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ClusterBusters

Boatman

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Boatman last won the day on March 6

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About Boatman

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  1. Boatman

    Boswellia Serrata

    Hang in their Freud..I'm praying for you n that they let up.. if you need anything let me know
  2. Batch is right.. I told my Dr I took 2 million iu of d3 in the month of march and she finally agreed to test mine under D3 toxicity.. I told her i didn't care if I had to pay out of pocket I wanted it checked. She luckily said she didn't want to see me pay out of pocket so she put it through D3 toxicity even though we both knew I wasn't toxic. My taste came back 63.
  3. Boatman

    Shadows

    My shadow feels like a super light ch, something you can still function and work will although very annoying pain.. caffeine won't work and neither will oxygen.. I hate to say it but sometimes I wish it would just go into a cluster for 15 to 20 mins so I can fight it with 02 and move on with my day.. by dinner time Im hurting pretty good.. I try ginger but it don't work for me.. sometimes I'll try a couple moltrin
  4. Boatman

    Welding oxygen regulator

    J.C you are right a cga540 threads on 02 tanks fit both medical reg and torch regs.. it's the cga870 post reg that won't work with the larger tanks.. I personally have two torch regs witch I love and work really well. One I keep in my truck and one at home.. I have full adjustment to as mush 02 as I need.
  5. Boatman

    Sumatripton help

    I move into a chronic “mildCH” mode. Not sure what this means into light can you explain it to me? Have you checked on LETGO app or Craigslist they usually have 02regs on thier sites for sale.. I'm sure with all the retirement people in FL there's alot for sale.. I look at the sites daily for 02 stuff some really cheap too..
  6. Boatman

    Any input

    Teacher I have the same problem, my neck hurts so bad while in cycle it makes me believe thiers something wrong with it. It hurts to the point sometimes it's as bad as my clusters. Freud is right.. focus on painfree days.. take it one day at a time.. sadly our loved ones can only understand so much.. The clusters have consumed me too where I can't stop wondering when the next is coming and what,when,where,how and why.. Day by Day my friend and good supportive people.
  7. Boatman

    New to this site. Help needed.

    There is also FMLA that some company's are required to honor. This allows you to use up all you're vacation and sick time then go unpaid if needed while still keeping you're job.. It's an option until you can get you're clusters under control
  8. Boatman

    New to this site. Help needed.

    Mr S. Not sure if you live near a major city or not but most have a headache center at University hospitals, when my wife tried to get me in at one they told her I would have to wait a couple months for an appointment and she told them "you don't understand he doesn't have a couple months he has cluster headaches" once they heard that they imeadiatly told my wife they would get me in and cluster headache patients get VIP appointments. It's worth trying to find one because May is not reasonable for a cluster headache person. Most regular neurologist don't specialize in cluster headaches and can be frustrating to deal with because of thier lack of knowledge on the condition.. I drive an HR to see a good nuero..
  9. Boatman

    Energy drinks

    I hope so.. it's been a couple days since I've had a low low level ch. I haven't had a full blown attack in 3 weeks.. As far as work goes, I have very supportive co-workers who have seen what ch looks like first hand and this includes my bosses. They allow me to take time go to my car and use my oxygen to abort. I have only used maybe 5 injections in four months of cycle. The oxygen and caffeine drinks without sugar are my best tactics. I try to avoid injections at all cost unless I'm ready for the ER.. I missed 3 straight weeks at the peak of my cycle.. fortunately I'm allowed to save my sick time every year so I do, just for my cycls.
  10. Boatman

    CH triggers

    I swear when I'm sleeping at night and the furnace kicks on for too long I wake up with a ch.. Its like the forced air makes it hard to breathe or it changes the pressure in the bedroom
  11. Boatman

    CH triggers

    X boss I couldn't agree more. I hate purfume!!. Candles and car freshners!! The couch sitting positions too.
  12. If you can abort with oxygen,keep aborting with oxygen. It's much safer then big pharma drugs.. if you think it causes rebounds try one day to see if it makes a difference. Personally I use oxygen and never believed they rebounded me. You're cycle might be ramping up before it stops. It's good to give it a little more time on 02 to make sure your ch is gone. Sometimes I'm to tiered and it let's up enough to sleep only to return. That's just my opinion
  13. Eggman I posted some stuff about using welding o2. It could help if you have trouble getting it through you're insurance. If you want you can private message me and I can offer some help. Welding o2 is all I use
  14. Boatman

    How can CH just go into remission

    That's the million dollar question.. that and why are some people cronic and some episodic. I ponder the same question countless times.. I know there's others smarter then me so what makes me think I can figure it out.. it's best probably not to wonder. Someone told me it's best to focus on treating them and preventing them with D3 reg and or busting. It's our best chance at a normal life..
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