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I have suffered with cluster headaches from birth. I am glad to have finally started trying to help myself. I almost ended it several times. Sometimes mine last for 2-3 days. Does anyone else have this kind of prolonged agony? As far as triggers, my head-quakes are a sneaky bunch. Never found any corresponding events, smells, or activities that triggered. Only that when I first even THINK I am feeling one coming on, I take BC powder, begin massaging my temples, get AWAY from people,noise, light or anything that affects my sense, even smell. Then I brace for the inevitable. A steaming hot rag (I used to turn my water heater up as soon as symptoms arose) across, and pushed against, my eyes is so far my only respite. Only thing rags cool quickly and cold makes mine worse. Then a blind, stumbling, nightmarish ten steps to the faucet. Hot water, repeat until sleep. If no sleep, headaches continue for as long as I take to go unconscious. Any help would be welcome. I have stopped leaving "safe" areas (my home) overnight because I usually get a 3 am wake up call, and begin making gutteral noises and stumbling around Plus I can somewhat control my environment at home ( no smells, hot water, quiet, dark, no people, etc.). Any input would be welcome. I'm sorry that you are here, but I'm glad I'm not the only one. I am 32 and have had in excess of 100 clusters. The longest was 4 days and nights. I had a gun to my head and, being alone, no one was there to stop me. Any input would be very much appreciated and put to use. I work 6 to 7 days a week to make ends meet. It hits me hard to not work for, say, 2 days. Then a day of silence to recooperate. Anyone tried pyramids or 2-bromo?

Dane, I feel terrible for you. I know I have had the thought that if this headache doesn't end I'm gonna have to kill myself but fortunately they always end. The longest I have had was about 2 hours, and that was agonizing. Days on end must be torture. Verapamil worked wonders for me and triptans did at one time. I hope you find something that helps soon.