Leaderboard

Clusterbusters is partnering with another nonprofit organization - ClusterFree. https://clusterfree.org/⁠ ⁠ They have sign on letters. One is global, then there is a list of locations - please check their site for both. They are working to:⁠ ⁠ To achieve our mission, we:⁠ ⁠ Publish open letters demanding that governments, regulatory bodies, and medical associations worldwide take action immediately.⁠ ⁠ Engage with policymakers globally to advocate for better access to treatments.⁠ ⁠ Publish research on cluster headache and support other researchers in the field.⁠ ⁠ Collaborate with entrepreneurs and philanthropists motivated to bring effective treatments to market.⁠ ⁠ Thank you ClusterFree for partnering with us and raising awareness of cluster headache on a global scale!

We had Dr. Rev. Tammy Isaac come to our conference this year. I reached out given November is Family Caregiver Month and she sent me these resources and she will create some NEW content for us next week! I'll try to remember to add them to the thread when they go live. Our Care Partners are so important! We want you to know how much we care and appreciate you - and remember...you can experience grief in this process too. We have Care Partner groups and programs! ⁠ ⁠ Below are some resources from our amazing friend Dr. Rev. Tammy Isaac. Those who were at the conference heard her speak, she has some resources I'd like to share. Please take a moment for you to read/listen to these- and know how much gratitude we have for you.⁠ ⁠ Blog Post: Carrying Love, Carrying Loss: The Caregiver’s Journey⁠ https://www.breathegriefcounselingcenter.com/post/carrying-love-carrying-loss-the-caregiver-s-journey⁠ ⁠ Permission to Breathe Podcast Episode: Caregiver Grief: Loving Through Loss Before Goodbye⁠ ⁠ Spotify: https://open.spotify.com/episode/5nqQFAs5Xre7m0HF5LJkGE?si=4iaIx_lYTiW6sU9Psrxnrw⁠ ⁠ Apple Podcast: https://podcasts.apple.com/us/podcast/caregiver-grief-loving-through-loss-before-goodbye/id1767836754?i=1000721385568