friday to neuro, and hoping to hear back soon. I'd like to attempt to go back to work. I work a physically demanding job and would like to know if I'm at risk, my blood pressure has steadily been rising for a few years now and could be from the vessels being restricted in my head. Don't want to be a bug but might just have to.
    0 points
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