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Boatman last won the day on March 6 2019

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  1. Hang in there Kat.. I'm sorry to hear that about your 02. I myself use welding 02 for similar reasons. Any chance you live in a populated area? It helps because on Craigslist and letgo people sell 02 tanks all the time. You might want to take a look.. some tanks are not too heavy.. the other thing you could try is just taking a ride to the welding/gas supplier near you because it's not uncommon for ch people to be use these places.. the supplier near me is very familiar with the condition. They might be more then willing to set you up with something. Refilling tanks is not expensive.. good luck. If you need any help don't be scared to ask..
  2. Don't recall any bad ear infections while growing up but I'm also a lefty with ch on the left.. I do suffer from frequent sinus problems
  3. Hey 81007 So I used the sumatriptan pills one cycle kinda like youre describing but like you said they only cover so many on insurance. The pills are cheap though I used to get a box of the 100mg for under 20$ out of pocket after my insurance wouldn't cover them. As long as you have a script call around for out of pocket prices.. I used to use the 50mg and get 4 to 6 hr breaks from headaches and the 100mg would last about 8 to 10 so I would take them at night to sleep. The only reason I stopped that way because when they wore off I would get my attacks and it seemed pointless after a while. 02 and energy drinks work for me now. Rather quickly too.
  4. CH father I think you're right.. I try to avoid my children and wife from seeing me in pain. I fight almost all my ch in the garage. I don't want my children to worry about me. They aren't little anymore but they along with others don't have the understanding of the amount of physical pain, therefore I think it's pointless to be around them during an attack. I have my diagnosis I do the best I can to accept it. I don't look for simpathy or to make it worse on anyone in my house. Its really not thier problem anyway so why put the burden on them. Help to me is calling the drs for me to make and appt or just a hug. Giving me space to fight it. Talking to others who have ch is where you're understanding will come from. My suggestion is to ask the person with ch what they expect from you or what they need. Ive been pain free for 5 months and this is my first post. You were saying something about some of us staying away from the site while pf and I'm one of them. Mostly because it consumes enough of my life so I owe it to myself and others to live the most I can in-between cycles. Its not any easy thing to swallow know that ch might chase me my whole life. I take my hat off to the rest who stay and help the new comers. I have deep respect for those of you. I hope I don't sound harsh.
  5. Hang in their Freud..I'm praying for you n that they let up.. if you need anything let me know
  6. Boatman


    My shadow feels like a super light ch, something you can still function and work will although very annoying pain.. caffeine won't work and neither will oxygen.. I hate to say it but sometimes I wish it would just go into a cluster for 15 to 20 mins so I can fight it with 02 and move on with my day.. by dinner time Im hurting pretty good.. I try ginger but it don't work for me.. sometimes I'll try a couple moltrin
  7. J.C you are right a cga540 threads on 02 tanks fit both medical reg and torch regs.. it's the cga870 post reg that won't work with the larger tanks.. I personally have two torch regs witch I love and work really well. One I keep in my truck and one at home.. I have full adjustment to as mush 02 as I need.
  8. I move into a chronic “mildCH” mode. Not sure what this means into light can you explain it to me? Have you checked on LETGO app or Craigslist they usually have 02regs on thier sites for sale.. I'm sure with all the retirement people in FL there's alot for sale.. I look at the sites daily for 02 stuff some really cheap too..
  9. Teacher I have the same problem, my neck hurts so bad while in cycle it makes me believe thiers something wrong with it. It hurts to the point sometimes it's as bad as my clusters. Freud is right.. focus on painfree days.. take it one day at a time.. sadly our loved ones can only understand so much.. The clusters have consumed me too where I can't stop wondering when the next is coming and what,when,where,how and why.. Day by Day my friend and good supportive people.
  10. There is also FMLA that some company's are required to honor. This allows you to use up all you're vacation and sick time then go unpaid if needed while still keeping you're job.. It's an option until you can get you're clusters under control
  11. Mr S. Not sure if you live near a major city or not but most have a headache center at University hospitals, when my wife tried to get me in at one they told her I would have to wait a couple months for an appointment and she told them "you don't understand he doesn't have a couple months he has cluster headaches" once they heard that they imeadiatly told my wife they would get me in and cluster headache patients get VIP appointments. It's worth trying to find one because May is not reasonable for a cluster headache person. Most regular neurologist don't specialize in cluster headaches and can be frustrating to deal with because of thier lack of knowledge on the condition.. I drive an HR to see a good nuero..
  12. I hope so.. it's been a couple days since I've had a low low level ch. I haven't had a full blown attack in 3 weeks.. As far as work goes, I have very supportive co-workers who have seen what ch looks like first hand and this includes my bosses. They allow me to take time go to my car and use my oxygen to abort. I have only used maybe 5 injections in four months of cycle. The oxygen and caffeine drinks without sugar are my best tactics. I try to avoid injections at all cost unless I'm ready for the ER.. I missed 3 straight weeks at the peak of my cycle.. fortunately I'm allowed to save my sick time every year so I do, just for my cycls.
  13. Boatman

    CH triggers

    I swear when I'm sleeping at night and the furnace kicks on for too long I wake up with a ch.. Its like the forced air makes it hard to breathe or it changes the pressure in the bedroom
  14. Boatman

    CH triggers

    X boss I couldn't agree more. I hate purfume!!. Candles and car freshners!! The couch sitting positions too.
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