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xxx

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Everything posted by xxx

  1. Hey Marine, I'm a 75-year-old retired Navy fighter pilot and I'm on Tricare for Life as well. I've never had any problems getting M-Size oxygen cylinders or a few of the smaller E-size cylinders with a CGA-870 regulator. Ask for a CGA-870 regulator with selectable flow rates up to 25 liters/minute. If they tell you they don't have any with flow rates that high, buy one as suggested. Better yet, make yourself a DIY Redneck Oxygen Reservoir system out of a clean empty plastic Coke or Gatorade bottle (with cap) and bottom cut off, a clean kitchen trash bag, tubing from a disposable o
  2. xxx

    Hey Batch!!!

    Spiny, There are two changes to the supplements listed in the posted version of this treatment protocol that will appear in the updated version I hope to have available later this month. They include switching to the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3 that's suggested at a dose of one (1) D3-50/week as the initial maintenance dose. Rationale: The Bio-Tech D3-50 is proving to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 than the same dose of the oil-based liquid softgel vitamin D3 formulations. The D3-50 is also less expensive at one 23
  3. Hey NightOwl, CHfather is spot on with his info. I just sent you a PM with enough of the other info on this regimen to get you started. Please shoot me a PM response when you read my PM to you. Take care and please keep us posted. V/R, Batch
  4. xxx

    Hey Batch!!!

    Hey Spiny, You can find the posted version of the anti-inflammatory regimen CH and MH preventative treatment protocol on my webpage at the following vitaminDwiki.com link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep me posted. V/R, Batch
  5. For 2019, the 30-day efficacy jumped to over 90% of CHers starting this regimen experiencing a significant reduction in CH frequency from a mean of 21 CH/week down to a mean of 4 CH/week. Better yet, over 65% of CHers starting this regimen experienced a lasting cessation of CH in the first 30 days. I attribute this increase in efficacy to the switch to the Bio-Tech D3-50 50,000 IU water soluble vitamin D3. That's the only thing that's changed since July of 2018. I know the medical evidence purists will say an open label observational study rates a low level of medical evidence.
  6. Dear Lúthien, The endocrine system and its endocrine hormones play a significant role in both cluster and migraine headache. The problem is no two women behave alike during pregnancy or while taking birth control pills. One of the best ways to get on an even playing field so to speak and get your CH under control, is to start taking vitamin D3 plus its cofactors. The first step in this process is to see your PCP/GP for lab tests of your serum 25(OH)D3, calcium and PTH (parathyroid hormone). Odds are high you're vitamin D3 insufficient/deficient. As Chers, we need our 25(OH)D3 betwe
  7. Hey Vipul, The possibility exists that the sinusitis mentioned in your MRI DX is secondary to CH. In other words, the sinusitis is a direct result of multiple CH which cause all the sinus on the CH side to gush with mucus. On the other hand, it could also be just a coincidence with no real correlation. The possible involvement of the RCA (right superior cerebellar artery) with the trigeminal ganglia resulting in neurovascular conflict, mentioned in your MRI DX, is frequently associated with trigeminal neuralgia. This is where the RCA is physically wrapped around the trigeminal ga
  8. Hey Cast Iron, I made several trips to your country between 1997 and 2003, mostly to Den Haag to work at the SHAPE Technical Centre. Den Haag was great and so was Amsterdam, but I loved Scheveningen. Great little seaside restaurants with wonderful food. Getting to your problem, I suspect you are vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. Baseline lab tests by CHers reporting in this survey, before starting this regimen are illustrated in the following normal distribution curve. The normal reference range for the 2
  9. We don't get many unannounced visitors...
  10. Hey Dana, Glad to hear you're CH pain free. I only wish we could send you some rain. My rain gauge indicated 15 inches for January. It's looking like Jurassic Park around here with all the moss and sword ferns. My driveway/logging road to the house on 4 Jan. Take care, V/R, Batch
  11. Hyperventilation with room air until you reach respiratory alkalosis can be helpful in lowering the pain of CH but it too, does nothing to replete a vitamin D3 deficiency.
  12. Getting cold will not replete a vitamin D3 deficiency.
  13. Hey Dana, Thanks for the feedback. I'm happy to hear you're CH pain free and feeling good. Are you taking the Bio-Tech D3-50 form of vitamin D3? After over 9 years working with both episodic and chronic CHers taking this regimen of vitamin D3 and cofactors daily, nearly all episodic CHers who stay on this regimen year round report they sail through their usual episodic cycles CH pain free. Take care and please keep us posted. V/R, Batch
  14. Hey Mit, I just sent you a PM regarding your migraine headaches. I've a handful of migraineurs taking a modified version of the anti-inflammatory regimen. So far they're all experiencing a significant reduction in the frequency of their migraines and two are migraine pain free. I used to fly F-4 Phantoms into George AFB in the mid '70s to drop off or pick up Sidewinder missiles in a captive carry program to build up flight hours before we fired them. Take care and please keep me posted V/R, Batch
  15. xxx

    Vitamine D3

    Hey Finance, I've sent you a PM that addresses your questions about the anti-inflammatory regimen with vitamin D3 and the cofactors. Please feel free to ask questions... Most CHers have them when starting this regimen... I've been doing this for 9 years. Take care and please keep us posted. V/R, Batch
  16. 1 - Cluster headaches – One Bio-Tech D3-50/week plus all the cofactors prevents my CCH completely 2 – Shingles – A 50,000 IU dose of vitamin D3 stopped vericella zoster and its pain overnight. Continued dosing at 50,000 IU/day plus the cofactors for 3 more days prevented its spread, postherpetic neuralgia and rash. PCP amazed. 20 - Pain after surgery – I loaded vitamin D3 at one Bio-Tech D3-50/day plus cofactors and extra magnesium for a week prior to abdominal surgery. Came off pain meds 24 hrs after surgery. Restarted vitamin D3 at one Bio-Tech D3-50 plus cofactors 2nd day after
  17. Hey Steve, From my experience, it's best to jump on the oxygen at the first sign of an approaching CH. The sooner the better. The longer you wait, the higher the pain level and that ends up making your oxygen abort times longer. I'd also suggest you check out the anti-inflammatory regimen with 10,000 IU/day vitamin D3 or more along with the vitamin D3 cofactors. You can download a PDF copy of this treatment protocol at the following vitaminDwiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 I suspect the return of your CH is due to a dr
  18. Chris, Great post! It should help Signals with his problem obtaining welder's oxygen as an abortive for his CH. I share your frustration with the draconian regulations that prevent CHers from obtaining home oxygen therapy as an abortive for their cluster headaches. You covered the important parts of obtaining and using welder's oxygen as a CH abortive and that's fantastic. I did the same thing in September of 2010 following a move from Virginia back home to Bremerton, Washington when my Rx for oxygen ran out. $250 for the M-Size welder's oxygen cylinder at the local welding supply ou
  19. xxx

    Vitamine D3

    Hey Hammered, I've sent you a PM as Spiny indicated I would. My PM covers everything you'll need to do to get started on the anti-inflammatory regimen and then some. Please keep us posted. Take care, V/R, Batch I
  20. If used properly with hyperventilation, oxygen inhalation therapy is nearly as fast as subcutaneous triptan injections. It has no adverse side effects and again using the procedure of hyperventilating with room air at forced vital capacity tidal volumes for 30 seconds followed immediately by inhaling a lungful of 100% oxygen and holding it for 30 seconds then repeating this sequence until the CH pain is completely gone usually takes an average of seven cycles - 7 minutes consuming less than 30 liters of oxygen , ~5 cents worth of oxygen gas/abort.
  21. xxx

    Vitamine D3

    Hey Cocobongo, Sorry about the delay in responding. We were on travel to stay with kids most of December so I missed your post above on the 12th. Your English is great and it appears you've a handle on the CH beast. Please keep me posted. Take care and Happy New Year. V/R, Batch
  22. To All, As a member of the American Academy of Neurology (AAN) as a vitamin D3 and cluster headache researcher, I receive one or more of the AAN publications a week. There was a recent article about reactions to treatments with chimeric "ximab" and humanized "zumab" monoclonal antibodies (mAbs). The general theme is a serum sickness with an allergic reaction followed by developing Anti-Drug Antibodies (ADA) in the form of Anti-Chimeric Antibodies measured by lab tests. These Anti-Chimeric ADA reactions to mAbs like Galcanezumab (emgality) occur roughly a week to 10 days aft
  23. Hey MRUPE, Thank you for the kind words. All humility aside, if the CH beast is jumping ugly making your life miserable, you're missing a very safe and effective CH prophylaxis by not starting the anti-inflammatory regimen. I'm a 75 year old retired Navy fighter pilot, with a degree in Chemistry, a CHer since 1994, chronic since 2005 and a pragmatist. If I were faced with a CH intervention offering 80% to 90% efficacy that's proven to be safe and effective over the last 10 years with direct feedback from over 300 CHers from 30 different countries including lab test data, I'd go for it.
  24. Nice try... You'll see the name soon enough when recruiting starts. Until then, my lips are sealed. I don't want any goon squads from Big Pharma screwing the pooch.
  25. Hey MRUPE, Welcome to Clusterbusters. You've come to the right place. We know what you've been going through and the good news is it just doesn't need to be that way. You've already discovered the wonderful benefits of oxygen therapy. I only wish more CHers would pressure their neurologists to obtain it. As you appear to be taking a discerning approach in selecting a CH preventative treatment protocol, you may find the following of interest. I'm heavily biased to suggest the anti-inflammatory regimen with vitamin D3 and the cofactors as a safe and effective method of controlling
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