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...thank you @Tim Hogge ...ALWAYS worth mentioning (and rarely is), as dehydration is endemic and a facilitator of all kinds of bad issues. at one time in clusterville there was even enthusiasm for a "water therapy" treatment of CH. Worked for some! but not well enough for enough clusterheads to gain much traction. worth a try and hydration is important for everything anyway......

All going good. Talking a lot more ,but a lot of it doesn't really make sense at the moment . Bless her she thinks she's in Benidorm in Spain ,but then the next moment she knows that she is in hospital after an accident . She keeps asking for orange juice but she is still on a feeding tube so we can only let her have a spoon full at a time ,gonna check her throat tomorrow and may take feeding tube out . Also hoping to move her off critical ward tomorrow . My girl is so strong to have got this far but also down to all preyers sent from you guys

....before switching an O2 provider that is at least somewhat cool with a CH patient, ask for more tanks. i kept 6 e's on hand at all times for a decade+ before my provider (Lincare) finally got m-60's.....yee-haw! also a good opportunity to educate them on the needs of a clusterhead....paying it forward for the next 'head that wanders in. if at all possible, pick up and deliver your own tanks.....they loved that even WAY before the current labor/supply shortage. a personal relationship with shop mgr and backroom tech goes a long way too....then you are a person instead of a file number. delivery drivers can be your best friend, treat 'em like the gold they are....sometimes they can find you a tank or 2 when "none exist"....or even a few extra.....

.....don't give up on the O2....when episodic there would be occasional cycles where i would get the wakeups like that. i suspect it was due to an inflammation/allergy that was "firing" things up....and that my vitamin D level was below optimal. get your levels checked and try the D3 regimen. Diphenhydramine (Benadryl) may be helpful, with added benefit of drowsiness at an appropriate time...

Make sure you're hydrating. O2 works best when you're well hydrated and electrolytes levels are good. It's hard to get water in during a episode but you need it to get it in. What you do between attacks is included sleep positioning. Maybe try elevating your head positioning (like when your sick) to reduce blood pressure and increase circulation.

The general advice about O2 is to keep inhaling it even after an attack has been aborted, 5 minutes longer, or more. That can help prevent or minimize subsequent attacks. It's a bit surprising that a sumatriptan tablet is helping you, since many people find that tablets don't work fast enough. Nasal spray or injectable are more effective. You can split the 6mg injections so you get three aborts from them, which reduces the overuse concern and of course makes those expensive injections a little more affordable. Regarding the verapamil, that's a relatively low dose, and you should be using the immediate release kind, not the extended release kind (can't tell from your message which you are taking). The vitamin D3 regimen is a better and safer preventive than verap. You can read about that, and some other information and tips, in this file. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

I've got a lot to say to you, Titan, but I think most of it is in here, and I'm urging you to read it with some attention, even though it's long. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ One important thing you will see in there is that you can open up your Imitrex injector and get 3 shots instead of one. Here's a direct link to that info. https://clusterbusters.org/forums/topic/2446-extending-imitrex/ Are you in the US? Because here, Imitrex is very expensive and most prescriptions are very limited, and it's hard to see how you'd be using so much. Yes, the theory is that Imitrex is for attacks that are not handled by oxygen -- taking too much of a triptan (Imitrex is sumatriptan) is bad for you and can not only extend your cycle but cause severe rebound attacks (triptan overuse attacks). Given my misgivings about your doctor, I have some fear that your oxygen setup might not be correct. You should have a tank or cylinder, a regulator, and a non-rebreather mask. (Much more detail in the post I linked you to.) I also want to note, not as a putdown but just for clarification, that there really is not such a thing as a "cluster migraine." Two different things, cluster headaches (CH) and migraines (although some medications, such as Imitrex, work for both). A small number of people have both, and for an even smaller number, a CH attack is always preceded by a migraine attack. If a doctor in the US said you have "cluster migraine," I would be very wary of that doctor. It seems more commonly used in other places, such as the UK (but it's still wrong).