Jump to content

xxx

Advanced Members
  • Content Count

    579
  • Joined

  • Last visited

  • Days Won

    70

Everything posted by xxx

  1. xxx

    Vitamins

    Hey S.E., CHfather has given you the download link for the anti-inflammatory regimen of vitamins and minerals that help prevent CH. This regimen is effective for both episodic and chronic CHers although chronic CHers may need a slightly higher vitamin D3 dose and responding 25(OH)D serum concentration for a favorable response. One of the first steps in this treatment protocol is to see your PCP/GP to discuss this regimen and to obtain the lab test of your 25(OH)D serum concentration. Data from the online survey of 257 CHers that's been running since December of 2011 indicate near
  2. Hey Popoid, We know what you're going through and the good news is it doesn't need to be that way. You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH attacks. Download a copy of the anti-inflammatory regimen with 10,000 IU/day vitamin D3 plus the vitamin D3 cofactors and discuss it with your PCP when you ask for the lab test of your serum 25(OH)D. That's the serum level metabolite of vitamin D3 that's used to measure its status. The pain around your eye after the pain phase of a CH attack is called cutaneou
  3. Onglamesh, Alexandrax, Depression and anxiety attacks are part of the cluster headache syndrome. Some CHers experience clinically significant depression. We know what you've been going through and the good news is it doesn't need to be that way. Nearly all CHers are vitamin D3 deficient and that deficiencies contribute to the frequency, severity and duration of their CH. Solve that vitamin D3 deficiency and the odds are high you'll solve your CH problem... depression too. My name is Pete Batcheller, a.k.a., "Batch." I'm a 74 year old retired Navy fighter pilot and lon
  4. Hey Jimmy, How much vitamin D3 are you taking and have you had the 25(OH)D lab test lately? Most CHers taking the anti-inflammatory regimen need 10,000 IU/day vitamin D3 and an average serum 25(OH)D concentration response around 80 ng/mL for a CH pain free response. The following chart illustrates the normal distribution and cumulative probability of 25(OH)D lab results reported by 257 CHers in the online survey taking an average of 10,000 IU/day vitamin D3. The blue S-shaped sigmoid cumulative probability curve provides a good approximation of dose response as measured by ser
  5. Hey AZ, Even CHers who have been taking the entire anti-inflammatory regimen with 10,000 IU/day vitamin D3 and all the cofactors with a therapeutic 25(OH)D serum concentration around 80 ng/mL (me included) can experience "burn through" CH. The most common reason is an allergic reaction... An allergic reaction to CHers is like kryptonite to Superman. The first step if this is happening to you is to see your PCP/GP for the 25(OH)D lab test. If the results come back less than 70 ng/mL, I would increase the vitamin D3 dose. If the 25(OH)D lab test results come back greater than 80 n
  6. Hey John, I'm painfully aware Medicare refuses to cover oxygen therapy for medicare beneficiaries with CH. We fought this non-coverage determination in 2009-2010 but lost the battle to a bunch of Big Government bureaucrats who never had CH much less treated a patient with CH. If you want to go with oxygen therapy, take up welding... Welder's oxygen comes from the same distillation process as medical oxygen. I've used it for over 8 years... I'm still here... Just don't tell the welding supply folks what you intend to do with the welder's oxygen. Your best course of action is to g
  7. Jon, Thank you for the kind words. I've been in touch with the Principal Investigator for the vitamin D3 migraine prophylaxis RCT. He and his team are working the final manuscript for publication. Once that's out of the way and they can find the funding, a follow-on RCT using a vitamin D3 physiological dose of 10,000 IU/day is on their list of things to do. There's a good reason why the mAb RCTs can't achieve better efficacy. When you consider the site of action are neurons within the brain that produce calcitonin gene-related peptide (CGRP) and mechanism of action they espouse i
  8. Here's some good news on preventing migraines... Curr Med Res Opin. 2018 Sep 5:1-22. doi: 10.1080/03007995.2018.1519503. [Epub ahead of print] A randomized, double-blinded, placebo-controlled, parallel trial of vitamin D3 supplementation in adult patients with migraine. Gazerani P1, Fuglsang R1, Pedersen JG1, Sørensen J1, Kjeldsen JL1, Yassin H1, Nedergaard BS2. Abstract BACKGROUND: Vitamin D levels have been linked to certain pain states, including migraine. We investigated whether vitamin D supplementation would be beneficial for adult patients with migraine (ClinicalTri
  9. Take 10 of the Super D 1000 IU vitamin D3 capsules a day...
  10. Hey Matakarap, Don't wait... Start the anti-inflammatory regimen with 10,000 IU/day now. Download the treatment protocol from the following link and take a copy to your PCP to discuss when you ask for the lab test of your serum 25(OH)D. That way you'll both be singing from the same sheet music when you go back after 30 days on this regimen for lab tests of your serum 25(OH)D, calcium and PTH. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 I'd also suggest ordering some Bio-Tech D3-50 (50,000 IU water soluble vitamin D3 capsules). You star
  11. xxx

    Question

    Hey Lfrsweeney, As I'm the CHer who developed the vitamin D3 regimen, you can download a copy of the latest posted version of this treatment protocol at the following link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Be sure to discuss this regimen with your primary care physician when you ask for the lab test of your serum 25(OH)D. That way you'll both be singing from the same sheet music when you come back for labs of your serum 25(OH)D, calcium and PTH after 30 days on this treatment protocol. Take care and please keep us posted. V/R,
  12. xxx

    CH & Aneurysm

    LissaB, You might want to consider vitamin C as a hedge while you ponder surgical options... http://orthomolecular.org/resources/omns/v06n20.shtml Linus Pauling took 18 grams of vitamin C a day... lived to 93. https://www.youtube.com/watch?time_continue=2&v=7kGo0DfxQss Vitamin D3 and the vitamin D3 cofactors can also be helpful... and healthy. Take care and please keep us posted. V/R, Batch
  13. CHS, Have you seen your PCP for the lab test of your serum 25(OH)D? The odds are very high your vitamin D3 status is low to very low. Nearly all primary headaches respond to vitamin D3 therapy if the dose is high enough and all the cofactors are taken. Take care, V/R, Batch
  14. Hey Mum, In over 7 years starting well over 700 CHers on the anti-inflammatory regimen, there haven't been any reports of leg pain as a side effect. How old is your son and how much does he weigh? Take care and please keep us posted. V/R, Batch
  15. Hey Lizzy, I realize my next comments may appear to be coming from left field... or outer space... That said, here we go... You're very likely vitamin D3 deficient and that deficiency is contributing to the frequency, intensity and duration of both your cluster and migraine headaches. You don't need to take my word for this condition. All you need to do is call your primary care physician/general practitioner (PCP/GP) and ask for the lab test of your serum 25(OH)D concentration. This is the serum level vitamin D3 metabolite that's used to measure its status. The normal reference ran
  16. Hey Javan, I've sent you a message on the anti-inflammatory regimen CH preventative treatment protocol with at least 10,000 IU/day vitamin D3 plus the cofactors... Please let me know if you received it. Take care, V/R, Batch
  17. Hey Sunil, We know what you've been going through and the good news is it doesn't need to be that way... I've sent you a message with things to do to control your CH. Take care, hang in there, and please keep us posted. V/R, Batch
  18. Melanie, Here's the contact data for FlotecO2 FLOTEC Respiratory Products 7625 West New York Street Indianapolis, Indiana 46214-4911 USA Phone: (317) 273-6960 Fax: (317) 273-6979 Order Desk Telephone: (800) 401-1723 To follow up on or to place orders: orderdesk@floteo2.com The InGage 0-60 lpm oxygen regulator is the only one I know of that can deliver oxygen flow rates above 25 liters/minute. An optimum oxygen flow rate for rapid aborts is 40 liters/minute. 60 liters/minute works
  19. Hey Melanie, Unless you've a big burly guy handy to move large oxygen cylinders, I would suggest you order the M-size oxygen cylinder as they weigh 70 lb. The home oxygen supplier will deliver and set it in the location of your choice. Better yet, if they have them, order a couple Luxfer M-60 Aluminum oxygen cylinders. They're small enough for you to lug around and carry in your car as they weigh 24 lbs and hold 1700 liters of oxygen. It's about the size of a SCUBA Diving cylinder. The following link provides an image of the Luxfer line of Aluminum cylinders. https://www.bing.co
  20. Take care my friend. My prayers are with you and your wife. Please let us know if you need any assistance. V/R, Batch
  21. Hey Vanessa, I've sent you a PM with information about the anti-inflammatory regimen CH preventative treatment protocol. For a read-ahead, download a copy of this vitamin D3 treatment protocol at the following VitaminDWiki web site. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This treatment protocol works very effectively to prevent CH with no side effects or adverse events. Over 700 CHers have started this treatment protocol since December of 2010. Take care, V/R, Batch
  22. Hey Lily, I've sent you some information on the anti-inflammatory regimen with vitamin D3 and the cofactors as a method of preventing your migraine headaches. Several migraineurs have also reported that they've successfully aborted their migraine headaches with oxygen therapy at oxygen flow rates that support hyperventilation (15 to 25 liters/minute) or another method I've developed that calls for hyperventilating with room air at forced vital capacity tidal volumes for 30 seconds followed by inhaling a lungful of 100% oxygen and holding it for 30 seconds. You keep repeating this sequen
  23. Hey Ms Adequate, Starting the anti-inflammatory regimen with the 12-Day accelerated vitamin D3 loading schedule is the fastest way to a migraine and cluster free headache status. I've recently started taking Bio-Tech's 50,000 IU water soluble vitamin D3. It's great! I'm still battling allergic reactions so I can go roughly 72 hours between 50,000 IU Bio-Tech doses for an average of 16,700 IU/day. I order the above offer from Amazon at the following link. This is the least expensive form of vitamin D3 you can buy. You can do the accelerated vitamin D3 loading schedule with t
  24. FlWater, Saddly, there are too many CHers who were looking for relief from the terrible pain that submitted to surgical options and/or removal of teeth only to find the pain was not caused by a bad tooth or sinus infection. It was just cluster headache. The bottom line is try the first line cluster headache interventions before resorting to more invasive treatments. The best advice is see a neurologist or headache specialist with experience treating patients with cluster headache. The standards of care recommended treatments for CH prescribed by the top neurologists and headache
×
×
  • Create New...