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Showing content with the highest reputation on 09/02/2021 in Posts

  1. I have been doing the Batch regimen (anti-inflammatory regimen) for many years but precisely only last few (before this I was lacking vitamin B's and such). Although it keeps me mostly pain free and has decreased my pain levels significantly, I have never managed to stay 100% PF with it. For CH outbreaks or for planned prevention I have needed to add busting with psychedelics, which have always worked exceptionally well even as low doses. I am a spokes person for cluster headaches in my country and as a side job I tell my experience as a patient in lectures in hospitals etc. This naturally includes use of psychedelics which are illegal in my country. I now have a 9 month baby boy and due to me talking about psychedelics we have had child welfare services visiting and following us ever since the boy has born. I have agreed not to use psychedelics at home and this is why I have had to rely on Batch regimen alone. Pretty soon the basic 10,000 IU per day was not enough for me and I had to lift my daily dose to 15,000 IU, then to 20,000 and now looks like 25,000 is the next step. I know our hero and saviour @xxx will tell me this is not a problem at all as long as my calcium and PTH are in the range but I would like to know is it possible I will need more and more, can my body "get used to" high amounts of vitamin D? I wanted to ask this in public if anyone else has had the same experience. I know about low responders (we have an older genteman in Finland who is definitively one) but I don't think I am such, I have been actually responding too well in the past. Part of the problem is that there is practically no one in the healthcare in my town, in my region, or in the whole country who would OK the use of even 10,000 IU constantly and believe me I've looked. And will keep on looking, we surely need someone who will study the Batch regimen and recommend it to patients and follow up on them.
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  2. Bosco, I just had my non-CH side spike today. I was a the dermatologists when it happened and it spooked the heck out of me!! What causes it? I don't know. But I have had them before and my son gets them , but no CH. Hopefully that is the end of it! The Equinox is my cycle start time, so yea, I am a bit wigged out. I took caffeine for it. Might not be the best choice for all, but worked for me. ATB!!!
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  3. I regularly have spikes on my left temple, while my CH is on my right. These spikes are in many cases the onset of an attack, but not always. It makes me aware that the beast is awake and wants to come out to play. This does not mean I stop doing what I was doing of want to do, except when I kinda feel an attack is eminent, I start the O2. What also helps me when I have a little spike is to go outside for a walk in the fresh air, this also clears the spike quite rapidly. Some people have spikes in the Great Occipital Nerve which is often an indication that they will soon enter into their cycle. I see the spikes on my temple normally only when in cycle, but on the other hand I am chronic. Over time I can now feel what kind of spike it is, is it a random one, or because I have eaten something that is on the ‘NOGOOD’-list or went to bed far too late. As J says, the beast comes in different forms and shapes, where a spike for one is the start of a cycle, where for others it is a morphing of a regular pattern to the next. ATB
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