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ClusterBusters

Ajax

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  1. Ajax

    Hello from New Member. Sharing Cure Stories.

    Sounds like you have tried everything but MM and maybe the LSD effort was not big enough. Commit to an MM regiment and see where it takes you!
  2. Ajax

    What have you tried?

    Reading this post is a walk down memory lane. 15 years trying all of Boston's neurologists(Until I found Mcgeeney). I will add: 1) Reiki 2) 4 vicodin /4 valium - Praying to pass out... In the end the valium became critical to the massive doses of Prednisone and my ability to not attack people while jacked up on it. 3) Head in snow bank 4) Close call with hammer to the front of the head... Having people talk while I am having a CH is not an option. If this is happening you need this card immediately and it needs to be short and sweet! Shut up, get me water, and make it dark PLEASE! the only water I drank with a CH was to wolf down pills that had zero effect.
  3. Ajax

    How many of you are long-terms pain free?

    As long as I follow my preventative schedule I am PF 6+ years. I tried to press my luck on the schedule(extended my MM bust a couple months) about 3 years ago and got the Sh-t kicked out of me in back to back cycles(I am episodic). WONT make that mistake again. I have said it before and I will say it again. This site and the people here saved my life! Not to mention the good doctor in Boston
  4. Ajax

    I see so much activity

    Weak doses set me back on my preventative regiment. Often times I will have to hit it again if I dose to low. It is also a far worse experience! I can only imagine how much worse it must be for a first timer. Edgy and paranoid versus Happy and trippy. PF thoughts to all!
  5. Still looking for the quote but ran across this which I thought was interesting. Love his last comment... Health Top 7 Most Painful Conditions Mar 18, 2013 12:01 PM ET // by Sheila M. Eldred Previous / Next Cluster Headaches Vince Neil of Motley Crue performs as part of the 4th Annual Sunset Strip Music Festival on the Sunset Strip in West Hollywood, Calif. in August, 2011. Corbis Motley Crue singer Vince Neil has played concerts through broken bones and torn ligaments, but crippling pain recently forced him off the stage after just a few songs. The culprit? Kidney stones. It's one of the most painful medical conditions humans endure, pain experts say -- although some are worse. In general, neuropathic pain -- pain produced by damage to nerves rather than tissue -- produces the most excruciating pain, according to Allan Basbaum, chair of the anatomy department at University of California, San Francisco, and former editor of PAIN, the Journal of the International Association for the Study of Pain. And because many of these conditions come and go, patients often live in trepidation of their next attack. "The unknown is terrifying," Basbaum said. While a definitive ranking is impossible, here's a look at a few of the most debilitating maladies, the kind Basbaum says patients rank as a 15 on a scale of 1-10. Cluster headache Getty Images People who suffer from cluster headaches describe them as worse than childbirth without anesthetics, worse than gunshot wounds, head injuries, or a burned hand. "They'll find the worst thing they can think of and tell you it's worse," said neurologist Dr. Peter Goadsby, director of UCSF's Headache Center. "It always causes me to stop and draw a breath." Part of the affliction of cluster headaches is that few people know what they are. "People will say, Why don't you take a Tylenol?" Goadsby said. While migraines affect about 15 percent of the population, cluster headaches only afflict 0.1 percent of the U.S. population. Still, that's about the same rate as the better known multiple sclerosis, Goadsby said. Treatments include 100 percent oxygen treatments, injections, nasal sprays and preventive drug treatment. But the current National Institutes of Health research funding for the condition is zero. "I personally just don't get it," Goadsby said.
  6. This is one paragraph from Wikipedia: Pain[edit] The pain occurs only on one side of the head (unilateral), around the eye (orbital), particularly above the eye (supraorbital), in the temple (temporal), or in any combination. The pain of CH is remarkably greater than in other headache conditions, including severe migraine. The term "headache" does not adequately convey the severity of the condition; the disease may be the most painful condition known to medical science.[10] The pain is described as burning, stabbing, boring or squeezing and may be located near or behind the eye.[11] Those with cluster headaches may experience suicidal thoughts during an attack as a result of the pain. I have seen it in other places as well.
  7. Great article. Phase III could pave the path for us as well! How do we piggy back this kind of attention/press? Pslyo kept me PF again in 2014. Not to take away the benefits from the dying, but I'll give a shout out to the living!
  8. travelling as well. Happy Holidays to all. Site changed my life. Big SHOUT out to the good doctor from Boston! PF wishes for all.
  9. Ajax

    Vitamin M on Yahoo!

    http://finance.yahoo.com/news/tripping-mushrooms-changes-brain-204500998.html Hope the link works. Looks like people are starting to see the power. No CH mention but positive information.
  10. Ajax

    I wish doctors would figure this out

    I met a doctor last week that just opened some walk in clinics. I thought I would amuse myself and ask him how they might help me if I came in with CH's. He said "High flow O2 would be a great start". I was pleasantly surprised. Maybe a few people are starting to pay attention... maybe... wrong crowd to go into busting but I will next time I run into him. I find that a good bust can help a lot of frustration!
  11. Can't believe I will miss this... It is my 20 anniversary and we are going away(without kids!). This event is one of my best weekends of the year. I know it will be great for all attendees! See you next year?
  12. Ajax

    Greetings

    Hi Viking, Always hard to hear that kind of timeline of pain. You have hit the lottery with this site. I am Pain Free after 10+ years of punishing CH's. I saw every neurologist in the greater Boston area and nothing worked until this forum saved me with busting. Welcome, you are already talking with 2 of the best above.
  13. Ajax

    New to this forum!

    You have found the site that will change your life. These guys are the best!
  14. Ajax

    Busting Question??

    I am sure it is different for everyone. For me, during the actual bust it feels like someone took a pipe cleaner and ran it from my eyeball to the middle of my head. I have tried lower doses and not had this sensation. In every one of those cases I have had to bust hard in the next few days. I know it is working as I immediately am pain free and the shadows are gone within 24 hours. Sometimes I have nervousness of a slap back that is mostly fear of the beast.
  15. Bejeeber it made me sick to my stomach when I read it... I was lucky enough to get the 3 to 4 hour kip 9+ but almost always only once in a day and then I was complete junk afterwards. Echo pick a poison/cure and get going! a bad trip would not scratch the surface of a CH especially a high KIP! I have seen many first timers trip and never seen a bad one. You can and will get your life back. These guys KNOW what they are talking about.
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