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Hi Monica, I must say I'm somewhat inspired by your post, because tonight I took it upon myself to help myself, with the wider goal of helping the whole cluster community. It can be stressful to convey our pain to people, but awareness is hard to raise otherwise! Projects like this can be cathartic, but also could literally save lives, so it's a win win situation! *I've always wanted to be a filmmaker, but since my diagnosis in March 2020 I've felt this is no longer possible. However, tonight I also learned that sadly, the actor Daniel Radcliffe also has suffered with CH's for many years, and maybe it's a pipe dream but at least I'll have someone to send my screenplay to if I ever write one! (Fantasies are healthy, as they give you hope!) Best wishes and thank you for your post, David, London, England