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xxx

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Everything posted by xxx

  1. If you want a great oxygen regulator with a flow rate that will blow your shirt-tail out, give the FlotecO2 order desk a call and tell them you're a cluster headache sufferer and want one of their 0 to 60 liter/minute CGA-540 "InGage" oxygen regulators. I've had one since 2005... They're fantastic. Order it with a barb fitting for the Cluster O2 kit and single DISS fitting for an oxygen demand valve. Cost ~ $190 625 West New York Street Indianapolis IN 46214-4911 www.floteco2.com Phone: 317-273-6960 Fax: 317-273-6979 Order Desk: 800-401-1723 e-mail: flotec@flo
  2. I've had a welder's M-size O2 cylinder in my garage since June of 2010... That was before I developed and started taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3 plus Omega-3 fish oil and the rest of the co-nutrients 10 October 2010. I burned through the first and second M-size cylinders through September of 2010. I picked up the 3rd refill in early October 2010. It still has 1200 psi... and I actually do a little brazing (welding) and cutting at times... An oxygen concentrator will work just fine if you use it fill a Redneck Oxygen Reservoir bag ahead of time... i.e
  3. Hey Nikki, As I'm the CHer who developed the anti-inflammatory regimen and provided outreach on its benefits in preventing CH for the last 8 years to hundreds of CHers, it's best to take this regimen with the largest meal of the day. This helps avoid GI tract disturbances and aids in absorption. Many CHers have found starting this regimen with the 12-Day accelerated vitamin D3 loading schedule taking 50,000 IU/day for 12 days. This is the fastest way to elevate your serum 25(OH)D up into the therapeutic range around 80 ng/mL where most CHers respond with a significant reduction in
  4. xxx

    Vitamine D3

    Christopher, Good on you for spreading the word... and for taking the survey. Thanks also for the email update. Take care, V/R, Batch
  5. Katrina, That's not a cocktail... It's polypharmacy! No wonder you're having problems. Check your message InBox. Take care, V/R, Batch
  6. Hey Katrina, Welcome aboard. I suspect you are vitamin D3 and magnesium deficient. These deficiencies can easily contribute to SUNCT/SUNA and the rest of the TACs. The Standards of Care recommended treatments for SUNCT are frequently Antiepileptic medications which are useless as you already know and do more harm with adverse side effects that any good in preventing these headaches... I usually suggest headache sufferers see their PCP/GP for a lab test of their 25(OH)D serum concentration. However, there in the UK, your NHS guidelines usually prohibit this lab test unless there
  7. xxx

    Vitamine D3

    Hey Spiny, I've kept my 25(OH)D serum concentration between 127 ng/mL and 188 ng/mL for the last 5 years and currently 163 ng/mL. In that time my serum calcium remained within its normal reference range so no hypercalcemia a.k.a., vitamin D3 intoxication/toxicity. My PCP is ok with my 25(OH)D this high as long as my serum calcium remains in the normal reference range. He still makes a notation in my medical record that he suggested a lower vitamin D3 dose. This is a CYA action. Accordingly, there's nothing wrong with a 25(OH)D serum concentration of 124 ng/mL as long as it keeps you
  8. Hey Ex_Spud, The American Academy of Neurology (AAN) and American Headache Society (AHS) both list CME programs focused on primary headache, (they cover Diagnosis and Standards of Care with recommended treatments for cluster and migraine headache). These CME courses should be available to neurologists and headache specialists in every state. Take care, V/R, Batch
  9. Hey Plhbn, Welcome to Clusterbusters... Sorry about the return of your CH... If there's anything predictable about this disorder is it's unpredictable... Accordingly, crap happens... The best form of vitamin D3 suggested today is Bio-Tech D3-50. I buy it from amazon at the following link. https://www.amazon.com/Bio-Tech-D3-50-000-100-caps/dp/B00CFBAFIY/ref=sr_1_5_a_it?ie=UTF8&qid=1548523894&sr=8-5&keywords=Bio-Tech+D3-50 This is a water soluble 50,000 IU capsule that makes it far more bio-available than the oil-based liquid soft gel formulations
  10. xxx

    Newbie

    Hey Headsufferer, Welcome to Clusterbusters. You need to join Clusterheadaches.com at the following link and talk with DJ, a.k.a., Dennis Johnson. He started CH.com and had Moya Moya. He also had surgery for his Moya Moya so will be a valuable resource for you. www.clusterheadaches.com Check your message InBox, I've sent you some additional info. Take care, V/R, Batch
  11. Hey Oxy-Man, You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. If you think I'm blowing smoke... see your PCP/GP or neurologist and ask for the lab test of your serum 25(OH)D. This is the first metabolite of vitamin D3 that's used to measure its status. Take along a copy of the anti-inflammatory regimen CH and MH preventative treatment protocol and discus it with your doctor when you ask for this lab test. You can download a copy at the following link. http://www.vitamindwiki.com/tiki-download_wiki_attachmen
  12. xxx

    Vitamine D3

    Hey Freud, I've been providing outreach information about the anti-inflammatory regimen since December of 2010, a month after I developed it. Since then I've received valuable feedback from from hundreds of CHers taking it. Accordingly, this knowledge base provides answers to most questions. The online survey of CHers taking this regimen to prevent their CH has been running continuously since December of 2011. As of 1 Jan 2019, it's collected 293 completed and submitted surveys providing excellent clinical data. With 80% of CHers who start this regimen experiencing a significant
  13. xxx

    Vitamine D3

    Hey Virrr, Thank you for the feedback. Having CH return after an initial pain free response to the anti-inflammatory regimen is not uncommon and easily fixed. It happens to roughly 5% of CHers starting this regimen. What has likely happened is you've burned up available cellular concentrations of magnesium that's needed to hydroxylate (metabolize) vitamin D3 to its genetically active metabolite 1,25(OH)2D3. The simple fix is stop taking vitamin D3 loading dose for a day or two and double the magnesium dose to 800 mg/day split 400 mg in the morning with breakfast and 400 mg with
  14. AliKhan, Yeppers... the vitamin B complex and vitamin B2 in particular will turn urine bright yellow for a few hours after taking it. Curcumin and oranges sound great! Don't forget the Quercetin... Take care and please keep us posted V/R, Batch
  15. Hey Alikhan, Thank you for the update, lab results and list of supplements. They look great. That you haven't responded with your 25(OH)D up at 110 ng/mL (well into the green zone for CHers) tells me we are missing something... Are you taking any other Rx medications? If so, what are they. There are a number of other supplements you can take that have helped CHers improve their response to the anti-inflammatory regimen with a 25(OH)D serum concentration in the green zone. They include: A first-generation antibiotic like Diphenhydramine (Benadryl) 25 mg every four hours
  16. Hey Joe, How far are you from my favorite haunt in the UK, the Imperial War Museum Duxford? Take care, V/R, Batch
  17. FunTimes, Have you had a recent lab test of your serum 25(OH)D? Off hand, I suspect you're experiencing a CGRP cascade. Calcitonin Gene-Related Peptide, and its nasty peptide cousin, Substance P (SP), are responsible for the neurogenic inflammation and terrible pain we know as CH. During a CGRP cascade, the CGRP and SP generated during the pain phase of CH triggers mast cells to release histamine. The histamine, in turn, triggers neurons in the trigeminal ganglia to release even more CGRP and SP. This creates a circular biochemical chain reaction causing a flood or cascade of
  18. Hey JJ, Welcome to Clusterbusters. I've sent you a message so check your InBox by clicking the envelop icon at the top right corner of this page. As your PCP is willing to work with you, be sure to ask for the lab test of your serum 25(OH)D. You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. Take care, V/R, Batch
  19. There are several migraine studies that have shown avoiding sugars and wheat products is prudent in diet selection. I'd also add eating organic NON GMO veggies and fruits along with free range organic meat, poultry and eggs is a great way to go. A serving or two of wild caught fish a week is also great.The rationale for avoiding GMO food types is they all contain glyphosate - a herbicide called Roundup. Nearly all GMO crops were genetically modified to resist Roundup. As the friendly colonies of bacteria called the microbiome living in our GI tract are all nearly all members of the plant fa
  20. Maria, There's more to the anti-inflammatory regimen CH preventative treatment protocol than it appears you are taking. You can find the complete description of the supplements and their doses for this regimen at the following link. All the vitamin D3 cofactors are essential with magnesium and zinc being the most important as they are needed for vitamin D3 metabolism. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 The 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day for 12 days is the fastest way to elevate your serum 25(OH)D into the t
  21. Hey Atikhan, It's not uncommon for a few CHers to experience phantom CH where there's no pain but some of the other symptoms. Experiencing some CH symptoms with no CH pain tends to indicate your cellular concentrations of vitamin D3 and 25(OH)D are being metabolized to enough 1,25(OH)2D3 to stop the pain, but not enough to stop the other CH symptoms. CHers experiencing this phenomenon have found a few more days of 50,000 IU vitamin D3 loading doses and/or a higher vitamin D3 maintenance dose works to prevent all CH symptoms. As always, keep your PCP and or neurologist in the loop and b
  22. Alikhan, I'm trying to answer your questions but this website keeps rejecting my reply. I'll try again later. Take care, V/R, Batch
  23. Elrik, You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. I would pick up the following tomorrow along with some Benadryl (Diphenhydramine HCL) 80% of the CHers who start this regimen at the doses illustrated above, experience an 80% reduction in the frequency of their CH in the first 30 days. 50% who start this regimen experience a complete cessation of CH symptoms in the first 30 days. The majority of CHers start responding to this regimen within the first 10 days. You can find more about this regi
  24. Hey CHChris, Thank you for your service and the kind words. It was a tough battle as always between the UW and WSU this year... fortunately both teams came away with bowl games ahead. I served with both fast attack and boomer skippers at USPACOM '83-'88, so have a great deal of respect for the guys and gals who fly or flew their boats under water to keep us safe. The Sub Base at Bangor, WA is 10 minute drive from home... I kept nearly all of my GMTs busy training at SWFPAC while Gun Boss on Kitty Hawk going through COH at Puget '81-82. The training paid off... We were the first carri
  25. Freud, Fair question and thanks for the kind words. I'm a 74 year old retired Navy Fighter Pilot. I was flying Navy fighters like the F9-F8 Cougar and F-8 Crusader, a.k.a., Mig Master before they started the first Top Gun class... I've a degree in Chemistry and at one point, was considering a career in medicine... I got a ride in a Navy trainer aircraft (T-34) my Junior year at the U of W, Seattle and that sealed the deal... The thought of flying Navy fighters appeared to be be a lot more fun than another 6 years of school so I joined the Navy to fly in 1965... I'm also a long time
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