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xxx

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Everything posted by xxx

  1. Re: Ditch the Benadryl (and switch to Quercetin) – A little history and UPDATE When it was clear that a high percentage of CHers who were either slow responders or not responding to the anti-inflammatory regimen treatment protocol in early 2011, I began looking for reasons why. The common thread that emerged from all the feedback from CHers reporting this problem and searches of open source medical literature was a combination of allergic reactions and systemic inflammation. Both conditions involve the immune system. As systemic inflammation is common to nearly every medical cond
  2. Hey Krios, Falling out of CH remission while on the vitamin D3 regimen can happen to any of us. It happened to me in 2015 due to a pollen allergy and again in 2018 due to a mold spore allergy. We've learned a lot since then. The winning course of action to get back CH pain free is to start loading vitamin D3 at 50,000 IU/day, ditch the Benadryl (Diphenhydramine HCL) and start taking 3 grams/day Quercetin. Quercetin is an excellent antihistamine and unlike Diphenhydramine, there's no drowsiness or time limit on dosing. Bumping the Turmeric (Curcumin) dose to 3 grams/day also helps
  3. He Seff, Merry Christmas. Mold spores are bad news for me. I like your dosing plan. Check your InBox. I've sent you a message. Take care, V/R, Batch
  4. Hey Freester, Did you manage to obtain a lab test of your 25(OH)D3 serum concentration before stopping the anti-inflammatory regimen? After 10 years providing information outreach on the benefits of this 10,000 IU/day vitamin D3 plus cofactors regimen in preventing CH and receiving feed back from most, I've found that among the 18% who didn't respond in the first 30 days and who stopped taking this regimen, nearly all had failed to obtain the 25(OH)D3 lab test. In short, these CHers had no idea if they had elevated their 25(OH)D3 serum concentration into the therapeutic region
  5. Hey Tsmith, Your doctor needs to order your labs from Quest Diagnostics. Their lab for 25(OH)D goes up to 512 ng/mL. To my knowledge, the lab for the 25(OH)D3:24,25(OH)2D3 ratio is only available from Quest with a special form. I'd switch from Benadryl (Diphenhydramine HCL) to 800 mg/day Quercetin. Staying on Diphenhydramine for more than 10 days is not advised. Among other things, Quercetin in a good antihistamine. See my PM. Take care and please keep us posted, V/R, Batch
  6. Here are the results from the online survey I urge CHers to take 30 days after starting the anti-inflammatory regimen, with results of their 25(OH)D3 labs in hand. The following chart illustrates days to a favorable response from start of regimen. As you can see, this can happen rapidly. For the purpose of this study, I set the Favorable Response = at least a 70% reduction in CH frequency by at least 70% of the CHers starting it. I just checked the latest survey download from two days ago. After 9 years running, survey data from 340 CHers indicate 82% of CHers starting this regim
  7. Hey TSmith, Sorry to be so slow in responding. My bird dog must have missed your post or I missed its email alert. My suggestion is to see your doctor for the lab tests of your serum 25(OH)D3, calcium and PTH. If your serum 25(OH)D3 is still over 150 ng/mL and your serum calcium still in the normal range, there's something else going on. Reviewing the bidding. From your earlier post, you indicated you were taking the supplements illustrated in the following photo. The Bio-Tech D3-50 is proving to be faster acting with a higher bioequivalence in elevating serum 25(OH)D3 than t
  8. Loading at 100,000 IU/day for two days should elevate your 25(OH)D by 20 ng/mL which should bring your total serum 25(OH)D3 serum concentration up to 170 ng/mL. It takes roughly 24 to 36 hours for each dose of vitamin D3 to be hydoxylated by the liver to 25(OH)D3 so if there's no response 24 to 36 hours after the second loading dose of 100,000 IU vitamin D3, I would be tempted to add one more day at this loading dose. Of course a trip to your PCP/GP for another round of labs for your serum 25(OH)D3, calcium and PTH will be in order one way or the other in a week or two. The rest of
  9. Hey TSmith, Gotcha DD, You're doing great with respect to compliance (following the protocol) and keeping your PCP/GP in the loop. I love it when doctors are supportive of CHers starting this regimen. Your labs for 25(OH)D3, calcium and PTH are looking great. They also tell me you're likely battling inflammation with a 25(OH)D3 at 150 ng/mL and no clear reduction in CH frequency. I've been knocked out of CH remission with a 25(OH)D3 serum concentration around 120 ng/mL by allergic reactions. In both cases I needed to load vitamin D3 to elevate my 25(OH)D3 to around 188 ng/mL to exper
  10. Hey Bomachel, Do you have a copy of the latest version of the anti-inflammatory regimen treatment protocol? Take care, V/R, Batch
  11. Bomachel, The answer to your question is Yuppers, that's exactly the test we need and your calcium serum concentration looks great at 9.8 mg/dL. This is the assay to watch when loading vitamin D3. As long as your serum calcium remains within the normal reference range 8.6 - 10.2 mg/dL there is no vitamin D3 intoxication/toxicity and your actual 25(OH)D3 serum concentration doesn't really matter, except as a reference point with respect to your CH activity. All CHers have a 25(OH)D3 tipping point CH threshold serum concentration, above witch we're CH pain free and at or below this t
  12. Hey Bomachel, If you've read my last post in this thread to Gilad of a few minutes ago, you would know there's no reason for your wife to stop taking vitamin D3 and that a serum concentration of 150 ng/mL is perfectly safe. I keep my 25(OH)D3 up around 150 ng/mL to remain CH pain free and my PCP has no problem with this. He knows serum 25(OH)D3 is a poor indication of vitamin D3 intoxication/toxicity even if it's well above 100 ng/mL. It is a good idea to ask your wife's doctor for lab tests of your wife's serum calcium and PTH (Parathyroid Hormone). As long as her serum calcium is
  13. Hey Gilad, It's best die episodic CHers to remain on this regimen year-round. We chronic types don't have a choice. By staying on this regimen year-round, when your regularly scheduled episodic cycle time comes around, it's likely to be a non-event and you'll skate through the cycle CH pain free. On top of that, the health benefits of staying on this regimen year-round are hard to ignore like a super boosted immune system high on vitamin D3, helps prevent viral infections like COVID-19. Even if you do get infected, an immune system boosted on vitamin D3 reduces the severity of viral i
  14. Well done Double A. Great artwork! An art major working on is Masters at the Tyler School of Art and Architecture, Temple University, listened to my description of a cluster headache beast that chewed through my brain and eye socket, then sculpted the following as one of his art projects. It won an award so I took a photo of it. Take care and keep up the great art work. V/R, Batch .
  15. xxx

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    Hey Marlon, Double A, Check your PM InBox. I've sent you a message. Take care and please keep us posted. V/R, Batch
  16. Hey MM, I know what you've been going through and the good news is it doesn't need to be that way. You're very likely vitamin D3 deficient. When you see your doctor on Monday ask for labs of your serum 25-Hydroxy Vitamin D3, a.k.a., 25(OH)D3, calcium and PTH. The odds are very high your 25(OH)D3 will come back < 40 ng/mL. As CHers we need to maintain our 25(OH)D3 between 80 ng/mL and 100 ng/mL. We do this by taking at least 10,000 IU/day vitamin D3 plus the vitamin D3 cofactors. You can pull down a copy of the published treatment protocol at the following link. Readers of my
  17. Hey Mike, Vitamin D3 is not a monotherapy. To be effective in preventing CH it needs all the cofactors illustated in the following photo of what I take and suggest to other CHers. You can find the published treatment protocol at VitaminDWiki at the following link. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Readers of my webpage at VitaminDWiki have downloaded 61,671 copies of the anti-inflammatory regimen CH and MH preventative treatment protocol since I posted it on 21 Jan 2017. Dr. Mark Burish, MD, PhD, Director, Will Erwin Headach
  18. Hey Kate, Sorry you're having problems getting started on this regimen. I've sent you a PM to get the ball rolling to get you back on track for a speedy response to this regimen. Take care and please keep me posted. V/R, Batch
  19. To all, This is a dream come true. https://www.clinicaltrials.gov/ct2/show/NCT04570475?sfpd_s=09%2F16%2F2020&sfpd_d=14 This is the gold standard RCT protocol I've been working with Dr. Mark Burish, MD, PhD., Will Erwin Headache Research Center, UT Houston School of Medicine to develop for almost a year at this point. We cut a lot of corners getting the protocol down to two pills with two look alike placebos and no loading dose, but I'm confident this dose will result in at least 70% of CHers responding with a significant reduction in the frequency of their CH during the c
  20. This is a dream come true. https://www.clinicaltrials.gov/ct2/show/NCT04570475?sfpd_s=09%2F16%2F2020&sfpd_d=14 This is the gold standard RCT protocol I've been working with Dr. Mark Burish, MD, PhD., Will Erwin Headache Research Foundation, UT Houston School of Medicine to develop for almost a year at this point. We cut a lot of corners getting the protocol down to two pills with two look alike placebos and no loading dose, but I'm confident this dose will result in at least 70% of CHers responding with a significant reduction in the frequency of their CH during the course of
  21. Hey Siegfried, CPH responds to vitamin D3 at higher 25(OH)D3 serum concentrations when accompanied with other anti-inflammatory agents. Please shoot me a PM with your contact data so I can send you a copy of the latest version of the anti-inflammatory regimen treatment protocol. Take care, V/R, Batch
  22. Hey Nicole, Check your message InBox. I've sent you a PM. Take care, V/R. Batch
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