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xxx

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Everything posted by xxx

  1. I know Dr. Emmanuelle Schindler, MD, is working hard to complete this Yale study using psilocybin as a CH intervention.
  2. xxx

    Oxygen safety?

    Hey John, CH Father's, Spiny's and Pebles' comments all hit the mark debunking the article in question. There are studies and then there are articles about studies. While well designed studies/clinical trials as well as their published results and conclusions must conform to accepted standards, good science and format, articles do not. This article was a POS. While the cited study at PLoS provides what appears to be consistent results from their study of oxygen therapy breathing 95% O2 and 5% CO2 resulting in "normalized" cerebral blood flow and that hyperoxia breathing normobaric
  3. Pebbles, I think we can agree, a gold standard, randomized, double blind, placebo controlled RCT of vitamin D3 and cofactors as an intervention for cluster headache is needed. Dr. Mark Burish, MD, PhD., Director, Will Erwin Headache Research Center, UT Houston Health Science Center and featured speaker at Clusterbusters conferences registered just such an RCT on ClinicalTrials.gov 30 Sept 2020. As Dr. Burish’s study is based on the anti-inflammatory regimen, I’m confident the results will be compelling. His study also uses a Crossover design feature where following the double bl
  4. Hey Amir, I sent you a pm. You can download the posted version of the anti-inflammatory regimen at the following link. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 It has the dosing details you need for all the supplements in this regimen. Take care and please keep us posted. V/R, Batch
  5. Hey Squizzlet, I'm working with a cluster headache group in Finland. They conducted a survey of their members regarding migraine headache. Of the 300 responders, 150 of these CHers also suffered from migraine headache. This is an eye popping statistic with less than 1% of CHers here in the US with migraines until you look at the map of Finland and realize half of the country lies North of the Arctic Circle, i.e., not much sunshine and when it does shine, the angle to the horizon is so low, the synthesis of cutaneous vitamin D3 is nil. There's another interesting statistic. The s
  6. Hey Amardeep, This may be a long shot, but here you go anyway. The following doctor may be the one you are looking for in India who treats CHers and headache patients. Dr Renu Mahtani MD 407, Millennium Star, Dhole Patil Road, Pune - 411001 Maharashtra, India Contact : +91-7887887665 (WhatsApp then call ) Email : mahtani.renu@gmail.com Website: www.renumahtani.com Dr. Mahtani is a neurologist trained in the use of the Coimbra Protocol. https://www.coimbraprotocol.com/the-protocol-1 This is a treatment protocol for remitting recurring multiple scleros
  7. Tmac, Seeing your doctor to obtain lab assays for your serum 25(OH)D3 calcium and PTH is prudent. As long as your serum calcium remains within its normal reference range and your PTH is in the mid to low normal range, there's no problem no matter how high your serum 25(OH)D3 assay. I get the same blurb from Quest on my 25(OH)D3 assays. I think it's computer generated. It's obvious something is interfering with the vitamin D3 enabled genetic expression that helps prevent your CH. If it's allergy driven as I suspect, it could be there's so much histamine in your system, Quercetin
  8. They TMac, Good questions. 3 CH/night is not good and a 25(OH)D3 serum concentration greater than 150 ng/mL is not a worry by itself. The goal of the anti-inflammatory regimen is a CH pain free response. The fallback is a significant reduction in CH frequency from an average of 3 CH/day down to 3 to 4 CH/week as long as oxygen is available. Given the amount of vitamin D3 you've been taking and your 25(OH)D3 serum concentration is >150 ng/mL, I'll make a SWAG (sophisticated wild-ass guess) you're battling an immune system reaction caused by an allergy. An allergic reaction is
  9. Hey Krios, We've seen a higher response rate among CHers new to this regimen when they take the Bio-Tech D3-50 50,000 IU water soluble vitamin D3. As you're still experiencing CH, this is usually an indication your 25(OH)D3 is too low. Accordingly, you need a higher maintenance dose of vitamin D3. The most effective method of elevating serum 25(OH)D3 and faster way of returning to a CH pain free state is by starting a 4-Day vitamin D3 loading schedule taking 50,000 IU/day for 4 days. There's also "Pulsed" loading where you take 200,000 IU of vitamin D3 on Day-1 then coast taking no v
  10. Hey Snowflake, I'm very happy to see you've responded to the anti-inflammatory regimen with a complete cessation of CH. I know how wonderful that feels. I've sent you a PM so we're in direct contact. There are a few things you'll need to remember at this point. The first is you'll need to stay on this regimen until you end up on the other side of the air-grass interface in order to experience its many benefits. Second, there will be times when the CH beast overrides vitamin D3 and jumps ugly. When that happens, and it will, don't worry. Start loading vitamin D3 until you're
  11. Hey Drewbie, Good question. I can't answer it directly with a "yes: or "no". What I can say is we are seeing CHers who were low- and non-responders to the anti-inflammatory regimen, achieve favorable results by adding 3 grams/day Quercetin, Turmeric (Curcumin) and 3 to 6 grams/day Vitamin C divided into 3 or more doses taken during the day. The thinking here is that among its many physiological functions as a plant-based flavonoid found in abundance in apples, honey, raspberries, onions, red grapes, cherries, citrus fruits, and green leafy vegetables, Quercetin acts as a natural ant
  12. Hey Drewbie, Your analysis is spot on! The year-over-year efficacy of the anti-inflammatory regimen CH and MH preventative treatment protocol as captured with the online survey that's been running since December of 2011 found an average of 80% of the 313 CHers starting this regimen experienced a significant reduction in the frequency of their CH from a mean of 3 CH/day down to a mean of 3 CH/week in the first 30 days. 52% of these 313 CHers experienced a lasting cessation of CH in the first 30 days. I might add that this raw efficacy for a favorable response edged up to 88.9% for 20
  13. He Stephen, You can download the posted version of this treatment protocol from VitaminDWiki.com with the following link. I've also sent you a PM. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Readers of my webpage at VitaminDWiki.com have downloaded 64,576 copies of this treatment protocol since it posted four years ago on 21 Jan, 2017. Take care and please keep us posted. V/R, Batch
  14. Hey Krios, Thanks for the updates. Howz the head now? Has the frequency of your CH dropped further? Did you start this regimen with the lab test of your baseline 25(OH)D3 serum concentration before starting vitamin D3?. If so, what was it? The normal distribution chart of baseline 25(OH)D3 serum concentrations at baseline from 313 CHers with active bouts of CH responding to the online survey as of Dec, 20, 2019 are illustrated in the following graphic. The normal distribution chart of 25(OH)D3 serum concentrations after 30 days on this treatment protocol are illustrated
  15. Pebbles, Interesting comments. What are you telling readers of this thread? Is it the age old aphorism dating back to biblical times – “All that glitters is not gold” or is it in your opinion, there’s insufficient medical evidence that vitamin D3 and its cofactors help prevent cluster headache or help prevent serious infection by the Wuhan virus resulting in COVID-19? If that’s your opinion, wonderful. This is exactly what this forum is all about, open discussions and the free exchange of information, ideas and experiences. Take care, V/R, Batch
  16. Hey Drewbie, Good move starting the anti-inflammatory regimen. I've had my entire family and close friends taking it since 2011 and none of them have CH. The first step is to see your doctor/PCP to discuss this regimen and to ask for lab tests of your serum 25(OH)D3, calcium and PTH. Without these lab tests, CHers are shooting in the dark. When you do get the results back, see where you stack up with respect to the studies in the following link. https://vitamindwiki.com/COVID-19+treated+by+Vitamin+D+-+studies%2C+reports%2C+videos Take care and please keep us posted. V/R
  17. Hey Drewbie, All, The basic regimen posted on vitaminDwiki is still valid for CH and MH. I was in the process of updating it with results from the online survey when the COVID-19 pandemic hit the US in early February. At that point I had two changes to supplements in the posted version. The first is we've found the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3 to be faster acting with a higher bioequivalence in elevating 25(OH)D3 serum concentrations than the same dose of the oil-based liquid softgel vitamin D3 formulations. I began suggesting this switch in 2019 here on t
  18. Re: Ditch the Quercetin – A little history When it was clear that a high percentage of CHers who were either slow responders or not responding to the anti-inflammatory regimen treatment protocol in early 2011, I began looking for reasons why. The common thread that immerged from all the feedback from CHers reporting this problem and searches of open source medical literature was a combination of allergic reactions and systemic inflammation. Both conditions involve the immune system. As systemic inflammation is common to nearly every medical condition and disease from colds to can
  19. Hey Krios, Falling out of CH remission while on the vitamin D3 regimen can happen to any of us. It happened to me in 2015 due to a pollen allergy and again in 2018 due to a mold spore allergy. We've learned a lot since then. The winning course of action to get back CH pain free is to start loading vitamin D3 at 50,000 IU/day, ditch the Benadryl (Diphenhydramine HCL) and start taking 3 grams/day Quercetin. Quercetin is an excellent antihistamine and unlike Diphenhydramine, there's no drowsiness or time limit on dosing. Bumping the Turmeric (Curcumin) dose to 3 grams/day also helps
  20. He Seff, Merry Christmas. Mold spores are bad news for me. I like your dosing plan. Check your InBox. I've sent you a message. Take care, V/R, Batch
  21. Hey Freester, Did you manage to obtain a lab test of your 25(OH)D3 serum concentration before stopping the anti-inflammatory regimen? After 10 years providing information outreach on the benefits of this 10,000 IU/day vitamin D3 plus cofactors regimen in preventing CH and receiving feed back from most, I've found that among the 18% who didn't respond in the first 30 days and who stopped taking this regimen, nearly all had failed to obtain the 25(OH)D3 lab test. In short, these CHers had no idea if they had elevated their 25(OH)D3 serum concentration into the therapeutic region
  22. Hey Tsmith, Your doctor needs to order your labs from Quest Diagnostics. Their lab for 25(OH)D goes up to 512 ng/mL. To my knowledge, the lab for the 25(OH)D3:24,25(OH)2D3 ratio is only available from Quest with a special form. I'd switch from Benadryl (Diphenhydramine HCL) to 800 mg/day Quercetin. Staying on Diphenhydramine for more than 10 days is not advised. Among other things, Quercetin in a good antihistamine. See my PM. Take care and please keep us posted, V/R, Batch
  23. Here are the results from the online survey I urge CHers to take 30 days after starting the anti-inflammatory regimen, with results of their 25(OH)D3 labs in hand. The following chart illustrates days to a favorable response from start of regimen. As you can see, this can happen rapidly. For the purpose of this study, I set the Favorable Response = at least a 70% reduction in CH frequency by at least 70% of the CHers starting it. I just checked the latest survey download from two days ago. After 9 years running, survey data from 340 CHers indicate 82% of CHers starting this regim
  24. Hey TSmith, Sorry to be so slow in responding. My bird dog must have missed your post or I missed its email alert. My suggestion is to see your doctor for the lab tests of your serum 25(OH)D3, calcium and PTH. If your serum 25(OH)D3 is still over 150 ng/mL and your serum calcium still in the normal range, there's something else going on. Reviewing the bidding. From your earlier post, you indicated you were taking the supplements illustrated in the following photo. The Bio-Tech D3-50 is proving to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 than t
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