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ClusterBusters

birdman

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Everything posted by birdman

  1. birdman

    Starting D3 regimen...

    Another awesome story for a D3 regimen. Awesome!!!
  2. birdman

    Home After 4 Hits and Almost being Killed

    I'm not to educated on much besides the mushiness and the vitamin d3 and even that is limited. Never was a science guy but will do some reading on the cannabis oil. First, I gotta kill this cycle before it kills me
  3. birdman

    Home After 4 Hits and Almost being Killed

    Glad to see you are upbeat. Once I get this damnable cycle behind me I would love to meet you. As I have stated before, I have only meet one other sufferer in person and it would be great to talk to someone again who knows the pain.
  4. birdman

    Home After 4 Hits and Almost being Killed

    I should have said I am a fellow Nyc res. I went to school at Hofstra and loved to hit the beach on weekends. Now if I could only get out of cycle.
  5. birdman

    Home After 4 Hits and Almost being Killed

    Wow, seems you have a lot to handle besides the CH and that's enough for anyone. As a fellow NYer I am sorry to say I heard about the accident which resulted in two fatalities, driver and passenger. I am so glad you had the strength and commitment to make the conference. I missed it as I am currently in cycle but it doesn't seem like you let that stop you. And that's a good thing. I finally got correctly diagnosed at Montefiore and credit them with saving my life as well. I hope you can continue your efforts and thanks for sharing!!
  6. birdman

    Frustrated...Tired...Venting

    Good to know as nighttime seems to be my biggest issue lately. Heck, if you said sleeping velcroed to a wall I would try it. Hey, there's an idea. Lol
  7. birdman

    Proud of my self restraint

    Definitely a better mode of thinking for your neighbor. That's one down and a few billion more to go. Lolol
  8. As you mention sleeping with low levels of o2 I thought back to my previous wish. O2 pumping into the house like they say the casinos do. Set up in my bedroom would be great. Sorry, rambling. Enjoy the conference and please keep updating. Thanks jeebs
  9. birdman

    Frustrated...Tired...Venting

    Always thought about the recline versus laying down thing. No recliner in the house but maybe tonight I will give the couch a try with my feet up. Can't hurt. Vent away vent away
  10. birdman

    Frustrated...Tired...Venting

    I feel for you as I too am mostly now only experiencing nocturnal hits. Frustrated is a nice way to put it
  11. birdman

    Proud of my self restraint

    If I had a nickel for every time I said to someone that I get cluster headaches and hear, oh yeah, I've gotten them...I would donate all proceeds to a cure. I have only personally meet one other clusterhead in my almost 30 years of living with this. ONE!! I have to get to the conference one year
  12. birdman

    Temper temper temper

    It's not my temper that gets me it's my anxiety and lack of patience. The fact that we suffer like this in 2014 with all the medical research in neurology makes me insane. My calming mechanism, besides Ativan, is my faith, family and friends. Over and over till I'm through dancing with the devil.
  13. birdman

    Testosterone For Clusters

    Definitely please keep everyone up to date. It is a very interesting subject.
  14. Get the seeds, never hesistate. Like ever
  15. birdman

    This is hell!

    I am doing GREAT!!! Hope not to jinx it. Think about you guys and hope things are going well.
  16. Awesome news, hope you punched it in the face
  17. birdman

    This is hell!

    Been thinking about you guys and sending positive vibes your way. I hope he gets the best results possible, we suffer enough that we can be a little greedy. Please keep us posted on his progress and I will keep sending thoughts your way.
  18. birdman

    Here I go again!!!

    Wow, two year remission!!! I am thankful for that period of pain free living and as always regret that I went back to regular living. Should have stuck around and been a supporter as the people that supported me probably saved my life. Anyway, been having some shadows and this morning at the usual time when in cycle, bam.....it's back!! Gotta get back to o2 supplier (returned everything this past summer...knew it was a jinx). No shot at me growing anything as I don't have a green thumb...more like a black hand. Guess I will revisit the seeds. All this will surrounded by the disaster of Hurricane Sandy, my poor fellow Staten Islanders got hit real hard...keep them in your prayers!!!
  19. birdman

    Here I go again!!!

    Thankfully, still pain free. Busting and D3 appear to have been awesome. Lets hope we are close to getting BOL ready. Hope all are well!!!
  20. birdman

    busting for first time today

    All the best, you way of coping with this condition may take a major change for the better. Be well!!
  21. birdman

    Busted today, can i tommorow?

    My amateur opinion has always been...if you can hold off for at least three days then wait. If you can't...bust. Worst case, you may not get full effects. Everyone has to make the choices they think they need. With oxygen, I have always been able to wait but would never hesitate if things got bad.
  22. birdman

    The deep brain surgery is coming up!

    Thinking and praying for Jan and his upcoming surgery. I hope the current relief continues.
  23. birdman

    The deep brain surgery is coming up!

    Wow, I hope it brings about some serious relief. Please keep us all updated, glad he has gotten some rest.
  24. birdman

    Here I go again!!!

    Thanks Elly and glad to hear good times for Jackie. Hope a lot of pain free days ahead.
  25. birdman

    Here I go again!!!

    Still pain free and looking to stay in touch. On the vitamin D3 regimen and have M ready for a maintenance dose. Life is good right now, hope all fellow cher's are getting some relief.
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