birdman

Another awesome story for a D3 regimen. Awesome!!!

I'm not to educated on much besides the mushiness and the vitamin d3 and even that is limited. Never was a science guy but will do some reading on the cannabis oil. First, I gotta kill this cycle before it kills me

Glad to see you are upbeat. Once I get this damnable cycle behind me I would love to meet you. As I have stated before, I have only meet one other sufferer in person and it would be great to talk to someone again who knows the pain.

I should have said I am a fellow Nyc res. I went to school at Hofstra and loved to hit the beach on weekends. Now if I could only get out of cycle.

Wow, seems you have a lot to handle besides the CH and that's enough for anyone. As a fellow NYer I am sorry to say I heard about the accident which resulted in two fatalities, driver and passenger. I am so glad you had the strength and commitment to make the conference. I missed it as I am currently in cycle but it doesn't seem like you let that stop you. And that's a good thing. I finally got correctly diagnosed at Montefiore and credit them with saving my life as well. I hope you can continue your efforts and thanks for sharing!!

Good to know as nighttime seems to be my biggest issue lately. Heck, if you said sleeping velcroed to a wall I would try it. Hey, there's an idea. Lol

Definitely a better mode of thinking for your neighbor. That's one down and a few billion more to go. Lolol

As you mention sleeping with low levels of o2 I thought back to my previous wish. O2 pumping into the house like they say the casinos do. Set up in my bedroom would be great. Sorry, rambling. Enjoy the conference and please keep updating. Thanks jeebs

Always thought about the recline versus laying down thing. No recliner in the house but maybe tonight I will give the couch a try with my feet up. Can't hurt. Vent away vent away

I feel for you as I too am mostly now only experiencing nocturnal hits. Frustrated is a nice way to put it

If I had a nickel for every time I said to someone that I get cluster headaches and hear, oh yeah, I've gotten them...I would donate all proceeds to a cure. I have only personally meet one other clusterhead in my almost 30 years of living with this. ONE!! I have to get to the conference one year

It's not my temper that gets me it's my anxiety and lack of patience. The fact that we suffer like this in 2014 with all the medical research in neurology makes me insane. My calming mechanism, besides Ativan, is my faith, family and friends. Over and over till I'm through dancing with the devil.

Definitely please keep everyone up to date. It is a very interesting subject.

Get the seeds, never hesistate. Like ever

I am doing GREAT!!! Hope not to jinx it. Think about you guys and hope things are going well.