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xxx

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Everything posted by xxx

  1. It's called air conditioning. Edited to Add: I had an interesting exchange with Dr. Cicero Coimbra, MD, PhD, on his high dose vitamin D3 protocol for his MS patients. The starting vitamin D3 dose is 1000 IU vitamin D3 per Kg body weight per day. At 80 Kg, I would be taking 80,000 IU/day vitamin D3 if I was on his treatment protocol. When I asked why so many people had MS in Sao Paulo, Brazil where the Latitude is -23.5º North, about the same distance South of the equator as Key West, FL is North of the equator, so they should be getting lots of cutaneous vitamin D3 from the su
  2. Hey Paul, When you see the doctors today, ask for the lab test of your serum 25(OH)D. 25 Hydroxy-Vitamin D is the first metabolite of vitamin D3 that's used to measure its status... It's axiomatic if you're having an active bout of CH... you're vitamin D3 deficient as illustrated in the following graphic from the online survey of 257 CHers. This chart illustrates the normal distribution of lab results for 25(OH)D before starting the vitamin D3 regimen. The normal reference range for this lab test is 30 to 100 ng/mL. Any value less than 30 is insufficient/deficient. 80% of CHer
  3. If you want some insights into the commonality of migraine and cluster headache, download and absorb the following link... It will make you an expert on the topic. Keep in mind this paper was written during the hype and mania over anti-CGRP monoclonal antibodies.... We know better now that these mAbs are neither silver bullets or all that effective, just an expensive way to expose yourself to some onerous adverse side effects. Take care, V/R, Batch https://www.researchgate.net/publication/327810063_Migraine_and_cluster_headache_-_the_common_link Abstract Although clinic
  4. Hey CBWMHH, Most modern digital cameras have both low light and time lapse video functions. Set up a camera pointed at you with these functions enabled at bedtime. You might find something. Take care and please keep us posted. V/R, Batch
  5. Hey CBWMHH, I checked the online survey database of 300 CHers... No comments about insomnia. In fact, most comments about sleep indicated it was better with vitamin D3. Dr. Stasha Gominak recommends a good vitamin B complex tablet daily to help with sleep. I've met her... She's the real thing. https://drgominak.com/ What are your sleep patterns? Do you take naps during the day? Do you feel rested when you get up? Take care, V/R, Batch
  6. Hey Dana, The Adult 50+ Mature Multi contains most of the vitamin D3 cofewactors/conutrients. It just doesn't have enough magnesium or any vitamin K2. There are additional supplements that can be added if there's no response to the above supplements. They include vitamin C as the human genome and that of all primates lost the gene for the enzyme needed to synthesize vitamin C from carbohydrates. None of the other animals that synthesize their own vitamin C have cardiovascular disease... That's a thinker... Accordingly, 4 to 6 grams/day vitamin C is a good dose. The other supplement
  7. Hey Mark, Any 25(OH)D serum concentration above 100 ng/mL will be assessed as "High". Please don't let that bother you. The technoids (not real vitamin D3 experts) who set the upper limit for the 25(OH)D normal reference range knew that 200 ng/mL was likely safe, but where a few people start experiencing hypercalcemia (too much serum calcium) so they wanted to be uber safe and conservative so set the upper limit at 100 ng/mL. If you're still getting hit with CH with your 25(OH)D at 120 ng/mL, you may need a higher vitamin D3 dose and a 25(OH)D serum concentration up around 140 ng/mL to
  8. JH, On a related note, they discovered I had an autoimmune eye disorder called uveitis when I had the detached retina. As a result of this diagnosis, I took part in a clinical trial of a monoclonal antibody called daclizumab at the National Eye Institute, NIH, Bethesda, MD. The informed consent document for this clinical trial of daclizumab was filled with a long list of frightening adverse side effects, but the thought of my retina rejecting me and going blind was a bigger fear so I signed the consent form. Long story made short, the daclizumab worked, but it destroyed my immune syste
  9. Hey JH, Floaters happen with age. They occur when the eyeball starts to elongate from a spherical shape to a grape shaped structure. This elongation causes the vitreous humor, the clear jello inside the eye, to put stress/tension on the retina causing microbleeds... the floaters you're seeing. Floaters happen to people without CH. See your PCP for an ophthalmology consult. You need a thorough eye exam... The incidence of spontaneous retinal detachment also goes up as we age... Been there, done it, had a detached retina and posterior vitrectomy to prove it. Take care, V/R,
  10. Hey Clusterwife06 and Maddie3, Take a look at the link titled "D3 Regimen for CH' in the Theory and Implementation section. It has everything you'll need to take control of CH. You can also click on the following link, it will pull up this same post. Take care and please keep us posted. V/R, Batch https://clusterbusters.org/forums/topic/6194-d3-regimen-for-ch/
  11. Sorry to sound like a stuck record... (Hmmm I guess that phrase dates me...) but starting the anti-inflammatory regimen with the 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day vitamin D3 for 12 days followed a maintenance dose of 10,000 IU/day of vitamin D3 and the rest of this regimen has a high probability of ending your angst by preventing your CH. The following chart illustrates the favorable response rate by day after starting the anti-inflammatory regimen for 80% of CHers who start this regimen. This figure improves the longer CHers stay on this regimen. Th
  12. Hey Brain on Fire, Good on you... That much exposure to the UVB in direct sunlight puts you in the same category as SoCal life guards.. Their mean 25(OH)D serum concentration is around 50 ng/mL with a few up to 80 ng/mL. That said, if the CH beast is still jumping ugly... that's not high enough. Hope to see you in Dallas. I'll be waiting at the bar. Take care, V/R, Batch
  13. G'Day Dana, ZipLock bags work great! That is unless you've a mob of Roos going through your goodies... The accelerated vitamin D3 loading schedule works best if taken daily. Some Vitamin D3 loading schedules call for a single oral dose of 600,000 IU of vitamin D3... The problem you run into is you also need a constant supply of magnesium. Taking more than 1000 mg/day is a sure fire way for osmotic diarrhea. Take care, V/R, Batch
  14. OK, Brain on Fire, Do you spend 20 to 30 minutes 5 days a week in the mid-day sun clad in speedos with no sun block? Arms, legs and neck don't amount to much cutaneous vitamin D3 as measured by a lab test for 25(OH)D above 30 ng/mL even in SoCal and FL. As CHers we need our serum 25(OH)D up around 80 ng/mL for a favorable response with a significant reduction in the frequency of our CH. Many of us need an even higher 25(OH)D serum concentration between 80 and 120 ng/mL at times even higher for a complete cessation of CH. You can always get the lab test for 25(OH)D and prove m
  15. Hey Dana, Just tell your PCP you've been taking 50,000 IU/day vitamin D3 and need to check for toxicity... He'll freak out and order the labs for 25(OH)D, calcium and PTH ASAP! In reality, you could probably take that much vitamin D3 for a couple months and still not push your serum calcium above its normal reference range... That's called hypercalcemia a.k.a., vitamin D3 intoxication/toxicity... but you don't need to tell your PCP that... Take care, V/R, Batch
  16. Hey Dana, Climate is one factor when it comes to a geographic prevalence for CH, but latitude is the biggie. The farther North, the higher the prevalence. Skin type and more specifically the amount of dark pigmentation is also a significant factor. That said, there are also demographic cohorts near the equator where obtaining direct sunlight is not an issue yet some of these people also have a higher prevalence for CH. The reason for this is air conditioning. For example, there's a greater prevalence for CH and migraine in Finland per 100,000 than just about any other country in t
  17. xxx

    Any input

    Hey Voc Teacher. Howz the head? Vitamin D3 loading typically needs to be a minimum of 5 to 7 days at 50,000 IU/day when at higher 25(OH)D serum concentrations around 80 ng/mL to have a significant effect on CH frequency. Take care, V/R, Batch
  18. Hey J, Good question. CHers taking the anti-inflammatory regimen CH preventative treatment protocol with 10,000 IU/day vitamin D3 who were not responding by the end of the first week on this regimen have found allergic reactions were likely the cause of their non-response. A week to 10-day course of a first-generation antihistamine like Benadryl (Diphenhydramine HC) at 25 mg every four hours throughout the day has helped most of them. I don't have any data for CHers taking only the Benadryl (Diphenhydramine HCL). Take care, V/R, Batch
  19. Hey Dana Print out the following link and take a copy to your PCP when you ask for the lab tests of your serum 25(OH)D, calcium and PTH. Explain that you have cluster headache, you suspect you're vitamin D3 deficient and that this treatment protocol is very safe and healthy way of elevating serum 25(OH)D and help prevent your CH. This CH preventative treatment protocol has a section on lab tests your PCP should understand. Results from this first set of labs will give you a baseline to measure your progress when you come back for the same labs 30 days after starting this regimen.
  20. xxx

    Any input

    Hey Voc Teacher, How much vitamin D3 are you taking and have you had a recent lab test of your serum 25(OH)D? The two main reasons CHers don't go CH pain free on the vitamin D3 regimen are the vitamin D3 maintenance dose (and resulting serum 25(OH)D) are too low. 4 to 6 days at a vitamin D3 loading dose of 50,000 IU/day and a new maintenance dose 5,000 IU/day higher usually solves that problem. The other reason involves allergic reactions. In this case, a week to 10 days of a first-generation anti-histamine like Benadryl (Diphenhydraming HCL) at 25 mg every 4 hours during the da
  21. Hey Freud, Fair comments about my post to JH. Too much bravado and not enough factual data... I've fixed that with an edit. Take a look and let me know if it passes muster. Regarding the online survey data, I've kept my reporting of that efficacy data as objective as humanly possible. I'll be happy to show you the survey database this coming September at the Clusterbuster Conference in Dallas, TX. Credibility is everything when talking about efficacy of a CH intervention like Vitamin D3, so I'm not about to risk that credibility by making false, misleading or exaggerated claims.
  22. Hey JH, Start the anti-inflammatory regimen and the odds are high, like 80% you won't need oxygen... I say this as the online survey data from 293 CHers indicate 80% of the CHers who start this regimen experience a significant reduction in CH frequency from an average of 3 CH/day down to 3 to 4 CH/week (if you do the math, that works out to an 80% to 85% reduction in CH frequency) in the first 30 days. 50% of CHers who start this regimen experience a complete cessation of CH symptoms in the first 30 days. This online survey of CHers taking this regimen to prevent their CH has been runn
  23. Hey THMH, Great answers and assessment. I'll add to your comments. In 2005 after turning chronic, I developed a method of oxygen therapy that supports hyperventilation. It used oxygen flow rates between 25 and 40 liters/minute and resulted in average abort times around 7 minutes and better than 95% effective in terms of successful aborts over total attempts. Abort times this short and efficacy were clearly better than that obtained at a flow rate of even 15 liters/minute. I started posting about my experience with this new method of oxygen therapy on CH.com and was told by many
  24. Hey Mark, Thank you for your Service and sorry you're having such a rough time. I know what you're going through... A CHer with Migraines makes you a special case. Have the medical types at the VA ordered tests of your serum 25(OH)D, calcium and PTH? If not, you need to ask for these lab tests. What we've found over the last 8 years of CHers and migraineurs taking this regimen to prevent their headaches, is most chronic CHers and migraineurs need a higher vitamin D3 dose and higher resulting 25(OH)D response between 100 ng/mL and 150 ng/mL in order to bring their headaches under
  25. Hey Eggman, What CHfather said... I'll add the vitamin D3 conutrients/cofactors are very important for a favorable response to this regimen. You may have an initial favorable response to the vitamin D3 by itself, but without the supplemental 400 mg/day magnesium and the rest of the conutrients, the vitamin D3 will deplete what little magnesium you had in your system and this will create a calcium-magnesium imbalance with too much calcium and not enough magnesium. This condition can easily result in muscle cramps. It happens because our muscles require calcium to contract and mag
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