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xxx

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  1. We did a pilot study of the oxygen demand valve method of aborting CH in 2008 with 7 CHers. 4 of the CHers used the oxygen demand valve breathing at respiration rates that produced the effects of hyperventilation. The other 3 used a 0-60 liter/minute InGage regulator from Flotec set at 40 liters/minute. Both methods produced the same rapid CH aborts in an average of 7 minutes to a CH pain free state across CH pain levels 3 to 9 using the 10-Point Headache Pain Scale. The seven CHers collected abort times and pain levels for a total of 8 weeks each. This resulted in data for a total of 366 a
  2. Hyperventilating with 100% oxygen is 95% effective for 95% of CHers. The down side of this breathing procedure is it consumes a lot of oxygen... like 250 liters per abort. The key is hyperventilating as that lowers arterial CO2. Accordingly, hyperventilating at forced vital capacity tidal volumes for 30 seconds with room air then inhale a lungful of 100% oxygen and hold it for 30 seconds is just as effective. Repeat this sequence until the CH pain stops. That usually takes an average of 7 complete cycles (7 minutes) and consumes roughly 25 liters of oxygen... One tenth of what's consumed
  3. ClusterHubby, How much vitamin D3 is your wife taking? Is she taking all the cofactors? Did she start the 3-month course of vitamin B 100 complex? Has she had the lab test for her serum 25(OH)D? If her serum 25(OH)D is not up around 80 ng/mL (200 nmol/L), she needs a higher vitamin D3 maintenance dose. Many CHers with her problem found relief by taking a 50,000 IU loading dose for 3 to 4 days then dropped back to a new vitamin D3 maintenance dose of 15,000 IU/day. Has she tried a first-generation antihistamine like Diphenhydramine (Benedryl)? Don't forget diet. Zero sugars, ze
  4. Hey Brian, As the guy who developed the anti-inflammatory regimen to prevent CH, I'll second CHfather's suggestion to read all about it. It works to prevent both CH and migraine. I suspect it's also effective for the rest of the TACs. I'd also suggest a trip to your PCP/GP for a lab test of your serum 25(OH)D. This is the serum level metabolite of vitamin D3 that's used to measure its status. The following chart illustrates baseline 25(OH)D results from CHers with active bouts of CH before starting the anti-inflammatory regimen. The normal reference range for the 25(OH)
  5. Hey Seff, Thank you for the update. It appears you're responding nicely to the vitamin D3 loading schedule... Good on you for skipping the prednisone. It would have helped a little, but slowed down the vitamin D3 response. You're on the right track at this point. Another round of labs for your serum 25(OH)D, calcium and PTH will be in order after 30 days on this regimen. You'll be looking for a 25(OH)D serum concentration up around 80 ng/mL (200 nmol/L), calcium within its normal reference range (That means no vitamin D3 toxicity) and PTH in the lower third of its normal reference ra
  6. Elrik, 5,000 IU/day vitamin D3 is fine for healthy adults... That said, it is too low a dose for CHers with active bouts of CH. 10,000 IU/day has been the go to daily maintenance dose of vitamin D3 following a 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day for 12 days. The following graphic illustrates the rational for this dosing schedule. As you can see, the 12-Day loading schedule elevates serum 25(OH)D rapidly into the therapeutic range around 80 ng/mL where most CHers respond to this regimen. At just 10,000 IU/day it could take 2 to 3 months to elev
  7. Hey Dandownunder, There is almost always a reason why some CHers don't respond to the anti-inflammatory regimen. Have you had a recent lab test for your serum 25(OH)D concentration? The most common reason for non-response is a low 25(OH)D response below the therapeutic range around 80 ng/mL, (200 nmol/L). If that's the case, a higher dose of vitamin D3 may be needed. Several CHers including me have found the Bio-Tech D3-50 water soluble vitamin D3 is more effective than the liquid soft gel vitamin D3 formulations. Taking all the cofactors... including Omega-3 fish oil and a 3-month
  8. Hey CHMom and Muggle, Welcome to the anti-inflammatory regimen CH preventative treatment protocol with vitamin D3, Omega-3 fish oil and the vitamin D3 cofactors. You've both made a very good decision starting this safe, effective and healthy regimen. The following chart from the online survey of 283 CHers taking this regimen illustrates the reported time to respond by day. As you can see, the 80% of CHers who respond to this regimen do so within the first 30 days and the majority of them respond in the first two weeks. Muggle, you're doing great as an early bird responding in
  9. Glo, Muscle cramps (not tummy/GI tract disturbances) are usually an indication of not enough magnesium. Vitamin D3 at the doses we take consumes magnesium. Without adequate magnesium supplements, we end up with a poor calcium - magnesium balance with too little magnesium. Our muscles need calcium to contract and magnesium to relax... Without a proper calcium - magnesium balance, muscle cramps are likely. Have your husband try doubling the magnesium with 400 mg in the morning with breakfast and 400 mg with the evening meal. Splitting the magnesium dose like this helps prevent osmotic
  10. Hey Seff, You've taken the right course of action to prevent your CH. I'm confident you'll be happy with the results. Please let us know the results of your 25(OH)D lab test. My guess is your results will fall under the following normal distribution curve for baseline 25(OH)D test results from 257 CHers before start of regimen. Take care, V/R, Batch
  11. Hey Dandownunder, We ran a pilot study of the oxygen demand valve method of aborting CH back in 2008 with Seven (7) CHers (6 CCHers and 1 ECHer) collecting abort time and pain level data on every abort with this method of oxygen therapy for a period of 8 weeks each. I developed this method of oxygen therapy as a CH abortive in 2005 using a flow rate type oxygen regulator good to over 70 liters/minuet and modified it to work with an oxygen demand valve in late 2007. I also hold a patent for the method of oxygen therapy. An oxygen demand valve delivers oxygen on demand just the same
  12. Hey Chano, The best course of action is to pick up some 5,000 IU vitamin D3 soft gel capsules and 400 mg magnesium softgels, Omega-3 Fish oil and 50+ Adult Mature Mulit shown with daily doses in the following photo. They're available at Cosco and most super markets. Rationale... You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. Colds are a viral infection so will also respond to large doses of vitamin C and zinc. I take 6 to 8 grams (6000 to 8000 mg/day) of vitamin C and 50 mg/day zinc if I feel a cold
  13. Hey Glo, Thank you for the feedback and great news your husband is responding well to the anti-inflammatory regimen. After 24 years with CH, chronic since 2004, I know the wonderful feeling the first time you wake up and realize you haven't had a CH in 24 hours... I've been CH pain free since I developed and started this regimen in October of 2010. The best course of action at this point is for your husband to stay on the anti-inflammatory regimen. A few days of a vitamin D3 loading dose of 50,000 IU/day vitamin D3 should take care of the shadows. After that, a vitamin D3 maintenanc
  14. Hey Seff, Regarding vitamin D3 loading doses... I've been suggesting a total loading dose of 600,000 IU of vitamin D3 when starting with a low serum 25(OH)D concentration. This total loading dose of vitamin D3 can be taken all at once (there are several studies where this was done in a single oral dose with no adverse reactions) or spread out over 2 to 4 weeks. We've seen excellent results with the 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day for 12 days followed by a drop in vitamin D3 dose to an initial daily maintenance dose of 10,000 IU/day. I've also sugges
  15. Antibiotics are a necessary evil when treating significant bacterial infections. They do nothing for viral infections. That's where a healthy immune system comes into play as that's how the body fights off viral infections. Again, there are no pharmaceutical silver bullets for viral infections. The best response to a course of antibiotics is to start at least a month long course of probiotics to rebuild and recolonize the friendly bacteria in the GI tract called the microbiome that were destroyed by antibiotics. This is an important course of action as the majority of our immune syst
  16. Hey Stev, Be sure to ask for the 25(OH)D lab test. Data from the online survey of CHers with active bouts of CH starting the anti-inflammatory regimen with 10,000 IU/day vitamin D3 and cofactors indicate they all have low levels of vitamin D3. The following normal distribution chart illustrates the results of baseline 25(OH)D lab tests taken before starting this regimen. Take care and please keep us posted. V/R, Batch
  17. Madam, Thank you for the feedback and answers... Glad to hear you're CH pain free. Now we need to address the GI tract disturbance... My first inclination is for you to drop back to an initial vitamin D3 maintenance dose of 10,000 IU/day to see if that has any effect on the tummy problems. If there's an improvement after a week, you may be able to throttle back to 5,000 IU/day vitamin D3. Let's give that a go... Check the back label on the cal-mag tablets to see what kind of magesium salt is used. Magnesium citrate tends to cause the GI tract problems you're experiencing. T
  18. Hey Madam, Sorry you're having a rough time... Have you been taking all the vitamin D3 cofactors listed in the anti-inflammatory regimen CH preventative treatment protocol at the following link? http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 They need to be taken with vitamin D3... preferably with the largest meal of the day and not on an empty tummy. If you have been taking them, the stomach cramping and diarrhea may be due to the magnesium. What brand and type of magnesium are you taking? The supplements I've been taking to prevent my chr
  19. Hey Elrik, You're likely vitamin D3 deficient and that deficiency contributes to the frequency, severity and duration of your migraine and cluster headache as well as your other related medical problems including MS. See your PCP for the lab test of your serum 25(OH)D. This is the first metabolite of vitamin D3 that's used to measure its status. The normal reference range for this lab test is 30 to 100 ng/mL. Migraineurs and CHers need to maintain their serum 25(OH)D ≥80 ng/mL. That will require 10,000 IU/day vitamin D3 or higher. You can find the anti-inflammatory regimen CH pr
  20. CHers, I need your help with the online survey of CHers taking the anti-inflammatory regimen to prevent CH. This survey has been running since December of 2011. I'll be taking a harvest of the survey database in late December to mark the 7th year it's been running. This is the longest running study of vitamin D3 and its cofactors as a CH preventative. Data from this survey is exactly the kind of medical evidence physicians, neurologists and headache specialists need to start suggesting this regimen to their patients with primary headache. If you've been taking this regimen for mo
  21. Hey Jeff, I've kept my Cluster Mask Kit in a ziplock bag when not in use. It's 12 years old, but hasn't been used much since I acquired an oxygen demand valve. I keep the demand valve in a ziplock bag as well as the oxygen cylinder top and first stage regulator. Even my demand valve isn't used much except for demonstrations since I developed and started taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3 and its cofactors in October of 2010. It's an effective CH preventative treatment protocol that's kept me essentially CH pain free ever since. You can read more about
  22. Brendan, You're more than likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. You need the lab test of your serum 25(OH)D. This is the serum level metabolite of vitamin D3 that's used to measure its status. The normal reference range for the 25(OH)D lab test is 30 to 100 ng/mL. As CHers, we need to keep our serum 25(OH)D up around 80 ng/mL and sometimes higher to prevent CH or significantly reduce its frequency. Unfortunately most physicians will interpret the result of this lab test as normal with a 25(OH)D serum concentr
  23. Jimmy, I've been a CHer for more than 25 years. It started as episodic then switched to chronic in 2004. I've been essentially CH pain free since developing and starting the anti-inflammatory regimen with 10,000 IU/day vitamin D3 plus the cofactors in October of 2010. I say essentially as 2 to 3 times a year I intentionally stop taking vitamin D3 but take the rest of this regimen until I feel a CH. It can take as little as 3 days and as long as 35 days for my CH to return depending on the pollen/mold spore count. A quick 50,000 IU loading dose and I'm usually back CH pain free in les
  24. Hey Popoid, Absorption and metabolism of vitamin D3 are both important parts of its pharmacokinetics (what the body does to vitamin D3). The fascinating part of this discussion is the metabolism (hydroxylation) of vitamin D3 that provides the CH preventative effect takes place within neurons in our trigeminal ganglia. There are several moving parts to this mechanism of action that all start with absorption of vitamin D3 from the GI tract into the blood stream. The next step is to pass through the blood brain barrier (BBB) lining arteries and capillaries within the brain. Once th
  25. Hey CoryAnn, Please see my post in the "Vitamins" topic here on the General board. It has the important new updates to the anti-inflammatory regimen. One of the most important steps in starting this regimen is to have your husband discuss it with his PCP/GP and to ask for the lab test of his 25(OH)D serum concentration. Take care and please keep us posted. V/R, Batch
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