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Oh, Nicole is autistic and non-communicative. She is unable to report to us so we have to guess from her responses. Normally she's a very happy person. Lots of laughing and giggling. Except during these attacks. She's 28.
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OK Fire... gotta name?
You've raised the bar on Nicole's treatment. That said, the initial goal of preventing her CH still stands. Treating her autism is the next step if you're up for it.
My daughter Gretchen, took a two-year hiatus from her masters studies to take care of two kids with ASD. I learned a lot from my daughter regarding autism. The most important lesson was positive gains (improvements) are few and far between. I also had the opportunity to work with a naturopath treating a child with autism. He is the son of a high school classmate of Gretchen's. Although the naturopath and I were in agreement as to the course of treatment with vitamin D3 and the cofactors, the child's mother was unwilling to have her son's 25(OH)D3 elevated above the normal reference range of 100 ng/mL. As a consequence, the improvement was minor.
As Nicole's care giver and mother, I suspect you've developed a keen sense of her well being and reading her nonverbal communication.
I'll cut to the chase as Nicole's autism is nothing new to you. Have you had a CP-MS - Mineral and Heavy Metal Elemental Hair Analysis done on Nicole? The incidence of magnesium and zinc deficiencies among ASD patients is high as is the burdens created by excessive cadmium, aluminum, lead and mercury. All these are treatable. In fact, the anti-inflammatory regimen will take care of any magnesium and/or zinc deficiencies. Chelation therapy can address the heavy metals.
Treating Nicole's autism with vitamin D3 therapy will require you to take her to a physician trained in the Coimbra Protocol. This protocol is very similar to the anti-inflammatory regimen in preventing CH with the major exception that vitamin D3 doses and resulting 25(OH)D3 serum concentrations are significantly higher, there also are a few extra supplements and dietary conciderations.
Where the average vitamin D3 dose for CH is between 10,000 IU/day and 20,000 IU/day, The vitamin D3 dose for autism using the Coimbra Protocol is around 1000 IU/Kg Body Weight/day ( 50,000 to 75,000 IU/day vitamin D3) and possibly higher depending on BMI and 25(OH)D3 response. The Coimbra Protocol was developed by Dr. Cicero Coimbra, MD, PhD, a neurologist in Sao Paulo, Brazil. He has an amazing track record effective in treating patients with MS and autoimmune neurological conditions with a 95% complete remission rate. I've exchanged email and survey data with Dr. Coimbra since 2013. He has also trained several physicians residing here in the US. There may be one near you. See the following link for the location of doctors trained in the Coimbra Protocol here in the US: https://www.google.com/maps/d/viewer?mid=1fATZJUEhOsYYJdBY41h48FBkLaQ&ll=27.189497398872252%2C-82.03850906531966&z=8
I've been in contact with Dr. Barrett Ginsberg, MD in Naples, FL for several years and sent a few CHers his way.
Dr. Barrett R. Ginsberg, M.D.
77 8th Street South
Naples, 34102, FL
(239) 325-2015
Website: http://www.vitamindprotocol.org/home.htmlWhat is the degree of difficulty in taking Nicole on travel and to a phlebotomist for blood draws? She will need labs every 30 to 90 days until she's at a stable vitamin D3 dose.
Here's the most recent info on treating autism with the Coimbra Protocol. I suspect you'll find more about the Coimbra Protocol and Autism on Facebook at the following link: https://www.facebook.com/coimbraprotocol/photos/a.1548144692151907.1073741828.1546797872286589/1791336131166094/
AUTISM AND THE COIMBRA PROTOCOL:
This is part of a recent email from Dr. Coimbra in which he talks about his experience with autism and high doses of vitamin D:
"...Laboratory markers of autoimmunity have been found in autism spectrum disorder (ASD) and vitamin D deficiency during pregnancy is strongly related to autism in early childhood.
https://scholar.google.com.br/scholar…
https://scholar.google.com.br/scholar…
https://molecularautism.biomedcentral.com/…/1…/2040-2392-6-3
"We have used high-dose vitamin D in a few children and in a 17-year old boy (from Rio de Janeiro city) during the last 2-3 years, and all of them have reached normal or near normal behavior as a result of that therapy. In the first appointment he was silent and would not look at me; his father was passing all information on his clinical history since early childhood. For some time (a year or so, from 6 months of therapy) the 17-year old boy (now 19 to 20 years old) could report on the reasons of his behavior. Deep fear (triggered by the sensation of excessive proximity to the unknown) was reported as the reason why he previously would not look at the others' eyes, would not talk to others, and would not interact in anyway with others.
Amazingly, after 2 years of treatment he could remember nothing about what he had originally reported, and had lots of plans for his own future (he said he wanted to spend sometime in Canada for learning English as part of a student exchange program; "why Canada?" - I asked - and he said he had been investigating and identified Canada as the country where foreigners are more easily accepted; he said he wanted to move to a regular school in Rio de Janeiro in 2018 because he misses interacting with normal adolescents and young people in general; he wants to get a job to become financially independent from his parents; he even said he had been searching the internet by himself and concluded that the spreading of the knowledge on the importance of vitamin D for public health faces the opposition of drug companies). I do not have videos about these cases (only pictures that I take and insert in the electronic patients' charts / records)."
Please let me know how you would like to proceed. Switching our discussions over to email would be helpful. My email address is pete.batcheller@verizon.net. You can also reach me by FaceTime if you have an iPhone. My iPhone number is (703) 906-0702.
Take care and please keep me posted.
Hugs, Peter
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