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  1. 3 points
    Dallas Denny

    What if there WAS a CURE?

    Lmao! I caught that as well @Brain on fire......let's see now....I learned about welding oxygen from Marc from down in Bastrop Texas in 2007 on DJ's site.....this site went live in Oct of 2009.....this guy came along in his previous incarnation in 2015.....AND I can assure you we was spreading the message far and wide and loud and proud when he got here so I'm really not sure what he thinks he's taking credit for.......BUT THAT AIN'T IT.....and in the eternal words of Potter, I call BULLSHIT!!! DD
  2. 3 points
    Pebblesthecorgi

    Ketamine test on Dr.John Lilly

    Why do I feel like I do after a Jehovah's Witness or Hari Krishna just knocked?
  3. 2 points
    Dallas Denny

    Letter to employer and family?

    Here ya go wing_nut! http://www.clusterheadaches.com/wwwboard/messages/63158.html?fbclid=IwAR26DY-Zyy6hVnPkL-YkuVMcXDEiN6cEBAV0r3H8OUvlj9SE6fQKyBSDe54 Dallas Denny
  4. 2 points
    Tim.... that's sobering...no migraines here....but I've seen 'em...and want no part of THAT! Sorry you've had to be a double warrior....one down, right?....let us know when you get this one... Best, Jonathan
  5. 1 point
    I have been getting Migraine headaches every day for the last month, yet I thank god that my Clusters are under controll!
  6. 1 point
    Pebblesthecorgi

    Just to put it in perspective

    Personally I am not really into trying to compare pain or trying to "one up" others in the suffering department but this may help some vindicate themselves or at least give perspective when dealing with insensitive partners, colleagues and other riff raff. https://www.mylondon.news/news/health/nhs-pain-most-painful-conditions-15701223?fbclid=IwAR2zqmTNLdESNWJcLH5nM3yZAz6tqEsXQ0ezoQ6Tm2e03khiXiYeTpe-Lkk
  7. 1 point
    Edgar

    Weak background pain after end of cycle?

    Hi All, thank you for your replies I have been diagnosed with Cluster back in 2002 or 2003 and had every year 2 cycles per year, every cycle 6-8 weeks with 2-4 attacks daily. I was given triptans (imigran nasal) and naratriptan to block the attacks and it worked fine. The doctors told me that my cycles are too short to put me on something else. This was until 2013. In 2014 I had Remission the whole year and the next cycle came September 2015 and was long (10 weeks) and really bad in terms of intensity of pain and number of attacks. This time my neurologist put me on 2x naratriptan daily + 480 mg verapamil retard (2x 240 mg). After a week on verapamil it got better and in November the cycle ended. In 2015, 2016, 2017 and 2018 I was completely free of pain, full Remission, 4 years long. I almost forgot how bad the whole thing was. Until Early November last year when it all started with weak attacks at night time and worsened by beginning of December with really painful attacks 2-3 times daily. Again Naratriptan and verapamil, until Christmas. Now I am pain free again, so the cycle has ended, but there is this weak background feeling around the eye, that makes me worry. I have MRI on February 14th, I hope it will be OK and these are just the last signs of the cycle... I used Oxygen only once, when the pain was so bad, couple of years ago I went to the emergency and they put me on O2, which I think to remember helped me really. I'm thinking about taking for some 2-3 days again verapamil to see if this background noise will disappear. Thank you all for your suggestions
  8. 1 point
    Rush

    Prescription Frustrations - long rant

    Good luck !! I have given up trying, I had an Rx from my doctor, but could not get anyone in Orlando to fill it.. It would be nice if we could pass a few of our CH's on to these people so they would understand in a BIG WAY
  9. 1 point
    CHfather

    Vitamine D3

    The "basic non-busting info" file has updated info about where to see the D3 file. But the blue "New Users ..." banner that you referred to has only basic busting info. No D3 info; no "non-busting info."
  10. 1 point
    ThatHurtsMyHead

    Melatonin

    sn0wh0p, I would ask that you try to keep posts to the topic of CH or helping those with CH. I appreciate your passion for experiences you've had, but there are plenty of websites for those discussions. Shroomery.org DMTNexus.com etc etc. I really don't want to limit your access, or be forced to edit your posts. Trying to enjoy or at least deal with taking our medicine is important, but it's clear some of your posts aren't related to CH and those posts really need to be put on those other boards. Cheers, J
  11. 1 point
    senya

    Does nasal spray work for you?

    Hello im a new member here. I have been suffering from CH for over 10 years. Usually get CH in spring and fall that lasts for about a month. I usually stay away from any prescription meds due to their cost and because they just make next headache worse. Recently I had a bad flu that triggered nightly clusters. Since I had runny nose I started using nasal spray to clear out congestion. So one night I got up with a really bad CH and went to clear my nose and used over the counter nasal spray. Approximately 15 minutes later headache was gone and I quickly fell asleep. I never had any medicine act so fast against CH. I have been using nasal spray to fight CH for past 2 weeks and it worked everytime. Sparay that I use contains regular dose of Oxymetazoline. So Im just curious if this method worked for someone or maybe it will help you too if you havent tried it yet.
  12. 1 point
    Brain on fire

    Does nasal spray work for you?

    Did we forget to tell you big pharma sales folks browse the forum looking for posts like yours? A contract hit has probably been issued for you in the States (joking of course).
  13. 1 point
    Matt19

    Does nasal spray work for you?

    God imagine if you have to pay for sumatriptan injections how much money you could save. I'll probably be murdered by big pharm lol
  14. 1 point
    Brain on fire

    Does nasal spray work for you?

    Apologies for any confusion. I meant the 2 posts on the same day were both by you @Matt19
  15. 1 point
    Because this subject appears in another post from today, I took the liberty of pasting the post above onto that thread, so that everything is in the same place. The longer thread is here: https://clusterbusters.org/forums/topic/5829-does-nasal-spray-work-for-you/
  16. 1 point
    Matt19

    Does nasal spray work for you?

    I have been researching oxymetazoline for some time now and have been using as a substitute for sumatriptan for nearly 3 years. I am 100% certain that this aborts my cluster headaches. Oxymetazoline as an α-adrenoceptor agonist, however it works as a full and potent agonist of serotonin receptor types 5-HT1A, 5-HT1B AND 5-HT1D, and is a partial agonist of 5-HT1C. Sumatriptan works as an agonist of serotonin receptor types 5-HT1B and 5-HT1D. It is believed that sumatriptan aborts cluster headaches because of cerebral vasoconstriction caused by its action as an agonist on serotonin receptor type 5-HT1D So I firmly believe oxymetazoline aborts cluster headaches. So far you are my first confirmation. Spread the word
  17. 1 point
    Busting also helps with depression, anxiety & alcoholism. I hope you get that oxygen going & perfect your technique so you can get through now, through the detox periods, bust & get to pain free status.
  18. 1 point
    Batch

    15 year remission?

    Hey Steve, From my experience, it's best to jump on the oxygen at the first sign of an approaching CH. The sooner the better. The longer you wait, the higher the pain level and that ends up making your oxygen abort times longer. I'd also suggest you check out the anti-inflammatory regimen with 10,000 IU/day vitamin D3 or more along with the vitamin D3 cofactors. You can download a PDF copy of this treatment protocol at the following vitaminDwiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 I suspect the return of your CH is due to a drop in your 25(OH)D3 serum concentration (vitamin D3 concentration). Are you getting less direct sunlight than usual? We've found that a vitamin D3 insufficiency/deficiency is very common among CHers. The anti-inflammatory regimen can fix that deficiency and in the process, get you back CH pain free. Take care and please keep us posted. V/R, Batch
  19. 1 point
    FunTimes

    o2 noob help please

    xBoss, sorry to see yo back here.. This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&psc=1 The mask can be found here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit
  20. 1 point
    Rod H

    o2 noob help please

    Oh yea I always chug some caffeine on the way to the o2.
  21. 1 point
    Dallas Denny

    Upping D3 intake

    https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10%2C000+IU+of+Vitamin+D+in+80+percent+of+people
  22. 1 point
    Rainmaker

    Amazon Smiles

    I just switched my Amazon Smile account recipient to be Clusterbusters Inc. Thank you for all you do for us.
  23. 1 point
    Pebblesthecorgi

    What if there WAS a CURE?

    Four hours of typing to say nothing. The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”. Being withholding and secretive is the stuff of attention seeking and manipulators. Folks with quality information are generous and forethcoming. Batch set the standard for this and many others have done so to a lesser degree . I am happy you have resolved you CH issue but it seems you have other things to work on.
  24. 1 point
    Racer1_NC

    What if there WAS a CURE?

    Sounds like one of those "I'll only tell ya if you beg, plead and recognize me." type posts. I've seen many through the years. I know that if one of the many people I know with CH were to somehow stumble on to a real cure for this crap we have, they would be shouting it from the treetops. No one that lives with this shit would withhold information that could bring relief to others that suffer. The desire for personal gain causing a closed mind??? Here???? Seriously????? The fact the you even suggest such a thing shows how off target your sales pitch is. This place is a direct result of Bob's quest to help others. Because of that, many others here have spent far more than they'd care to admit trying to educate people on options, advocate for our collective and lending a helping hand when needed. To suggest a profit motive here of all places is beyond asinine....at best. I'd better stop here before I earn a posting vacation for my non-PC, obscenity laced tirade kicks in to high gear.
  25. 1 point
    FunTimes

    Does nasal spray work for you?

    I know that some of the prescriptions are manufactured in a nasal spray form and work much better and faster then in pill form and injections working the fastest but I have never heard of a over the counter drug in any form abort a cluster. What is the brand yo are using? Maybe someone else will have more information for you.
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